Ratan Singh Ng' Chairperson GIPA Alliance email:gipa'alliancegmail'com

1
Ratan Singh Ng.ChairpersonGIPA
Alliancee-mailgipa.alliance_at_gmail.com

• GIPA in the Resource Poor Setting
• Conflict Situation

2

• Manipur a northeastern state of India
• bordering Myanmar (354km long stretch)
• known as flower in the lofty heights but now as
  HIV/AIDS epicenter.
• Population 23,88,634
• Total area 22,327 sq. km. 90 constitutes
  hills
• 29 tribes (having different dialect)
• Birth rate 42.4/1000
• child mortality lt5yrs 61.7/1000
• Per capita Rs. 12,198 (271), Lit. rate 66
• BPL 29

3
Some salient features of the epidemic

• Porous border, instable govt., chaotic law
  order situation, poverty, insurgency, etc. fuels
  the epidemic.
• Close proximity to Golden Triangle Many have
  addicted to Heroin
• Estimated no. of IDUS 30,000 - 40,000
  apptly(80 are young).
• 23,288 ve (MSACS) upto June 2006 UNAIDS
  presumption is 3 times.
• 52.36 constitutes IDUs, 0.87 antenatal
  mothers, 2.46 perinatal transmission
• A paradigm shift of HIV transmission-from IDUs to
  spouses further to children
• Seropositivity among antenatal mothers 3.04

4
Sentinel Surveillance conducted by Manipur State
AIDS Control Society
Injecting Drug Users
Pregnant mothers
5
PLWHAs in General Present State

• Still underground/cocooned
• Majority are IDUs male married unmarried are
  equal.
• Many have formed self help/support groups which
  play vital role in minimizing the impact.
• MNP takes a pivotal role while advocating
  minimizing Stigma Discrimination.

6
Socio-economic State

• Majority are poor and lack proper education.
• Fall below poverty line.
• Majority are daily wage earners.
• Constant health break downs drastically affects
  their income.

7
Access to Treatment

• Access to care treatment still a major hurdle.
• 4000-5000 would be needing ART
• Total no. of on ART 2003 (806-RIMS 1062-JN
  82-CCpur 53-Ukhrul others-350)
• 1500 2000 have been estimated on prophylactic
  treatment.

8
Access to Treatment

• Co-infection with Hep C among IDUs is extremely
  high. (98 - CCPr 92 - Imphal, Panda 2000)
• Treatment for Hepatitis is beyond the reach for
  majority of PLWHAs.
• Hep-C is the major cause of death for those on
  ART as they cannot afford either the anti HCV or
  the alternative ARV such as EFV

9
Access to Treatment

• Children have the least priority while accessing
  the ART moreover pediatric ARVs are extremely
  limited.
• IDU constitutes atleast 60 those accessing ART
  out of which 5 10 constitutes active/current
  IDUs.
• Linkage between the patients and ART Centers is
  poor. No follow ups.
• Adherence on treatment another important area
  where many have fail to keep up with.

10
Stigma Discrimination

• S D is comparatively better than rest of the
  country.
• Much has been reduced as many can now access the
  treatment.
• Except for the 2 main hospitals (JN RIMS) rest
  of the district hospitals usually avoid treating
  HIV positives.
• PLWHAs often magnifies the level of S D then
  what it actually is

11
The Evolution of GIPA Alliance
PD NGOs
With the Women SSGs
Formation
12
The Evolution of GIPA Alliance

• GIPA started happening after almost 10 years.
• After the announcement - 6 NGOs 40 SSGs (PLHA)
  established the GA (GIPA Alliance).
• GA encompasses altogether 1247 PLHA.
• Has a core committee that consist of 6 entities
  (MNP, NEIHRN, LLF, SASO, KF CF.)

13
VISION
An enabling and supportive environment in
response to the impact of the epidemic through
GIPA for integrated community development.
14
MISSION

• Bringing quality life to people living with or
  affected by HIV/AIDS.
• Endorsing GIPA at all level for ensuring
  ownership effective implementation of
  policy/program on HIV/AIDS through advocacy.
• Motivation and skills development to empower
  PLHAs for a sustained enabling environment
  through capacity building.
• Strengthening and expanding the Alliance at the
  regional level through networking and linkages
  amongst various agencies.

15
Achievements

• State Level Establishing Workshop Hotel
  Excellency
• Regional Level Consultancy Meeting State Guest
  House
• Series of advocacy meetings with RIMS, JN
  Hospital MACS resulted to MOU
• Placement of 4 GA Volunteers at ART Center, RIMS.
  The same was placed at ART Center, JN Hospital.

16

• 3 Treatment Counselling Centres in collaboration
  with ART Centres manned by GA members
• GA employs a State Coordinator
• GA is included in the State Advisory Committee on
  ART program
• State Steering Committee for GFATM

17
Achievements..

• Representation at the Executive Committee of
  State AIDS Control Society
• Gave us a room to share our experience in the
  Project Implementation Plan for National AIDS
  Control Program-III
• Representation of members in the Joint Appraisal
  Team
• Initiated a Media Committee on HIV/AIDS
• Free Legal Aid Cell for PLHA

18
Memorandum of Understanding signed
with Regional Institute of Medical Science (RIMS)
Manipur State AIDS Control Society (MSACS)
19
GA Chairman has been included in State Advisory
Committee on ART
20
Also in the State Steering Committee on Global
Fund for AIDS, Malaria TB
21
Volunteers placed at RIMS
ART Center RIMS
ART Center JN Hospital
22
Exploring Effective Advocacy Strategies
23
HEALTH CARE PROVIDER Hospitals State Districts
Med. College Pvt. Hospitals Clinics
Practitioners
GIPA Alliance
MONITORING DIAGNOSTICS VCCTC Microbiology Pvt.
Diag. Centers
NGO/CBO/FBO - 1 SHGs Religious Groups
ARV/OI Med SUPPLY ART Center Chemist Stockist
Pharma Compy.
PLWHA
HOME COMMUNITY Family Friends Relatives
REFERRAL NETWORKING
CONTINUUM OF CARE Area Specific
24
Distribution of Drugs
Free Health Camp
Peer Support/counseling
Fund Raising
25
District A
STATE HEALTH SECTORS Primary, Secondary Tertiary
Org 1
GIPA ALLIANCE
Org 4
Org 2
District D
District B
Org 3
MONITORING ADVOCACY
District C
STATE WIDE CONTINUUM
26
THANK YOU!

• TOGETHER WE CAN MAKE A DIFFERENCE
• GIPA Alliance

27
AIDS DENIALISM
Go to www.AIDStruth.org for accurate information
on HIV/AIDS and to learn about how AIDS
denialists twist the truth and peddle lies.