Market Access for Orphan Drugs: assessing the global landscape

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Market Access for Orphan Drugs assessing the
global landscape  
One-Stop Shop for Business Information
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Summary
Their development costs can be high and the
market is relatively small, yet orphan drugs
represent a significant contribution to public
healthand to pharmaceutical market values. In
fact, analysts predict that orphan drugs will
account for 15 percent of the global
pharmaceutical market by 2018. Yet getting there
will not be easy. While governments offer
incentives for development, payers must also
balance the needs of the majority with the high
cost of orphan drugs. International and regional
regulations are also hurdles to be overcome,
despite harmonisations efforts by agencies.
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In Market Access for Orphan Drugs Assessing the
Global Landscape, FirstWord goes around the world
to lay bare the market access issues affecting
orphan drug developers in the US, Asia and
Europe. Based on thorough research and European
national drug policies translated specifically
for FirstWord, the report reviews the challenges,
offers insight into strategies being used and
includes invaluable comparative tables. Filled
with information on trends, patient access
schemes and the role of patient organisations,
the report is a must-read for orphan drug
developers and manufacturers.
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ScopeThis report provides a comprehensive
analysis of the life insurance segment in
China It provides historical values for
Chinas life insurance segment for the reports
20082012 review period and forecast figures for
the 20122017 forecast period  It offers a
detailed analysis of the key sub-segments in
Chinas life insurance segment, along with
industry forecasts until 2017 It covers an
exhaustive list of parameters including written
premium, incurred loss, loss ratio, commissions
and expenses, combined ratio, frauds and crimes,
total assets, total investment income and
retentions
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• Key Report Features
• Comparative tables for orphan drug polices and
  incentives in the major markets
• A look at the role of patient organisations and
  registries in orphan drug development
• Pricing and reimbursement information for key
  markets
• Overview of orphan drug trends by year, company
  and therapeutic focus

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• Key FactsBy 2020, the recently-formed
  International Rare Disease Research Consortium
  aims to be able to diagnose most rare diseases
  and to have developed 200 new therapies
• Biomarkers and improved clinical diagnostics are
  increasing the possibility of developing targeted
  rare disease therapies
• Currently, there are 6,000 to 8,000 rare
  diseases, with genetic research identifying more
• Although the prevalence of rare disease is
  extremely low, they affect 30 million people in
  the EU

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• Key BenefitsDeveloping and marketing orphan
  drugs poses several challenges. Through Market
  Access for Orphan Drugs Assessing the Global
  Landscape, you will
• Understand the regulatory and policy frameworks
  that exist in key markets
• Gain insight into the incentives available to
  orphan drug developers
• Appreciate the role of patient groups as
  potential collaborators in new therapy
  development
• Access information relating to which companies
  are successfully operating in the orphan drug
  arena

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