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Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey

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American. Cancer. Society. NJLINCS ... American Cancer Society (ACS) ... American Cancer Society - already conducting their own C/NA State Cancer Registry ... – PowerPoint PPT presentation

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Title: Task Force on Cancer Prevention, Early Detection and Treatment in New Jersey


1
Task Force on Cancer Prevention, Early
Detection and Treatment in New Jersey
  • EVALUATION COMMITTEE

2
The Evaluation Committees Web Site Is Located
At
  • www.umdnj.edu/evalcweb/

3
Caveat/Disclaimer
  • This document reflects a "work in progress."
  • It is meant ONLY as a general guide and overview
    to some of the many dynamically evolving
    implementation issues related to the CCCP.
  • This particular set of "slides" includes issues
    related to the Task Force Workgroups and
    interactions with OCCP etc, and the
  • new County Evaluators for the CCCP for which
    the 25 NJ CEED programs are receiving NJDHSS
    funding related to the CCCP objectives.

4
Evaluation CommitteeChair Stanley H. Weiss,
M.D.weiss_at_umdnj.edu
  • The evaluation committee is part of the Task
    Force on Cancer Prevention, Early Detection and
    Treatment in New Jersey
  • This committee will provide some overall guidance
    to the CE/CCCP and Workgroups
  • Evaluators and Workgroups will report to the OCCP
    and Peg Knight, who will
  • Synthesize their reports and
  • Relay them to Dr. Weiss and to the Task Force for
    further assessment

5
Evaluation Committee Will Also
  • Consolidate input from evaluation activities both
    within NJDHSS and external sources, including the
    county evaluators for the CCCP (CE/CCCP)
  • Seek input from the re-formulated Task Force
    Workgroups
  • Provide feedback to the Task Force

6
So, Where Does Everyone Fit in?
7
Administrative Matrix for CCCP Who Reports to
Who?
Task Force on Cancer Prevention, Early Detection
and Treatment in NJ Chair A. Baskies
Office of the Governor
NJLINCS Local Health Officers
NJDHSS
Cancer Registry
OCCP Exec. Director Peg Knight
Evaluation Committee Chair S. Weiss
State NJ CEED Office
CINJ Comprehensive Cancer Center
25 CEED CE/CCCP
Workgroups responsible for each cancer/area (8)
and key over-arching issues
Battelle Centers for Public Health Research and
Evaluation
American Cancer Society
NCI/CDC
UMDNJ-SPH Training S. Weiss (PI) M. Sass (Co-PI)
UMDNJ-NJMS Evaluation S. Weiss (PI)
8
Collaboration and Data Exchange Matrix for CCCP
Dotted Line Interaction/Collaboration between
two entities Arrow Direction of Data Flow
Task Force on Cancer Prevention, Early Detection
and Treatment in NJ Chair A. Baskies
Office of the Governor
NJDHSS
Cancer Registry
OCCP Exec. Director Peg Knight
Evaluation Committee Chair S. Weiss
NJLINCS Local Health Officers
State NJ CEED Office
CINJ Comprehensive Cancer Center
25 CEED CE/CCCP
Workgroups responsible for each cancer/area
(8) and key over-arching issues
American Cancer Society
Battelle
NCI/CDC
UMDNJ-NJMS Evaluation S. Weiss (PI)
UMDNJ-SPH Training S. Weiss (PI) M. Sass (Co-PI)
9
TASKS for the Workgroups
  • Need to review CCCP and the deadlines set forth
    in the plan.
  • Are those deadlines realistic today?
  • Will they need to be adjusted?
  • How will they be adjusted?
  •  
  • 2. Look at their section of plan critically and
    what has been completed and what has not?

10
Workgroup Tasks (Cont)
  • 3. Workgroups will also need to start working
    with County Evaluators (CEs) for the CCCP to
    identify cancer resources throughout the state
    for their specific cancer site. Information on
    how to contact each Workgroup will be provided to
    CEs.
  • 4. Make contacts with other Workgroups in areas
    relevant to their cancer site. Note The
    overarching Work Group has been formally split
    into its constituents Access and Resources,
    Advocacy, Palliation, Nutrition and Physical
    Activity, and Childhood Cancer.

11
Workgroup Tasks (Cont)
  • Review the administrative and collaboration
    matrixes and realize their role going forward.
  • Provide OCCP and Task Force with updates

12
Tracking Progress in the Workgroups
  • Battelle Centers for Public Health Research is
    working on developing an electronic tracking
    system that each Workgroup is to use under the
    direction of the Workgroup chair or appointee.
  • A draft version is explained in the attached Word
    document, it should be used with appropriate
    goal/objective/strategy, names and numbers
    replacing those in the draft.
  • These should be modified by each Workgroup so as
    to create one form for EACH strategy. To modify,
    simply make a copy and type in the
    goal/objective/strategy from the CCCP.

13
Tracking Progress in the Workgroups
  • You should use these immediately for gathering
    data.
  • If and when more sophisticated electronic
    versions to capture this information are
    developed, these will be provided to the
    Workgroups.
  • On a bi-monthly or quarterly basis, the OCCP
    requests that each Workgroup provide an update.
  • First updates desired by OCCP during June 2003.
  • See example.

14
Electronic Tracking System
  • Date Form Completed AUTOMATED
  • Work Group CHILDHOOD CANCER
  • Submitted By FIRST NAME LAST NAME
  • Goal CC-1 To improve care for adolescents and
    young adults.
  • Objective CC-1.1 To educate healthcare
    providers about the availability of existing
    clinical research protocols and the referral of
    young adults up to the age of 21 to pediatric
    oncology centers.
  • Strategy CC-1.1.1 Conduct a pilot study to
    validate the existing research and assess any
    difference in cancer survival based on treatment
    regime between adult treatment centers and
    pediatric treatment centers.
  • Funding
  • Amount Source Comments
  • i.e. 25,000 Wonderful Granting Agency's
    Name Grant application award announcement
    March2003
  • i.e. 30,000 Another Wonderful Granting
    Agency On hold for FY 2003
  • Targets
  • Target Date Status Date month/year of
    anticipated or actual completion
  • 2003
  • 2004
  • Principal Change Agents Last Contact
    Date Name
  • i.e. American Cancer Society

15
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Fields for Progress Reporting on Specific
    Strategies for Each Workgroup

 
16
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Fields for Progress Reporting on Specific
    Strategies for Each Workgroup

 
17
Additional Project By Battelle
  • Battelle is also developing indexing/cross-indexin
    g of the CCCP according to key parameters
  • Enable tracking by Workgroups of NJ activities
    with respect to the CCCP, by linkage to the above
    CCCP database system

18
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Key Parameters

 
19
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Key Parameters

 
20
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Key Parameters

 
21
Battelle
  • NJ CCCP Database Fields v2 draft of Monday, April
    21, 2003
  • Key Parameters

 
22
Who are some of the various agencies and groups
aiding the CCCP efforts?
  • Office of Cancer Control and Prevention
  • Cancer Registry
  • NJ Cancer Education and Early Detection (CEED)
    Programs
  • Training of NJ CEED CE/CCCP UMDNJ-SPH
  • Technical Assistance to NJDHSS/Task Force, and
    External Evaluation UMDNJ-NJMS

23
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 1. Office of Cancer Control and Prevention -
    Office of the CCCP Executive Director
  • Peg Knight, RN, MEd
  • 2 new staff positions On HOLD

24
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 2. Cancer Registry - Office of Cancer
    Epidemiology
  • Betsy A. Kohler, MPH, CTR
  • 2-3 new staff positions On HOLD

25
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 3. NJ Cancer Education and Early Detection
    (CEED) Programs
  • 25 new positions at each program (programs in all
    21 NJ counties with 4 counties having 2 programs)
  • Administered by Doreleena Sammons-Posey, SM and
    Anna Ruth Thies, RN, MA
  • 1 new central State staff position in fiscal 2003
    On HOLD

26
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 3. CEED Programs continued
  • 57,100 to each program in Fiscal 2003
  • 52,100 for a staff/consultant position for
    Capacity/Needs Assessment and Evaluation as the
    County Evaluators for the CCCP (CE/CCCP)
  • 5,000 for support resources - computer equipment

27
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 3. CEED Programs continued
  • On March 5, the above mentioned 57,100 in funds
    received an extension for use beyond JUNE 30th -
    to permit use through SEPTEMBER 30th.
  • As of April 1, 2003, this has CHANGED and the
    extension will be through DECEMBER 31st,
    providing a more adequate time frame to
    accomplish the goals.

28
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 4. Training of NJ CEED CE/CCCP County
    Evaluators for the CCCP Fiscal 2003 MOA with
    UMDNJ-SPH
  • 4 day-long programs in preparation, for training
    in basic skills and applying standardized
    methodology (1st day of training set for May
    14th)
  • Drs. Marcia Sass co-PI
  • and Stanley H. Weiss PI

29
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • NJDHSS
  • 5. Technical Assistance to NJDHSS/Task Force,
    and External Evaluation
  • MOA with UMDNJ-NJMS
  • Stanley H. Weiss, MD PI
  • Susan Collini, MPH
  • William Halperin, MD
  • Judith B. Klotz,  MS, DrPH after May 1st
  • Funding after June 30, 2003 ON HOLD

30
The Original Planned Fiscal 2003 New 3.25M
Allocation Was to Support
  • 5. Technical Assistance to NJDHSS/Task Force,
    and External Evaluation
  • Review assessment/evaluation plans and
    implementation of other States identified by CDC
    as exemplary models
  • Assess instruments and systems for data
    collection and systemization by NJDHSS and its
    contractors
  • Public health/epidemiologic assessment of the
    Comprehensive Cancer Control Plan (CCCP)

31
Additional Funding by the State in Cancer Research
  • Cancer Institute of New Jersey
  • William N. Hait, MD, PhD
  • NCI-Comprehensive Cancer Center, with NCI
    mandates related to the community
  • Added allocations of 20M Fiscal 2003, 18M
    Fiscal 2004
  • Including for development of a system to foster
    communication about treatment programs
  • RFAs issued March 2003

32
Non-state Funding Sources
  • CDC
  • National Breast and Cervical Cancer Early
    Detection Program (NBCCEDP) operates in all 50
    states, D.C., 6 US territories, 12 Am
    Indian/Alaskan Native organizations
  • Federal funding -- established 1990
  • ? stability of NJ CEED programs
  • American Cancer Society (ACS)
  • Plans to share with OCCP (and the CE/CCCP)
    results of regional ACS C/NA
  • ACS is adopting the NJ CCCP in its own forward
    planning, which is important in terms of
    long-term goals

33
Implementation Is Moving Forward An Update
34
New County Evaluators for the CCCP (CE/CCCP)
  • As part of the Implementation Process of the
    CCCP, the new CE/CCCP will be hired by each CEED
    program to conduct a Capacity and Needs
    Assessment (C/NA) and evaluation of all aspects
    concerning cancer prevention, detection and
    treatment in their county.
  • These County Evaluators will either be
    consultants or employees.

35
New County Evaluators for the CCCP (CE/CCCP) Key
Responsibilities
  • Investigates cancer needs and capacity
    assessments in their County
  • Describes impediments to best cancer prevention
    practices in their County
  • Describes the system for early detection and
    prompt therapy of cancers in their County
  • Develops guidelines to implement a comprehensive
    cancer C/NA and a work plan to implement the
    capacity and needs guidelines
  • Works with OCCP and the Cancer Registry to
    identify communities and populations where cancer
    burden is highest

36
Purpose of Capacity Needs Assessment
  • To provide the best approach to implementing the
    CCCP
  • To help keep the implementation process on target
  • To provide both baseline and (over time)
    follow-up information for evaluation purposes

37
Collaboration
  • Information will be gathered by the County
    Evaluators through collaboration with multiple
    sources, such as
  • American Cancer Society - already conducting
    their own C/NA State Cancer Registry
  • Task Force Workgroups
  • Local and county health officers
  • Battelle Centers for Public Health Research and
    Evaluation
  • CDC and NCIs Cancer Information Service and
    Partnership Program

38
CCCP, ACS CEED Priority Areas
39
CCCP Priority Area Over-Arching Issues
  • Access and resources
  • Advocacy
  • Palliation
  • Nutrition and physical activity
  • Childhood cancer

40
CCCP Priority Area Emerging Trends
  • Access to clinical trials
  • Cancer survivorship
  • Complementary/alternative medicine
  • Infection and cancer
  • EBV
  • HIV
  • H. pylori
  • HPV
  • HBV vaccine, HCV

41
CCCP Priority Area Short-Term Issues
Historic geographic issues i.e. bladder cancer
- What has been happening? Cluster Busters
Drs. Dan Wartenberg and Eddy Bresnitz, and
Betsy Kohler CCCP Priority Area Long-Term
Issues Emerging Cancers - i.e. HCC, especially
issue of HCV
42
Long Term Issues
Sequential, prioritized analysis from an
epidemiologic standpoint, of relative efficacy
and cost-benefit (including BOTH direct and
indirect effects) of extant primary, secondary,
and tertiary prevention efforts for each cancer
type, with comparison to actual effort and
expended, to assist policy makers in resource
allocation.
43
ACSs 6 New Jersey Regions
44
The Comprehensive Cancer Control Plan on the
Web..
  • Copies are available via the Internet at the
    Office of Cancer Control and Prevention Program's
    Website
  • http//www.state.nj.us/health/ccp/ccc_plan.htm

45
Additional Resources Researchers Dataset From
the NJ Cancer Registry http//www.state.nj.us/hea
lth/cancer/webroll.htm
  • An individual-level dataset is available from the
    New Jersey State Cancer Registry without
    identifiers, which includes data from 1991-1998
  • A Public Use Agreement must be signed
  • File is available in both ASCII and ACCESS '97
    formats
  • Accompanied by a file containing populations
    counts appropriate for calculating rates

46
Additional Resources NJDHHS Website
  • Resources can be explored on the
  • New Jersey Department of Health and Senior
    Services Website
  • Related Cancer Links
  • http//www.state.nj.us/health/cancer/links.htm
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