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DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CE

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... Professor of Mental Health and Ageing at the Institute of Psychiatry, King's ... Listening and Engagement Exercises. December March 2008 ... – PowerPoint PPT presentation

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Title: DELIVERING BETTER OUTCOMES FOR PEOPLE WITH DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE LONDON CE


1
DELIVERING BETTER OUTCOMES FOR PEOPLE WITH
DEMENTIA THE NATIONAL DEMENTIA STRATEGY AND THE
LONDON CENTRE FOR DEMENTIA CARE
  • Maria S. Parsons
  • Executive Director
  • London Centre for Dementia Care
  • University College London

2
Dementia in the UK
  • 2008 estimated 700,000 people with dementia
  • 2021 rise of 38 to just over 1,700,000
  • 68 over 80
  • 62 Alzheimers disease
  • 66.5 live in the community
  • 36.5 in care homes
  • 36 of estimated 18 billion costs of care borne
    by families
  • No cure -it helps to understand dementia as a
    disability

3
London Borough of Sutton
4
Challenges in London
  • Increases in prevalence of dementia in London
    boroughs estimated as circa 10 (Inner) and 32
    (Outer) over next 17 years.
  • Disparities of income and wealth groups
    dependent on public services self payers
  • Cross cutting inequalities dementia low
    health status, social deprivation, ethnicity and
    discrimination, social isolation and living
    alone.
  • Diversity of workforce
  • Low level of skills and specialist knowledge
  • Complexity/gaps in health and social care
    services
  • Cost pressures

5
Drivers and levers
  • Demographic pressures
  • Overall low quality services and integration
    patchy
  • November 2006 Supporting People with dementia and
    their Carers in Health and Social Care NICE/SCIE
    - evidence base
  • February 2007 Dementia UK Alzheimers Society
    major report prevalence and costs
  • 4 July 2007 Improving services and support for
    people with dementia and their families, NAO
    services poor value for money
  • August 2007 Ivan Lewis announces work on
    National Dementia Strategy (NDS)

6
NDS programme and timescale
  • DH Lead David Behan, Director General of Social
    Care
  • Professor Sube Banerjee, Professor of Mental
    Health and Ageing at the Institute of Psychiatry,
    King's College London, Jenny Owen, Executive
    Director of Adults, Health and Community
    Wellbeing in Essex joints lead
  • Neil Hunt, CE, Alzheimer's Society chairs
    programme's External Reference Group - main
    core group 3 sub-groups
  • 3 key themes Raising Awareness, Early diagnosis
    and intervention and quality of care

7
NDS Timetable
  • Listening and Engagement Exercises
  • December March 2008
  • Report from work streams to Minister March 2008
  • Formal consultation on the draft Strategy
    between June and August 2008
  • The final National Dementia Strategy and
    Implementation Plan will be published in
  • Autumn 2008
  • Must dos?
  • Who will provide leadership at regional level?

8
Improving Awareness
  • Developing a better understanding of dementia by
    public and professionals alike
  • Ensuring that better information is provided on
    how to seek help and what help and treatment is
    available and
  • Tackling the stigma and misunderstandings
  • that currently exist
  • Not confined to general public low in health
  • services particularly acute sector

9
Early Diagnosis and Intervention
  • GPs reluctant to diagnose or misdiagnose
  • Only a third of people with dementia receive a
    formal diagnosis at any time in their illness.
  • Late diagnosis reduces ability to plan and make
    choice.
  • Early diagnosis and intervention services not
    universal or comprehensive
  • Inherent tension between early diagnosis and
    social services as stringent eligibility criteria
    of CSSRs mean those deemed eligible for services
    have critical needs/severe dementia

10
Improving the Quality of Care for People with
Dementia
  • Quality of care
  • Commissioning
  • Supporting the workforce
  • Monitoring and regulation
  • Care pathways
  • Acute hospital care
  • Liaison and links
  • Whole systems/integration

11
London Centre for Dementia Care
  • Established 1998 at University College London
  • A Dementia Services Development Centre for the
    capital (DSDCs provide information, education,
    consultancy and research for professionals and
    care staff
  • Executive Director Maria Parsons. Chair of
    Strategy Group Professor Martin Orrell CEs
    and senior managers from statutory voluntary
    sector and academia
  • 2006 for dementia provided 2 year Strategic
    Partnership grant

12
Vision
  • The London Centre for Dementia Care will
    promote and facilitate the dissemination and
    implementation of best practice in dementia care

13
Strategic Aims
  • Act as a hub and portal for professionals and
    care staff to information and knowledge in
    dementia care
  • Contribute to developing a skilled workforce
  • Facilitate the transfer of knowledge from
    research
  • Provide expertise to commissioners and providers

14
LCDC Development and events
  • 2007 Feasibility study
  • 2008 Business Plan, Governance and Fundraising
    Strategy Spring 2008
  • What works in dementia care? April 8, UCL
  • Dementia Summer School July 1 UCL
  • Programme of development includes website and
    database of good practice
  • Dementia Network

15
LCDC Services and activities
  • Information and inquiry service
  • Dissemination of research
  • Quarterly Margaret Butterworth Care Homes Forum
  • LCDC Newsletter (1000 circulation) 3 times a year
  • Quarterly Dementia Education and Training Network
    (DETN) with for dementia
  • Seminars and conferences
  • Consultancy projects

16
Current projects
  • DBA Inclusive Challenge (Dementia) with Helen
    Hamlyn Centre, RCA
  • Sutton Council population needs and services
  • DementiaSpace and Dementia Forum workforce
    development for national care home company

17
People at the London Centre for Dementia Care
  • Professor Martin Orrell, UCL, Chair, LCDC
    Strategy Group
  • Barbara Stephens, Chief Executive, for dementia
  • Vice Chair, LCDC Strategy Group
  • Maria Parsons, Executive Director, LCDC

18
Do contact us
  • Maria S. Parsons
  • Executive Director
  • London Centre for Dementia Care
  • University College
  • 67-73 Riding House Street
  • London
  • W1W 7EJ
  • m.parsons_at_ucl.ac.uk
  • T 0202 7679 9588
  • M 07801 509993
  • www.ucl.ac.uk/dementia
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