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Carers and delayed discharge: Establishing research priorities

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Carers and delayed discharge: Establishing research priorities – PowerPoint PPT presentation

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Title: Carers and delayed discharge: Establishing research priorities


1
Carers and delayed discharge Establishing
research priorities
Rosemary Chesson Chair, Carers Research
Partnership
2
Carers Research Partnership
  • A unique grouping of carers, service users,
  • service providers and researchers
  • Main aims are to
  • provide robust evidence regarding the
  • needs of carers and service users
  • extend knowledge of the nature of
  • caring, and especially of carers needs
  • develop a joint research agenda


3
Carers and delayed discharge
Main purpose of meeting is to Identify a
research question to go forward for funding

4
Structure of the meeting

Presentations Perspectives on delayed discharge

Break
Formulating research questions
Prioritising questions
Wider consultation, especially with carers and
carer organisations
Future research
5
Research on delayed discharge and carers
  • low volume of published research (largely
    relates to
  • England and Wales)
  • indirect references to carers and discharge
  • literature (eg stroke)
  • publications indicate differences between
    patients
  • and carers
  • majority of research related to older people

6
Problems and limitations of delayed discharge
research to date

! Variety of definitions used re delay ! Terms
delayed discharge, inappropriate acute bed
usage and bed blocker often used
interchangeably. ! Majority of research is
historical (prior to Community Care (Delayed
Discharges etc) Act 2003, Scottish Executive
targets intermediate care provision. ! ! Few
studies include carer perspectives.
7
Carers views

From a critical evaluation of literature in 2000
it was concluded that carers views on delayed
discharge were conspicuous by their
absence Victor et al, 2000
8
BUT
  • key factor in delayed discharge is NOT having a
  • carer (Victor et al, 2000)
  • carers have been identified as key decision
    makers
  • regarding institutional (residential care)
    entry
  • (Minichiello, 1990)
  • carers in most cases provide the majority of
  • assistance and support post discharge
  • (Jones Lister, 1994).

9
Carers experience
  • carers more likely than patients to be
    dissatisfied
  • with discharge arrangements including
  • length of notice
  • more likely than patients to believe discharge
  • has been premature
  • carers of older people sometimes feel that the
  • burden of care is almost intolerable
  • (Jones Lister, 1994)


10
Research needs
  • Focus on carers regarding their needs and
  • preferences.
  • Prospective studies needed which reflect the
  • current situation and Scottish policy.
  • Studies needed across a wide range of care
  • groups.
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