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Building Family-Centered Care Practices through Patient and Family Advisory Boards

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Title: Building Family-Centered Care Practices through Patient and Family Advisory Boards


1
Building Family-Centered Care Practices through
Patient and Family Advisory Boards
  • Linda Taloney, MA
  • Patient Advocate Manager
  • Melissa Pulis, MS, CCLS
  • Child Life Manager
  • Panel Chris Rathmann, Sheryl Chadwick, and Lisa
    Miller
  • Family Advisory Board and Teen Advisory Board
  • Childrens Mercy
  • Hospitals and Clinics
  • Kansas City, Missouri
  • 3rd International Conference on Patient Family
    Centered Care
  • July 30, 2007 August 1, 2007
  • Seattle, Washington

2
TODAYS GOALS
  • Understand the value of patient and family
    advisory boards.
  • Recognize that patients and families drive the
    development of family-centered care practices.
  • List five ways a hospital can benefit from
    collaborative relationships between patients,
    families and staff.

3
Patient Centered Care
  • Providing care that is respectful of and
    responsive to individual patient preferences,
    needs and values, and ensuring that patient
    values guide all clinical decisions

4
  • What if you had the opportunity to have
    long-term consultants regarding the care and
    service you provide at little or no cost?
  • YOU DO!
  • The Family/Patient Advisory Board

5
A Few Cautions
  • Must have CEO support!!!
  • Expect to hear opportunities to improve
  • Be prepared to address opportunities to improve

6
Family-Centered Care
  • Family Centered Care is an approach to health
    care that shapes health care policies, programs,
    facility design, and day-to-day interactions
    among patients, families, physicians, and other
    health care professionals.

7
Family Advisory Board (FAB)
  • Developed in January 2003
  • Consists of 18 families and 8 Childrens Mercy
    staff
  • Meets monthly
  • Reports to the Executive Vice President, Co Chief
    Operating Officer

8
Family Advisory Board (FAB)
  • The Family Advisory Board seeks to enhance the
    delivery of the family centered health care at
    Childrens Mercy Hospitals and Clinics by
    providing a vehicle of communication through
    collaborative efforts between the families and
    the entire staff

9
Family Advisory Board (FAB)Goals
  • Promote a relationship in which CMH professionals
    and the family members work together to ensure
    the best services for the child and their family
  • Promote supportive channels of communication
    between hospital staff and families
  • Promote input and feedback on delivery of
    services for children and their families

10
FAB Goals
  • Review issues referred to the Family Advisory
    Board and provide recommendations
  • Provide input and participate in education of
    health care professionals and all other hospital
    personnel
  • Educate families in health care issues
  • Provide input regarding program development,
    services and new facilities

11
Family Advisory Board (FAB)Membership
  • Parents or immediate family members of patients
    who have experienced a pediatric hospitalization
    or ongoing pediatric outpatient treatment
  • In order to achieve representation from the
    population served, there shall be parent
    representatives from a wide variety of pediatric
    specialties
  • Members shall represent not only specific
    diagnoses but also the geographic areas and
    cultural diversity of the population served

12
Family Advisory Board (FAB)Membership
  • In addition, the FAB membership shall consist of
    the following members or their designees
  • Executive Vice President, Co Chief Operating
    Officer
  • Director of Child Life and Volunteer Services
  • Manager of Child Life
  • Patient Advocate Manager

13
Family Advisory Board (FAB)Membership
  • Chief Nursing Officer
  • Senior Director of Quality
  • Senior Director of Allied Health and Support
    Services
  • Chief Resident
  • Physicians

14
Family Advisory Board (FAB) Participation
  • New Beginnings program
  • Parents offering Parents Support (POPS)
  • Rapid Response Team input
  • Infection Control Stop Signs
  • Quality Team Involvement
  • Family Information Bulletin Boards

15
Family Advisory Board (FAB) Participation
  • Billing Department Process
  • Book Drive
  • Quick Tips Visitation Card
  • Input on venipuncture process
  • External presentations
  • Winning Communication video

16
Information Sharing
  • Define the parents role as a partner/participant
    in the care of their child
  • Communicate, Communicate,
    Communicate!

17
Winning Communication
  • Video
  • and
  • Discussion

18
Teen Advisory Board (TAB)
  • Formed in March 1999
  • TAB commits to providing education and support to
    Childrens Mercy patients, families and staff
  • TAB is a group of young adults with experience in
    a variety of diagnoses

19
Teen Advisory Board (TAB)
  • TAB meets monthly, to work on projects that are
    nominated by TAB members and/or CMH staff
  • TAB is co-chaired by the Patient Advocate Manager
    and the Child Life Manager

20
Teen Advisory Board (TAB)
  • Membership
  • Ages 13-18
  • Members until they are no longer patients at CMH
  • Board consists of a minimum of 8 members
  • One board member is elected to be the president

21
Teen Advisory Board (TAB)
  • Membership selection will be based upon
  • Amount and type of hospital experience
  • Willingness to express feelings, ask questions,
    and share ideas
  • Parents commitment to support their teen and to
    provide transportation
  • Able to maintain interest/attention in a 1.5 hour
    meeting
  • Good attendance and grades at school

22
Teen Advisory Board (TAB) Accomplishments
  • All About Me
  • Multiple Fundraisers
  • Care Bags for Patients in Crisis
  • Surgery Information Book
  • Patient Activities
  • Teen Pain Management Brochure

23
Teen Advisory Board (TAB) Accomplishments
  • Reinstatement of Surgery
  • T-Shirts
  • Young Adult Guidelines
  • Pre Surgery Teaching Video
  • Design Hospital Cafeteria and Teen Room

24
Contact Information
  • Linda Taloney, Patient Advocate Manager
    ltaloney_at_cmh.edu 816.234.3119
  • Melissa Pulis, Child Life Manager
  • mtoering_at_cmh.edu 816.234.3757
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