How to Develop a Palliative Care Program

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How to Develop a Palliative Care Program

• Kathleen M. Foley, MD
• European Association of Palliative Care Meeting
• Aachen, Germany
• April 10, 2005

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The Project on Death in America

• The mission of the Project on Death in America is
  to understand and transform the culture and
  experience of death and dying in America through
  funding initiatives in research, scholarship, the
  humanities, and the arts and to foster
  innovations in the provision of care, public
  education, professional education, and public
  policy.

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Professional Education

• Faculty Scholars Program
• Social Work Leadership Development Program
• Nursing Leadership Consortium

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Faculty Scholars Program

• Promotes the visibility and prestige of
  clinicians in end-of-life care.
• Enhances their effectiveness as academic leaders
  and mentors for future generations of health
  professionals.
• To date, PDIA has supported 87 Faculty Scholars,
  representing more than 57 medical schools in the
  United States and Canada.

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Faculty Scholars Program

• Internal Medicine
• Neurology
• Psychiatry
• Intensive Care
• Oncology
• Pediatrics

• Geriatrics
• Family Practice
• Medical Ethics
• Hospitalist
• Medical Education
• Nursing Education
• Psychology

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Social Work Leadership

• Identify outstanding social work faculty
• Support to disseminate existing models of good
  care
• Encourage leadership within institutions
• Promote collaborative models of teaching,
  practice, policy development, and research
• To date, 44 social work leaders have been
  selected.

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Nursing Leadership

• To develop a cadre of expert nursing educators,
• To coordinate national nursing efforts in
  end-of-life care,
• To facilitate the dissemination of a core
  curriculum that provides practicing nurses with
  the basic knowledge and skills needed to
  appropriately care for dying patients.

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Faculty Scholars in the United States Canada
(N 87)
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Medical Nursing School Representation

• Faculty Scholars represent
• 57 medical schools. Top 3
• Harvard Medical School (7)
• University of Washington (4)
• Univ. of Medicine Dentistry NJ (4)
• 4 Nursing schools
• Mount Sinai, NYUMC
• New Hampshire Technical College
• UCSF
• Thomas Jefferson University

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Additional Grant Funding

• As Faculty Scholars, 66 have garnered 351
  additional grants
• Total funding 113,588,653
• Top 5 funding agencies
• Robert Wood Johnson (37)
• NIH (13)
• Greenwall Foundation (11)
• NCI (10)
• Fan Fox Leslie R. Samuels Foundation (8)

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Additional Grant Funding

• Faculty Scholars (n66/87 reporting) have
  garnered 351 additional grants
• Total funding 113,588,653

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Contributions to the literature

• Faculty Scholars (n76/87 reporting) have
  published a total of 1807 publications in 689
  different sources.
• Top 5 journals
• J Palliative Medicine 131
• J Pain Symptom Management 85
• J General Internal Medicine 84
• JAMA 54
• J Clinical Oncology 53

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Contributions to the Literature

• An additional 1807 publications representing 689
  different sources have been generated by 76
  Scholars since their inception in the Program
  (aprox. 24 per scholar).

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Faculty Development

• EPEC
• Harvard Program in Palliative Care Education and
  Practice (1 wk x 2)
• ASCO EOL Teaching syllabus
• Individual Medical School/ Residency Programs
  (EPERC)

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Palliative Care Fellowships

• gt 25 US fellowships
• 1 and 2 year
• Academic and community practice oriented
• VA programinterdisciplinary
• Oncology-- Pall Care Fellowship
• Voluntary Training Standards
• 18 Accredited Fellowship Programs
• Move towards specialty status
• ACGME application 2005
• ABMS application 2006

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Educational Resources

• EPERC www.eperc.mcw.edu
• AAHPM core syllabus
• UNIPACS (AAHPM)
• EPEC
• ASCO EOL Syllabus (29 modules)
• Fast Facts and Concepts

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EPERC End of Life Physician Education Resource
Center

• http//www.eperc.mcw.edu/start.cfm

• Course curricula with goals and objectives,
  teaching formats, and evaluation methods
• Actual topic-specific teaching modules (e.g.,
  pain, giving bad news) intended audience, a
  teaching plan, audiovisual materials, and/or
  evaluation tools for EOL educators to adapt for
  use at their own sites
• EPERC e-newsletter

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Continuing Educational Programs

• EPEC-Education for physicians in end-of-life care
  (www.epec.net)
• ELNEC-Education and learning for nurses in
  end-of-life care (http//www.aacn.nche.edu/elnec/)

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Education for Physicians on End-of-Life Care
(EPEC)http//www.epec.net

• Designed by experts to educate physicians on the
  essential clinical competencies in end of life
  care.
• Combines didactic sessions, videotape
  presentations, interactive discussions, and
  practical exercises.

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Certification in Palliative Medicine

• For physicians
• -over 2000 physicians certified
• For nurses
• -over 10,000 nurses certified

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For more information

• See the PDIA website
• www.soros.org/death