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Brief Introduction to Epidemiology XIV: Critiquing Internet Information

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Title: Brief Introduction to Epidemiology XIV: Critiquing Internet Information


1
Brief Introduction to Epidemiology
XIVCritiquing Internet Information
  • Betty C. Jung RN MPH CHES

2
Learning/Performance Objectives
  • This lecture seeks to provide you with some basic
    principles of how to evaluate the information
    found on the Internet with a critical eye, as
    most of the data and information we use are
    being retrieved from the World Wide Web.
  • It also seeks to provide a rational framework
    with which you can use to evaluate what you find
    on the Internet, so you can determine what would
    be the best sources to base your decisions upon.

3
Introduction
  • Basic definitions
  • Pointers on what to look for when searching for
    information
  • International, National and Non-profit
    Organizational Standards for Health Information
  • Credible Internet sources for Public Health and
    Healthcare Information

4
What is Information?
  • (OMB Circular A-130) Any communication or
    representation of knowledge, such as facts, data,
    or opinions in any medium or form, including
    textual, numerical, graphic, cartographic,
    narrative, or audiovisual forms.
  • Source
  • American Forces Information Service/U.S.
    Department of Defense dodimagery.afis.osd.mil/dodi
    magery/html/definitions.html

5
What is Health Information?
  • Information in any form (oral, written or
    otherwise) that relates to the past, present or
    future physical or mental health of an
    individual. That information could be created or
    received by a health care provider, a health
    plan, a public health authority, an employer, a
    life insurer, a school or university or a health
    care clearinghouse.
  • Source
  • Partners Human Research Committee (PHRC)
    healthcare.partners.org/phsirb/hipaaglos.htm

6
What is Health Literacy?
  • The degree to which individuals have the
    capacity to obtain, process, and understand basic
    health information and services needed to make
    appropriate health decisions.-- HP 2010 Health
    Communication
  • Source
  • HRSA Health Literacy Site
  • http//www.hrsa.gov/quality/healthlit.htm

7
Questions You Should AskWhen Looking for
Information on the Internethttp//www.quick.org.u
k/summaryprint.htm
  • 1. Is it clear who has written the information?
  • 2. Are the aims of the site clear?
  • 3. Does the site achieve its aims?
  • 4. Is the site relevant to me?
  • 5. Can the information be checked?
  • 6. When was the site produced?
  • 7. Is the information biased in any way?
  • 8. Does the site tell you about choices open to
    you?

8
Useful Pointers for Finding Credible Health
Information
  • Evaluating Internet Resources(Childrens
    Hospital Health Center, San Diego)
  • http//www.chsd.org/1327.cfm
  • Medical Library Association Encyclopedic Guide to
    Searching and Finding Health Information on the
    Web
  • http//www-personal.umich.edu/pfa/mlaguide/urlsub
    j/ss1.html

9
International Standards for Health Information on
the Net
  • NHS National Health Technology Assessment Program
    British Government
  • http//www.hta.nhsweb.nhs.uk/
  • Review of Internet Health Information Quality
    Initiatives WHO,2001
  • http//www.jmir.org/2001/4/e28/

10
HON Code of Conduct (HONcode) for medical and
health Web sites http//www.hon.ch/HONcode/Conduct
.html
  • 1. Authority
  • Medically trained and qualified professionals
  • 2. Complementarity
  • Information support, not replace, the
    relationship that exists between a patient/site
    visitor and his/her existing physician 
  • 3. Confidentiality
  • Of data relating to individual patients and
    visitors, including identity, is respected
  • 4. Attribution
  • Clear references to source data. Date when page
    was last modified will be clearly displayed
  • 5. Justifiability
  • Any claims of benefit will be supported by
    appropriate, balanced evidence  
  • 6. Transparency of authorship
  • Provide contact addresses and Webmasters E-mail
    address for further information or support  
  • 7. Transparency of sponsorship.
  • Support for this Web site will be clearly
    identified 
  • 8. Honesty in advertising editorial policy
  • Brief description of the advertising policy,
    differentiation between ad and original material
    created by the institution operating the site 

11
National Standards for Health Information on the
Net
  • Healthy People 2010 Health Communication
    Objective
  • http//www.healthypeople.gov/Document/HTML/volume1
    /11HealthCom.htm
  • HP2010 Information Access Project
  • http//phpartners.org/hp/
  • Health Literacy (HRSA)
  • http//www.hrsa.gov/quality/healthlit.htm
  • National Institutes of Health (NIH)
  • http//ospp.od.nih.gov/infoquality/

12
Healthy People 2010 Health Communication
ObjectiveAttributes of Effective Health
Communication
  • Accuracy
  • Availability
  • Balance
  • Consistence
  • Cultural Competence
  • Evidence based
  • Reach
  • Reliability
  • Repetition
  • Timeliness
  • Understandability

13
Healthy People 2010
  • Healthy People 2010
  • http//www.healthypeople.gov/
  • HP 2010 Initiatives Activities
  • http//www.cdc.gov/nchs/hphome.htm
  • HP 2010 Gateway
  • http//hin.nhlbi.nih.gov/
  • CDC Healthy People 2010 Data
  • http//wonder.cdc.gov/data2010/

14
Related Healthy People 2010
  • Leading Indicator Sources
  • http//www.healthypeople.gov/LHI/EnglishFactSheet.
    htm
  • State Healthy People 2010 Tool Library
  • http//www.phf.org/HPtools/state.htm
  • Tracking Healthy People 2010
  • http//www.healthypeople.gov/document/tableofconte
    nts.htmtracking

15
Public Health Statistics Resources
  • Healthy People 2010 Leading Indicators Data
  • http//www.healthypeople.gov/Document/HTML/uih/uih
    _4.htm
  • National Center for Health Statistics
  • http//www.cdc.gov/nchs/
  • HRSA Data Statistics
  • http//datawarehouse.hrsa.gov/

16
Population Statistics Resources
  • National Center for Health Statistics
  • http//www.cdc.gov/nchs/
  • Racial Ethnic Populations
  • http//www.cdc.gov/omh/Populations/populations.htm
  • U.S. Census
  • http//www.census.gov/
  • State County QuickFacts (U.S. Census)
  • http//quickfacts.census.gov/qfd/

17
Federal Health PromotionResources
  • Federal Health Information Centers
    Clearinghouses
  • http//www.health.gov/nhic/Pubs/clearinghouses.htm
  • Health.gov
  • http//www.health.gov/
  • Health Promotion and Health Education
  • http//phpartners.org/hpro.html
  • Office of Disease Prevention Health Promotion
  • http//odphp.osophs.dhhs.gov/
  • Prevention Communication Resource Database
  • http//www.health.gov/communication/

18
Quality Government Health Information for
Consumers
  • Consumer Patients
  • http//www.ahrq.gov/consumer/
  • MedlinePlus
  • http//medlineplus.gov/
  • Pocket Guide to Good Health for Adults (AHRQ)
  • http//www.ahrq.gov/ppip/adguide/
  • Pocket Guide for Staying Healthy at 50
  • http//www.ahrq.gov/ppip/50plus/index.html
  • Recalls.Gov
  • http//recalls.gov/

19
Useful Pointers for Finding Credible Health
Information
  • Tips for Healthy Surfing Online
  • http//www.ihealthcoalition.org/content/tips.html
  • Health Communication
  • http//phpartners.org/hp/health_comm.html
  • Health Information Online (FDA)
  • http//www.fda.gov/fdac/features/596_info.html
  • Quality of Medical Information on the InterNet
  • http//www.cancerindex.org/clinks18.htm

20
Non-profit Organizational Standards for Health
Information
  • Consumer Webwatch
  • http//www.consumerwebwatch.org/
  • Health on the Net Foundation (HONCode)
  • http//www.hon.ch/HONcode/Conduct.html
  • Ihealthcoalition.org
  • http//www.ihealthcoalition.org/ethics/code-founda
    tions.html
  • Quackwatch.org
  • http//www.quackwatch.org/

21
Non-profit Organizational Standards for Health
Information
  • Evaluation of Information Sources (WWW Virtual
    Library)
  • http//www.vuw.ac.nz/staff/alastair_smith/evaln/ev
    aln.htm
  • Quality of Health Information on the Internet
    (IEEE USA)
  • http//www.ieeeusa.org/policy/POSITIONS/healthnet.
    html
  • Stanford Guidelines for Web Credibility
  • http//credibility.stanford.edu/guidelines.html

22
Health Research Web sites
  • CenterWatch.Com
  • http//www.centerwatch.com/
  • Clinical Trials.Gov
  • http//clinicaltrials.gov/
  • Food Drug Administration (FDA)
  • http//www.fda.gov/
  • Partners HealthCare System
  • http//healthcare.partners.org/phsirb/infoforpubli
    c.htm

23
Health Research Web sites
  • National Institutes of Health
  • http//www.nih.gov/
  • PubMed (National Library of Medicine)
  • http//www.ncbi.nlm.nih.gov/entrez/query.fcgi
  • Reviews of Evidence for Treatments
  • http//www.healthinsite.gov.au/content/internal/pa
    ge.cfm?ObjID00007838-024C-1D2D-81CF83032BFA006D

24
Health Care Standards
  • Clinical Practice Guidelines (AHCPR)
  • http//www.ahcpr.gov/clinic/cpgsix.htm
  • Health Services/Technology Assessment Text
    (HSTAT) NLM
  • http//www.ncbi.nlm.nih.gov/books/bv.fcgi?ridhsta
    t
  • National Guideline Clearinghouse (NCG)
  • http//www.guideline.gov/
  • National Committee for Quality Assurance (NCQA)
  • http//www.ncqa.org/

25
Health Care Standards
  • Measuring Healthcare Quality
  • http//www.ahrq.gov/qual/measurix.htm
  • National Quality Measures Clearinghouse
  • http//www.qualitymeasures.ahrq.gov/
  • Quality Indicators
  • http//www.qualityindicators.ahrq.gov/published.ht
    m
  • Quality Indicators Explained
  • http//www.qualityindicators.ahrq.gov/downloads/iq
    i/interpretative_example_iqi.ppt

26
Non-profit Health Promotion Resources
  • American Public Health Associations Selected
    Internet Resources for Health Education and
    Health Promotion
  • http//www.apha.org/public_health/hphe.htm
  • EpiMonitor.Net
  • http//www.epimonitor.net/EpiSource/index.htm
  • Health Promotion Planning Resources
  • http//www.thcu.ca/infoandresources/planning_resou
    rces.htm
  • Partners in Information Access for the Public
    Health Workforce
  • http//phpartners.org/index.html

27
Finding Cardiovascular Disease Information
  • Cardiovascular Health Partners Web Portal!
  • http//www.heartandstrokepartners.org/
  • CDC Cardiovascular Program
  • http//www.cdc.gov/cvh/
  • Heart Disease Stroke Maps (CDC/CVH)
  • http//www.cdc.gov/cvh/maps/index.htm
  • National Heart, Lung Blood Institute
  • http//www.nhlbi.nih.gov/health/index.htm

28
Finding Connecticut Data
  • Census Demographic Files
  • http//www.ct.gov/ecd/cwp/view.asp?a1106q250616
  • Connecticut State Data Center (SDC) Program (CT
    US Census Data)
  • http//www.opm.state.ct.us/pdpd3/data/SDC.htm
  • Connecticut Data Engine (Business)
  • http//www.ctdataengine.com/
  • Connecticut DPH Publications Statistics
  • http//www.dph.state.ct.us/Publications/publicatio
    ns.htm

29
Finding Connecticut Data
  • Connecticut Cancer Data
  • http//www.cdc.gov/cancer/CancerBurden/ct.htm
  • Connecticut Cancer Incidence Data (DPH)
  • http//www.dph.state.ct.us/OPPE/hptumor.htm
  • HRSA Geospatial Data (Maternal Child Health
    Programs)
  • http//datawarehouse.hrsa.gov/DWOnlineMap/default.
    asp?stateid7aoistateConnecticutaoitypestates
    tep1steptwoyesmsadtstatefipscd09zipcodeh
    hsAll20HHS20Regionsborder

30
Evaluating Your Interventions
  • What Is Evaluation?
  • Evaluation is a systematic, objective process for
    determining the success of a policy or program.
    It addresses questions about whether and to what
    extent the program is achieving its goals and
    objectives.

31
Evaluation Models
  • CIPP Evaluation Model Checklist
  • http//www.wmich.edu/evalctr/checklists/cippcheckl
    ist.htm
  • Evaluation Models
  • http//www.edtech.vt.edu/edtech/id/eval/eval_model
    s.html
  • Evaluation Manual (Kellogg Foundation)
  • http//www.wkkf.org/Pubs/Tools/Evaluation/Pub770.p
    df

32
Evaluation Resources
  • Evaluation Made Easy
  • http//ag.arizona.edu/fcs/cyfernet/cyfar/bulletin2
    pg.htm
  • Evaluation Resources on the Net
  • http//www.bettycjung.net/Evaluation.htm
  • CDC Evaluation Working Group
  • http//www.cdc.gov/eval/resources.htm
  • CDC Heart Disease Stroke Prevention Evaluation
    Framework
  • http//www.cdc.gov/cvh/library/evaluation_framewor
    k/pdfs/evaluation_framework.pdf
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