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Native People for Cancer Control: Overview and Updates

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Title: Native People for Cancer Control: Overview and Updates


1
Native People for Cancer ControlOverview and
Updates
Stay in the circle of life
2
Purpose
  • Native People for Cancer Control is a Community
    Networks Program that aims to reduce cancer
    disparities through community awareness,
    education, research, and support in a region with
    one of the highest proportion of American Indians
    and Alaska Natives in the nation.

3
Goals
  • Cancer is the second most common cause of death
    among American Indians and the leading cause of
    death among Alaska Natives. Cancer screening
    tests, high quality health care, and cancer
    clinical trials are often not available to tribal
    communities. As a result, American Indians and
    Alaska Natives have the poorest survival from
    cancer of all minority groups. Our goals are
  • To increase how much American Indians and Alaska
    Natives know about cancer
  • To reduce the gap between American Indians and
    Alaska Natives and other groups in cancer
    screening, diagnosis, and care
  • To improve the results of cancer treatment in
    American Indians and Alaska Natives
  • To improve working relationship between tribes
    and researchers

4
Organization of Activities
  • Community Core increase cancer education
    activities among urban and rural Native people
  • Training Core build the capacity of tribal
    colleges and universities to become partners in
    research and dissemination efforts to address
    important questions regarding cancer
  • Training Core enhance cancer training
    opportunities for Native researchers
  • Research Core conduct community-based research
    on access to care, health promotion, and disease
    prevention pertaining to cancer
  • Goal Reduce cancer-related health disparities by
    increasing access to, and use of, interventions
    in Native populations, and evaluate effort

5
Who will help achieve these goals?
  • Dedra Buchwald, Principal Investigator
  • John Simmons (Nisqually), Youth and Outreach
    Consultant
  • Donna LaVallie (Turtle Mountain Chippewa),
    Program Faculty
  • Rose James (Lummi), Program Faculty
  • Rosemary Gibbons (White Mountain Apache),
    Investigator
  • Steve Charles (Haida/Tlingit), Research and
    Student Coordinator
  • Debra Sprague, Research and Editing Assistant
  • Andy Bogart, Biostatistian
  • Dakotah Lane (Lummi), Research Assistant
  • Ryan Morigeau (Flathead), Research Assistant
  • Staff, Spirit of Eagles, Cancer Information
    Service

6
Who will help achieve these goals?
  • Cara Towle, Telehealth Implementation Liaison
  • Roy Colven, Project Director
  • HollyAnna Pinkham (Yakama), Washington Outreach
  • Lisa Thomas (Tlingit), Alaska Outreach
  • Rande Gray, Technical Specialist
  • Deborah Friedman, Consultant, Cancer Survivor
    Care
  • Fransing Daisy (Cree), Mental Health Consultant
  • Ron Whitener (Squaxin Island), Legal Consultant
  • Anjana Kundu, Pain Consultant
  • Randy Curtis, End of Life Consultant
  • George Guilmet, Program Evaluator

7
Dedra Buchwald, John Simmons, Donna LaVallie
8
Steve Charles, Debra Sprague, Andy Bogart
9
HollyAnna Pinkham, Rose James
10
Dakotah Lane, Ryan Morigeau
11
Who do we support?
Tribal agencies and communities in
Alaska, Washington, Oregon, Idaho, Montana, Wyomin
g, North Dakota, South Dakota
12
How many tribes and Alaska villages are in our
region?
  • 67 tribes in Washington, Wyoming, Montana, Idaho,
    Oregon, North Dakota and South Dakota
  • 11 tribes and 233 villages in Alaska
  • About 400,000 American Indians and Alaska Natives
    live in our 8 state region
  • The 8 states represent ¼ of the land mass of the
    United States
  • The 8 states are largely rural with several large
    urban areas (e.g., 35,000 American Indians and
    Alaska Natives live in the Puget Sound area)

13
Who do we work with?
  • Tribal Councils
  • Tribal organizations
  • Tribal health clinics
  • Urban Indian Health Care facilities, e.g. Alaska
    Native Medical Center, Seattle Indian Health
    Board
  • Cancer treatment facilities
  • Cancer Information Service
  • Washington State Comprehensive Cancer Control
    Steering Committee

14
Who do we work with?
  • Alaska Native Tribal Health Consortium
  • Alaska Federal Health Care Access Network
  • Black Hills Center for American Indian Health
  • Montana ? Wyoming Tribal Leaders Council
  • Seattle Indian Health Board
  • University of North Dakota School of Medicine
    Center for Rural Health
  • University of South Dakota School of Medicine
  • Northwest Indian College
  • National Cancer Institute

15
SPIPA Comprehensive Cancer Control Program
Advisory Board
16
Organization of Activities
  • Community Core increase cancer education
    activities among urban and rural Native people
  • Training Core build the capacity of tribal
    colleges and universities to become partners in
    research and dissemination efforts to address
    important questions regarding cancer
  • Training Core enhance cancer training
    opportunities for Native researchers
  • Research Core conduct community-based research
    on access to care, health promotion, and disease
    prevention pertaining to cancer
  • Goal Reduce cancer-related health disparities by
    increasing access to, and use of, interventions
    in Native populations, and evaluate effort

17
Native People for Cancer Control Community Core
  • Co-Leaders Deborah Bowen, Ph.D. and Walt Hollow,
    M.D. (Assiniboine/Sioux)
  • Activity 1 Community outreach and dissemination
    of existing programs and materials
  • Activity 2 Technical assistance and program
    development, e.g., cancer educational materials
  • Activity 3 Educate American Indian and Alaska
    Native health professionals

18
Native People for Cancer Control Training Core
  • Co-Leaders Scott Ramsey, M.D. and Jeff
    Henderson, M.D. (Cheyenne River Sioux)
  • Activity 1 Build capacity of tribal colleges and
    universities, e.g., fund pilot projects, summer
    internships
  • Activity 2 Support activities to train
    researchers for non-doctoral level professionals
    and post-doctoral American Indian or Alaska
    Native professionals, e.g., Native Investigator
    Career Development Program

19
Native People for Cancer Control Research Core
  • Co-Leaders Dedra Buchwald, M.D. and Bonnie
    Duran,
  • Ph.D. (Opelousas/Coushatta)
  • Project 1
  • Test a smoking cessation program among American
    Indian youth in 2 urban sites
  • Project 2
  • Assess and improve screening for cervical cancer
    in 2 American Indian communities
  • Describe how often human papilloma virus
    infection occurs and if it is linked to risk
    factors for cervical cancer (e.g., smoking)

20
Native People for Cancer Control Research Core
  • Project 3
  • Determine the factors that might influence a
    persons
  • participation in a cancer clinical trial
  • Compare different numerical and visual ways of
  • presenting information to determine which
    methods
  • best convey information on cancer
  • Project 4
  • Link the Washington SEER with IHS
    records to
  • identify Native persons diagnosed with
    breast,
  • cervical, and colorectal cancer
  • determine the true incidence of these 3
    cancers
  • among American Indians and Alaska
    Natives

21
Native People for Cancer Control Art for Cancer
  • Leader Steve Charles Artists Chholing
  • Taha, Roger Fernandes Ryan Morigeau
  • Purpose is to raise cancer awareness and increase
    cancer prevention activities among Native people
  • The Art for Cancer program has
  • Produced educational posters
  • on the program and specific cancers
  • Published brochures for
  • example, What Are Clinical
  • Trials?
  • Designed our new logo

Stay in the circle of life
22
Art for Cancer PostersContact us at
www.uwccer.org for more information
23
(No Transcript)
24
Native People for Cancer Control March 2006
Conference
  • What happened after the last conference?
  • Established new collaborations
  • Had 5 new grants funded
  • Funded 10 Community Grants
  • Enhanced existing relationships
  • Developed a model for short term training of
    junior investigators
  • Gained knowledge and heard about tribal needs
  • And reaffirmed..

25
The Importance of Culture
Tom Torlino (Navajo) as he appeared upon arrival
to the Carlisle Indian School, October 21, 1882
Tom Torlino (Navajo) 3 years later
Photos from http//home.epix.net/landis/main.htm
l
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