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ACTIVITIES OF PATIENTS LEADERS NETWORK IN AFRICAN REGION

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African Infertility Alliance (AIA) patients' leaders' ... 32 Windsor Crescent Kololo, off Babiiha Avenue, next Athina Club. P.O. Box 28095 Kampala -Uganda ... – PowerPoint PPT presentation

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Title: ACTIVITIES OF PATIENTS LEADERS NETWORK IN AFRICAN REGION


1
9th International iCSi Conference Budapest 2008
ACTIVITIES OF PATIENTS LEADERS NETWORK IN
AFRICAN REGION
AIA REPORT 2007 - 2008
2
African Infertility Alliance
  • African Infertility Alliance (AIA) patients
    leaders community has kept close relations
    through the e-newsletter. It started
    in 2007 consisting of quarterly news from Uganda,
    Kenya, Zimbabwe, Israel, South Africa and
    Nigeria. Issues I to IV came out on 12th
    January, 12th April, 12th August and 12th
    December 2007.
  • The news can also be found in the International
    Consumer Support for Infertility www.icsi.ws /
    Africa Region
  • Members have an interactive communication network
    through emails and telephone.

3
Contd
  • AIA activities have rolled to other countries in
    Africa. The countries that have expressed
    interest in being part of AIA include Tanzania,
    Rwanda, Burundi, (East and Central Africa).
  • AIA has started communications and learning more
    about infertility in those countries. Guidelines
    on how to start patients organizations have
    started.

4
Participation in the online survey
  • AIA member countries participated in the survey
    for patients voices. The online survey was
    conducted by Joyce Fertility Support Centre
    Uganda. Results of the survey were presented in
    the Arusha Expert Meeting for Low Cost
    Infertility treatment for Developing Countries.

5
Patients organizations that participated in the
online survey
  • CHEN Fertility Association Israel Mrs. Ofra
    Balaban
  • Hope Fertility Support Centre Kenya Mrs. Sarah
    Muthange Ndwiga
  • Fertility Network Zimbabwe Mrs. Evelyn Madziba
  • Joyce Fertility Support Centre Uganda Mrs. Rita
    Sembuya
  • Concebir Argentina - Ms. Estella Chardon and Ms.
    Maria Isabel de Rolando

6
2008 Projects for AIA
  • 2008, AIA would like to call for more members
    from the region to come on board.
  • The alliance is strongly involved in the Low Cost
    Infertility treatment. This calls for all
    developing countries to have patients
    representation in the project. For that matter,
    we encourage every representative of developing
    countries to register their interest and sign up
    for participation in the low cost infertility
    treatment for developing countries.
  • It is suggested by some members that a regional
    meeting take place once a year in Africa.

7
Point of information
  • Joyce Fertility Support Centre website is
    undergoing a refurbishment currently it is not
    online until end of March 2008. All information
    about AIA will be found in iCSi regional
    alliances.

8
Acknowledgment
  • All members for their continued support in
    sharing and guiding on activities in AIA.
  • iCSi for its continued support in the education,
    awareness and trainings where patient leaders are
    invited in the iCSi symposiums. These activities
    facilitate skills and enabling environments in
    the work of the subgroup.

9
Mrs. Rita Sembuya N, Chair African Infertility
Alliance 32 Windsor Crescent Kololo, off Babiiha
Avenue, next Athina Club P.O. Box 28095 Kampala
-Uganda Tel 256 (414) 345 366 Cell phone 256
(774) 100, 873 Email joycefertility_at_hotmail.com
sembuyar_at_yahoo.com
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