How to Use Desferal A slideshow for patients and families

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How to Use Desferal A slideshow for patients
and families

• Produced by the staff of the Georgia
  Comprehensive Sickle Cell CenterAtlanta, Georgia
• First edition, July 2000

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• Starring
• Annie Chen
• Ms. Chiu Hung Lo
• Donta Washington
• Ms. Tiawanna Washington
• and
• Mr. Desferal
• Photography, text, and production
• Dr. Beatrice Gee, Morehouse School of Medicine
• Dr. Lewis Hsu, Emory University
• Mr. Allan Platt, Georgia Comp. Sickle Cell Center

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Welcome

• Im Donta and this is Annie.

Were going to show you how to use Desferal
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Im Mister Desferal

• Mr. Desferal was developed by Ms. Susan Kurth,
  PNP, Childrens Hospital, Boston

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Getting Ready

• We always start by washing our hands with soap
  and water

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Getting Ready

• Then, we dry our hands

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Get out the equipment

• Put all of your supplies in a clean area

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Find a spot

• Pick where on your body you will give your
  infusion

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Apply EMLA

• If you want, put EMLA on your skin 30 minutes
  before youre ready to start. This makes your
  skin numb so the needle wont hurt too much.

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Clean the skin

• Use alcohol and iodine swabs to clean the skin.

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Prepare the pump
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Clean your skin - unless you want a skin infection
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And now, the part that looks really hard
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Place the needle

• There are different kinds of needles

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Get your needle ready, and put it in.
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Put on the dressing

• Secure and cover the needle with a dressing.
• Many people use clear Tegaderm.

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Pack the pump

• Put the pump in its carrying case.

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When your pump is packed in the bag, you can
sleep or walk around with it
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Keep track

• We use a calendar to keep track of when we use
  our Desferal. We try to use it at least 5 days a
  week.

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Sometimes you get a skin reaction

• It usually goes away
• Scars may come if you use the same spot on the
  skin for many days in a row,
• or if you get a skin infection.

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Port-A-Caths are sometimes used for transfusions.
Some people also use the Port-A-Cath for
Desferal
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Pop Quiz
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True or False Messiness will help you prepare
your Desferal.
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True or False Once you find a good spot for
Desferal, then you should use the same spot every
day for the next 3 months.
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Many places on your body are good spots for
Desferal

• Use a different spot each day

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Some parts of your skin are not good spots for
Desferal
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Which needle size do you want to use for your
Desferal?
(These pictures are on the same scale)
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The electric pumps batteries belong A) in the
pump. ORB) on the table.
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Can you see the ON switch?
No? well... Its pretty small! Be sure the
switch is pushed to ON and the light comes on,
too
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Lets review

• What are the steps of using Desferal?
• Choose the right answers on the next slides

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What do you do first?
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Is this right?
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Which is good for numbing the skin?

• A) EMLA cream
• B) toothpaste
• C) typing correction fluid

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How do you clean the skin?

• A) paper towels

B) alcohol and iodine
C) household cleaner
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You can do it, too!

• We learned how to use Desferal. So can you.
• The medical team is here to help.
• You can also learn by practicing with a Desferal
  Doll.
• Good luck!

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SPECIAL THANKS to the 4th grade class from
Vacation Bible School, Atlanta Chinese Christian
Church, for making Desferal Dolls for this
workeshop!June 2000