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Launch of the Self Management Strategy for Scotland

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A journey to the self management strategy for Scotland ... Awake to find that it was vanity; But the dreamers of the day are. Dangerous men, ... – PowerPoint PPT presentation

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Title: Launch of the Self Management Strategy for Scotland


1
Launch of the Self Management Strategy for
Scotland
2
A journey to the self management strategy for
Scotland Susan Douglas-Scott, Chief Executive
Epilepsy Scotland and non Executive Director
LTCAS Angela Donaldson, Director Arthritis Care
Scotland and non Executive Director LTCAS
3
The journey begins diagnosis please
4
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The long and winding road


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Footprints in the sand
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Self Management Strategy for Scotland
  • LTCAS asked by Scottish Government to produce
    self management strategy
  • Short term task group took forward, consulted
    LTCAS network and final strategy submitted to CMO
    long term conditions steering group Jan 2008

16
Before that..
  • Gaun Yersel conference November 2006
  • Living Well events
  • Sub group of the board of LTCAS
  • LTCAS members and other stakeholders
  • Circulating ideas, feedback, writing and editing

17
Key points emerged about self management
  • Person-centred - individual in driving seat
  • Empowerment - person has control over their own
    life, decision, goals and condition management
  • Not about going it alone
  • Not an alternative to NHS services/treatments

Self management is not to replace service
provision, but in addition to your
care. Participant at Living Well event
18
key stages where people need support emerged
  • Diagnosis
  • Living for today
  • Progression
  • Transitions
  • End of life

19
What people want from self management
  • Far better quality of life
  • Returns peoples sense of control
  • Increases confidence and self esteem
  • Better management of condition (reduced symptoms,
    complications, pain, fatigue and depression)
  • More effective use of NHS services including
    concordance with medicines
  • Reduction in GP visits
  • Improvements to other areas of life such as
    family, work, social life

20
What it would look like if the strategy works
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What does self management mean?
23
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24
Positive feedback what a relief!
The draft strategy feels like someones actually
been inside my head and reflects exactly what
Ive been through at different times and gives
real practical advice and guidance of the kind of
staffing and support required to make life easier
for people living with long term
conditions. Respondent to consultation on draft
Self Management Strategy
25
How this feels for us
  • Coming together of years of
  • Thinking
  • Understanding
  • Talking (moaning!)
  • Campaigning
  • Its personal as well as professional and
    another milestone on the journey

26
Where to find us
  • www.ltcas.org.uk
  • Princes House (S5)
  • 5 Shandwick Place
  • Edinburgh EH2 4RG
  • 0845 478 6329
  • And from later this
  • month
  • Venlaw Building
  • 349 Bath Street
  • Glasgow G2 4AA

27
Launch of the Self Management Strategy for
Scotland
28
  • Table discussions - moving forward
  • In implementing the strategy what are
  • The risks
  • Your hopes
  • Your vision for the future

29
What next? Audrey Birt Chair of LTCAS
30
LTCAS Vision
A Scotland where people with long term conditions
enjoy, not endure, full and positive lives, free
from discrimination and supported by access to
high quality services, information and support.
31
About LTCAS
  • Alliance of voluntary organisations
  • Around 60 members wider network of 200
  • Launched May 2006 funded by Scottish Government
  • Give independent voice to common issues affecting
    people with long term conditions - main focus is
    policy and campaigning and supporting self
    management
  • Invited to develop the strategy for self
    management in Scotland
  • People not patients

32
Self management supports self efficacy and
empowerment
  • Our definition of non-compliance is 2 people
    working toward different goals. Patients often
    become frustrated and dissatisfied if they feel
    that they are being judged and blamed for their
    inability or unwillingness to achieve medical
    goals, or if the physician does not consider
    their goals to be important. Once patients are
    viewed as collaborators who establish their own
    goals, the whole concept of compliance becomes
    irrelevant. When patients work toward their own
    goals, their motivation is intrinsic. Because
    true and lasting motivation comes from within,
    patients are able to make and sustain changes in
    their behaviour using this patient-centred
    approach.
  • Bob Anderson et al

33
National Policy - current activities in long term
conditions
  • Chief Medical Officer (CMO) Long Term
    Conditions Steering Group
  • LTC Strategy / action plan
  • Living Well with Long Term Conditions
  • events/report
  • Strategy for self management
  • CHP Long Term Conditions Toolkit
  • Improvement Programme / Collaborative
  • Self Management Secondee

34
  • What needs to happen to enable the implementation
    of the strategy?
  • Embed a culture of the person being the leading
    partner in their own health and well-being
  • Establish tools to make it easy to do the right
    thing

35
Self Management Strategy for Scotland
Key recommendations
36
Make sure services work together
GPs also need training in the use of the support
network, e.g. pharmacists, voluntary sector,
specialist services what is available locally
and nationally.
37
LTC voluntary sector - main roles
  • Service provision
  • Funding for services
  • Provision of support (info, advice, support etc)
  • Research
  • Policy campaigning
  • Training practice development

38
Benefits of joining LTCAS
  • Information bulletins
  • Access to large network and support to share
    information
  • Opportunities to be involved in national policiy
    making
  • Link to your website from LTCAS site
  • Be part of a voice for the 2 million people who
    live with long term conditions in Scotland

39
National self management steering group for long
Term Conditions
  • To consider and advise on all matters related to
    self-management in long term conditions in
    Scotland
  • To provide support and advice to component
    projects agreed by the the SMSG to support the
    following
  • Embedding culture change
  • Agreeing principles of Self Management Agreeing
    scope and content of personal care plan and
    electronic health record
  • Improving communication skills of staff and
    people with long term conditions
  • End of life care planning
  • Reference group for National information and
    support service
  • Reference group for quality standard setting
  • Reference group for research in self management

40
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41
We need to continue to involve people and
communicate developments
42
Questions move people along their journey
through life. Answers stop the process of
searching.
43
Dreamers of the day?
All men dreambut not equally. Those who dream by
night in the dusty recesses of their minds Awake
to find that it was vanity But the dreamers of
the day are Dangerous men, That they may act
their dreams with Open eyes to make it
possible TE Lawrence
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