Title: Local Implementation of Cancer Control Efforts in Essex County
1Local Implementation of Cancer Control Efforts in
Essex County
- Livingston League of Women Voters
- Livingston Senior/Community Center
- Wednesday, February 15, 2006
2Stanley H. Weiss, MD ProfessorUMDNJ-New Jersey
Medical School and UMDNJ-School of Public Health
Azadeh Tasslimi Punam Parikh, MPH Essex County
Cancer Coalition Co-Coordinators Tel
973-972-4623 Email tassliaz_at_umdnj.edu,
parikhp1_at_umdnj.edu
3Overview
- 1) Background and Identifying Needs
- 2) Implementation of the New Jersey Comprehensive
Cancer Control Plan - 3) Capacity and Needs Assessment
- 4) Local Implementation in Essex County
- 5) Questions
4Background
- Executive Order 114
- OCCP and the Governors Task Force
- established
1st New Jersey Comprehensive Cancer Control
Plan released
1st Status Report to the Governor
submitted (required biennially)
5NJ-CCCP Organizational Structure
6Background
- Cancer ranked as the top health issue facing NJ
residents in a State Health Issues Opinion
Survey (1999). - Yet no comprehensive capacity and needs
assessment had ever been conducted in NJ - No inventory of cancer-related resources
available on a statewide basis
7Background
- Began with 350 volunteers from various
disciplines - Currently over 550 volunteers
- These volunteers are stakeholders representing
clinicians, public health officials, survivors
and their families, community-based
organizations, advocates, administrators,
insurers, researchers
8Governors Task Force Evaluation Committee
- Serves to provide scientific oversight and
expertise - Oversaw Cancer Capacity and Needs Assessment in
all 21 counties - Submitted the first biennial Status Report to the
Governor - Reviewed status of cancer burden and cancer
control efforts - Proposed data-driven recommendations
9Identifying Needs
- 1) Data and Data Systems
- Baseline capacity and needs assessment
- To understand cancer burden and disparities in
each county and statewide - To compare data from one county to each other and
to the state as a whole - To understand current cancer-related services,
resources, and gaps in New Jersey
10Identifying Needs
- 2) Involve partners who have relevant expertise
- Data and scientific expertise
- State Cancer Registry
- State BRFSS Epidemiologist-Coordinator
- NCIs Regional Cancer Information Service
- Public health, epidemiology, and statistical
experts - Industry and academia
- Workgroups and their Chairs
- Health services and planning
- NJCEED Program
- Cultural competency experts
- Local health planners
11Implementation of NJ-CCCP
- Multiple groups involved
- Ten Workgroups
- Local NJCEED programs and county cancer
coalitions - Each group identifies areas of focus and
strategies to address - Synergy among Workgroups and local cancer
coalitions and other organizations encouraged
12Capacity and Needs Assessment (C/NA)
- Baseline Capacity and Needs Assessment (C/NA) in
each county was one of the first implementation
steps of the NJ-CCCP - Major components required for all reports
- Demographics and local infrastructure (e.g.,
transportation) - Resources (e.g., health care facilities, schools,
community-based organizations, etc.) - Cancer statistics
- Recommendations that integrate the first three
components
13Capacity and Needs Assessment (C/NA)
- Data Analyzed
- Demographics and health status indicators
- Cancer incidence and stage at diagnosis
- Cancer mortality
- Healthy New Jersey 2010 objectives
- Staging of cancer
- Prevalence
- Estimates of medically underserved populations
14Capacity Needs Assessment
- Local health planners - County Evaluators (CEs)
- Already involved in local community
- Experience with health services and planning
- Responsible for conducting the C/NA and
formulating recommendations for action for
implementation at the county and state level
15CANCER CONTROL IN ESSEX COUNTY
16Essex County Cancer Coalition (ECCC) Priorities
- Findings from the C/NA serve as the empirical
basis for prioritizing local cancer control
efforts - County demographic profile was created
- Cancer issues not historically recognized as
priorities in Essex emerged from the C/NA process
17Composition of Essex County, 2000(source U.S.
Census 2000)
- 56 Minority population in Essex vs. only 27 in
New Jersey - 1/3 of States total Black population lives in
Essex
- Substantial Hispanic/Latino population - 16 of
Essex vs.13 of NJ - Other special populations (race, ethnicity, or
language) - exceeding 3 of county include
- Asians (29,429)
- French- /French-Creole-speaking (24,874 incl.
Haitians) - Portuguese (23,744)
- Spanish-speaking, comprise 1/2 of
linguistically isolated households
18C/NA Findings Essex County
- Among WOMEN
- Rates in Essex were over 10 higher than NJ for
- Breast ca mortality
- Cervical ca incidence
- Cervical ca mortality
- Oral ca mortality
- Among MEN
- Rates in Essex were over 10 higher than NJ for
- Oral ca incidence
- Oral ca mortality
- Prostate ca incidence
- Prostate ca mortality
19C/NA Findings Essex County
- Essex County had the highest cancer
- mortality rates of any county in NJ for
- Cervical
- Oral
- Prostate
- Oral and prostate cancers emerged as new
priorities - Cervical cancer screening treatment remains a
priority, as it is preventable and highly
treatable. High cervical cancer mortality rates
indicate a need for increased education and
detection.
20Local ImplementationEssex County
- Essex County Cancer Coalition (ECCC)One of 21
county cancer coalitions in NJ - GOALS
- Implement the NJ Comprehensive Cancer Control
Plan (NJ-CCCP) (www.state.nj.us/health/ccp/ccc_pla
n.htm) - Prioritize cancer control efforts at the local
level
21Background
- Essex County Cancer Coalition
- Addresses all 7 cancers the NJ-CCCP identified as
priorities - Breast, cervical, colorectal, lung, melanoma,
oral prostate - County-wide focus, but dichotomous issues
- 4 contiguous inner-city municipalities with high
proportions of medically underserved - Newark, Orange, East Orange, Irvington
- Suburban areas with significant elderly population
22Inner-City
- Cancers of Focus
- Cervical
- Prostate
- Oral
- Disparities among Racial Ethnic Minorities
- Access to care, lack of insurance, language
barriers - Low Clinical Trial Participation - Views on
medical research
23Suburban
- Cancers of focus
- Lung
- Colorectal
- Breast
- Prostate
- Under-screened for many cancers relative to risk
- Breast Cancer - Mammograms Medicare coverage
- Cervical Cancer - Pap Tests
- Low Clinical Trial Participation - Lack of
available clinical trial protocols (toxicity,
comorbidities)
24ECCC Organizational Structure
25Mission Statement
- Increase cancer awareness reduce its impact on
Essex residents through improved screening,
access to treatment follow-up - Promote awareness of and participation in cancer
clinical trials - Support investigations that seek to find the
causes of cancers, improve care, reduce health
disparities, or increase access - Increase collaboration communication among all
stakeholders to maximize utilization/identificatio
n of resources - Examine and prioritize an expansion of cancer
control efforts county-wide
26ECCC is implementing the following NJ-CCCP Goals
- Promote collaboration with traditional and
non-traditional partners to improve communication
about access and resources for cancer education,
detection, and prevention services, including
research studies. NJ-CCCP strategy AC-2.1.6 - Disseminate information on cancer control
efforts and services throughout Essex County.
NJ-CCCP strategy AC-2.1.7 - Educate the public regarding the purpose and
importance of participating in clinical trials
for cancer, with special emphasis on addressing
the concerns of minority populations. NJ-CCCP
Objective AC-4.1.7 (other cancer-related
BR-2.2.1, BR-5.1,CO-3.1). - Identify strategies to increase cancer service
access and resources for all populations through
public education. - NJ-CCCP Objective AC-4.1
27Diverse Membership
- Members include
- Cancer Survivors
- Healthcare Providers
- Educators
- Outreach Workers
- Cancer Advocates
- Public Health Workers Researchers
- People Personally Affected by Cancer
- Organizations represented
- Community-based organizations
- County Local health departments
- National Local Cancer Organizations
- Health Centers, Hospitals, Clinics
- Faith-based Organizations
- Corporations
- Academia
- Foundations
28For Example
- The Coalition is partnering with the following
organizations to address the three cancers that
were identified as priorities in Essex County
through the C/NA - The Prostate Net
- Oral Cancer Consortium
- Essex Communities Against Tobacco (CAT)
Coalition - Essex Cancer Education Early Detection (CEED)
Program
29Communication Methods
- Quarterly ECCC Meetings
- Email list-serve (free using Yahoo!Groups) for
- Entire Coalition
- Leadership Council and Each Committee
- Monthly Community Health Calendar that focuses on
cancer - Coalition Website www.umdnj.edu/EssCaWeb
30Cancer Services Resources
- Many Coalition members work for organizations
that serve as resources for cancer education,
screening/early detection, and support services - Coalition promotes services provided by members
and non-members throughout Essex County
31American Cancer Society (ACS)
- Web Site www.cancer.org
- Type in zip code to find local resources and
events - Local Office Metro NJ Region-
- Address 767 Northfield Ave, West Orange 07052
- Tel 973-736-7770
- National Call center 1-800-ACS-2345
- Patients and others can obtain referrals to
local cancer resources and to a local patient
and family services director/coordinator who may
be able to help - Broad range of cancer education materials
available
32NJ Cancer Education Early Detection (CEED)
Programswww.state.nj.us/health/cancer/njceed/
- The NJCEED Program offers funding to all 21
counties for comprehensive breast, cervical,
prostate colorectal cancer education, outreach
screening. - There are 2 CEED sites in Essex
33Essex CEED Sites
- Conduct education/outreach and screenings at
churches, - health departments community centers
- UMDNJ - S.A.V.E. Women Men of Essex County
CEED Program - For more information contact
- Ms. Catherine Marcial, SAVE Women Men Project
Coord. - Tel (973) 972-0308, email marciacp_at_umdnj.edu
- St. Michaels Medical Center-"In The Pink" CEED
Program - For more information contact
- Ms. Aretha Hill-Forte, "In the Pink" Project
Coordinator - Tel (973) 877-2989, email ahillforte_at_cathedralhe
alth.org
34Cancer Care www.cancercare.org
- Trained oncology
- social workers provide
- free counseling
- 24-hr online support groups,
- face-to-face,
- telephone
- financial assistance
- National non-profit organization providing free
professional support services to - people living with cancer,
- caregivers,
- children loved ones
- the bereaved
- Telephone Education Workshops
- Expert-led programs on a variety of
cancer-related topics - More than 50 Workshops per year
- Participants can listen to and ask questions of
cancer experts - To register call 1-800-813-HOPE or at
www.cancercare.org/education.html
For more information, please contact Kathy
Nugent, LCSW, Director of Social Services Tel
201-301-6809, Email knugent_at_cancercare.org
35NJ Cancer Clinical Trials Connectwww.njctc.org
- Innovative electronic tool to match patients to
cancer clinical trials statewide - Patients create a confidential medical profile
online - Informational resource to educate people about
clinical trials, provides links to other
resources - Website available in Spanish
- Toll-free information line 866-788-3929, Monday
through Friday, 9 am-5 pm - Supported by CINJ, RWJ Medical School, NJ-DHSS
- For more information, contact
- Susan Goodin, PharmD
- Tel 732-235-6783, Email goodin_at_umdnj.edu
36The Prostate Net www.prostate-online.org
- National non-profit organization which aims to
increase awareness of prostate cancer especially
among minority men in medically underserved areas - Barbershop Initiative
- National program to increase prostate cancer
awareness among minority men by training barbers
to deliver health messages and involving local
medical centers to provide education coupled with
free prostate cancer screenings treatment. - Cancer Education Literature
37Oral Cancer Consortium www.oral-cancer.org
- Comprised of 26 metropolitan healthcare
institutions and professional societies in NY, NJ
PA. - Recognize that oral cancer is an under-
publicized issue and aim to raise awareness the
importance of prevention and early detection. - Sponsoring Oral Cancer Screening Day
- (April 20, 2006)
- For more information about where to receive a
free oral cancer screening, call the Oral Cancer
Screening Information Line at 1-877-263-3401.
38Dental Clinics near Essex that Provide
Reduced-Cost Oral Cancer Screenings
- UMDNJ-New Jersey Dental School
- Newark Beth Israel Medical Center
- Newark Community Health Centers
- Mountainside Hospital
- Accept Medicaid, charity care, and sliding
- scale fees
39The Essex Communities Against Tobacco (CAT)
Coalition
- Part of a statewide group of anti-tobacco,
community-based coalitions that promote
tobacco-free environments. - Supports tobacco prevention education programs
and participates in anti-tobacco advocacy
efforts/activities - Advocate for passage of Clean Indoor Air Bill
in NJ - Tobacco strongly linked with lung, oral and
cervical cancers - For more information contact
- Ms. Michele Grippaldi, Essex CAT Coalition
Coordinator - Tel 973-571-2324, EssexCountyCAT_at_yahoo.com
40Sisters Network www.sistersnetworkinc.org
- Addresses the breast health needs of African
American women, through affiliate chapters
partnerships with existing service providers - Chapters are organized by breast cancer survivors
committed to establishing community breast health
services - Successful community outreach programs
- "The Gift for Life Block Walk"
- The Pink Ribbon Awareness Campaign
- STOP THE SILENCE Changing the Face of Early
Breast Health Intervention - Local Chapter Sisters Network, Newark
- For more information contact
- Ms. Charlotte Munnerlyn
- Tel 973 926-5535, munnemann_at_aol.com
41Current ECCC Activities
- Cancer Prevention Early Detection Health Fair
- April 20, 2006 - In conjunction with Oral Cancer Screening Day at
New Jersey Dental School - Health fair was proposed by Coalition members
- Participants include
- Essex County Cancer Coalition
- CancerCare
- The Prostate Net
- Essex CEED
- Sisters Network
- Essex CAT Coalition
42Current ECCC Activities (cont.)
- Letters to the Editor to be published in local
newspapers in Essex County - Intent is to highlight local cancer issues in
conjunction with national health observances - Cancer education for Essex firefighters
- Coordinators will give an overview of cancer
issues at March meeting of fire chiefs
43Current ECCC Activities (cont.)
- Creator of NJ Cancer Trials Connect educated
Coalition members - Member who educates the community about clinical
trials though his personal experiences - Coalition has helped to initiate a Working Group
to - Further understand barriers to participation in
cancer clinical trials - Formulate effective educational approaches
- Identify appropriate funding opportunities
44How Can You and/or Your Organization Contribute
to Cancer Control Efforts in Essex County?
- We strongly encourage YOUR participation on the
Essex County Cancer Coalition to - Educate yourself about the cancer burden in Essex
County and the cancer issues affecting the
communities you work with - Expand awareness and promote the importance of
cancer prevention early detection - Help reduce the number of cancer deaths and
alleviate the overall cancer burden in the County
45SUPPLEMENTAL SLIDES
46General Cancer Risk Factors
- Risk factors you cannot change
- Gender
- (Males Oral)
- (Females Breast)
- Age
- Genetics
- Family History
- Personal history
- Race/Ethnicity
- (White Females Breast)
- (Black Males Prostate, Oral)
- Socioeconomic Status
- (Cervical)
- Lifestyle choices and
- behaviors you can change
- Smoking
- Alcohol (1 drink per day)
- Healthy Diet
- Infectious Agents (HPV, HIV)
- Exposure to UV Light
- Oral Contraceptive Use
- Protective factors
- Early Detection
- Breastfeeding
- Low-fat diet
- Exercise
- Safe Sex Practices
Sources American Cancer Society National
Cancer Institute
47Screening Guidelines
Other tests commonly used to detect colorectal
cancer are fecal occult blood test (FOBT) and
flexible sigmoidoscopy.
48Insurance Coverage Overview for Common Cancer
Screenings
49Key Health and Economic Indicators (source U.S.
Census 2000)