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Local Implementation of Cancer Control Efforts in Essex County

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Breast, cervical, colorectal, lung, melanoma, oral & prostate ... Examine and prioritize an expansion of cancer control efforts county-wide. Mission Statement ... – PowerPoint PPT presentation

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Title: Local Implementation of Cancer Control Efforts in Essex County


1
Local Implementation of Cancer Control Efforts in
Essex County
  • Livingston League of Women Voters
  • Livingston Senior/Community Center
  • Wednesday, February 15, 2006

2
Stanley H. Weiss, MD ProfessorUMDNJ-New Jersey
Medical School and UMDNJ-School of Public Health
Azadeh Tasslimi Punam Parikh, MPH Essex County
Cancer Coalition Co-Coordinators Tel
973-972-4623 Email tassliaz_at_umdnj.edu,
parikhp1_at_umdnj.edu
3
Overview
  • 1) Background and Identifying Needs
  • 2) Implementation of the New Jersey Comprehensive
    Cancer Control Plan
  • 3) Capacity and Needs Assessment
  • 4) Local Implementation in Essex County
  • 5) Questions

4
Background
  • Executive Order 114
  • OCCP and the Governors Task Force
  • established

1st New Jersey Comprehensive Cancer Control
Plan released
1st Status Report to the Governor
submitted (required biennially)
5
NJ-CCCP Organizational Structure
6
Background
  • Cancer ranked as the top health issue facing NJ
    residents in a State Health Issues Opinion
    Survey (1999).
  • Yet no comprehensive capacity and needs
    assessment had ever been conducted in NJ
  • No inventory of cancer-related resources
    available on a statewide basis

7
Background
  • Began with 350 volunteers from various
    disciplines
  • Currently over 550 volunteers
  • These volunteers are stakeholders representing
    clinicians, public health officials, survivors
    and their families, community-based
    organizations, advocates, administrators,
    insurers, researchers

8
Governors Task Force Evaluation Committee
  • Serves to provide scientific oversight and
    expertise
  • Oversaw Cancer Capacity and Needs Assessment in
    all 21 counties
  • Submitted the first biennial Status Report to the
    Governor
  • Reviewed status of cancer burden and cancer
    control efforts
  • Proposed data-driven recommendations

9
Identifying Needs
  • 1) Data and Data Systems
  • Baseline capacity and needs assessment
  • To understand cancer burden and disparities in
    each county and statewide
  • To compare data from one county to each other and
    to the state as a whole
  • To understand current cancer-related services,
    resources, and gaps in New Jersey

10
Identifying Needs
  • 2) Involve partners who have relevant expertise
  • Data and scientific expertise
  • State Cancer Registry
  • State BRFSS Epidemiologist-Coordinator
  • NCIs Regional Cancer Information Service
  • Public health, epidemiology, and statistical
    experts
  • Industry and academia
  • Workgroups and their Chairs
  • Health services and planning
  • NJCEED Program
  • Cultural competency experts
  • Local health planners

11
Implementation of NJ-CCCP
  • Multiple groups involved
  • Ten Workgroups
  • Local NJCEED programs and county cancer
    coalitions
  • Each group identifies areas of focus and
    strategies to address
  • Synergy among Workgroups and local cancer
    coalitions and other organizations encouraged

12
Capacity and Needs Assessment (C/NA)
  • Baseline Capacity and Needs Assessment (C/NA) in
    each county was one of the first implementation
    steps of the NJ-CCCP
  • Major components required for all reports
  • Demographics and local infrastructure (e.g.,
    transportation)
  • Resources (e.g., health care facilities, schools,
    community-based organizations, etc.)
  • Cancer statistics
  • Recommendations that integrate the first three
    components

13
Capacity and Needs Assessment (C/NA)
  • Data Analyzed
  • Demographics and health status indicators
  • Cancer incidence and stage at diagnosis
  • Cancer mortality
  • Healthy New Jersey 2010 objectives
  • Staging of cancer
  • Prevalence
  • Estimates of medically underserved populations

14
Capacity Needs Assessment
  • Local health planners - County Evaluators (CEs)
  • Already involved in local community
  • Experience with health services and planning
  • Responsible for conducting the C/NA and
    formulating recommendations for action for
    implementation at the county and state level

15
CANCER CONTROL IN ESSEX COUNTY
16
Essex County Cancer Coalition (ECCC) Priorities
  • Findings from the C/NA serve as the empirical
    basis for prioritizing local cancer control
    efforts
  • County demographic profile was created
  • Cancer issues not historically recognized as
    priorities in Essex emerged from the C/NA process

17
Composition of Essex County, 2000(source U.S.
Census 2000)
  • 56 Minority population in Essex vs. only 27 in
    New Jersey
  • 1/3 of States total Black population lives in
    Essex
  • Substantial Hispanic/Latino population - 16 of
    Essex vs.13 of NJ
  • Other special populations (race, ethnicity, or
    language)
  • exceeding 3 of county include
  • Asians (29,429)
  • French- /French-Creole-speaking (24,874 incl.
    Haitians)
  • Portuguese (23,744)
  • Spanish-speaking, comprise 1/2 of
    linguistically isolated households

18
C/NA Findings Essex County
  • Among WOMEN
  • Rates in Essex were over 10 higher than NJ for
  • Breast ca mortality
  • Cervical ca incidence
  • Cervical ca mortality
  • Oral ca mortality
  • Among MEN
  • Rates in Essex were over 10 higher than NJ for
  • Oral ca incidence
  • Oral ca mortality
  • Prostate ca incidence
  • Prostate ca mortality

19
C/NA Findings Essex County
  • Essex County had the highest cancer
  • mortality rates of any county in NJ for
  • Cervical
  • Oral
  • Prostate
  • Oral and prostate cancers emerged as new
    priorities
  • Cervical cancer screening treatment remains a
    priority, as it is preventable and highly
    treatable. High cervical cancer mortality rates
    indicate a need for increased education and
    detection.

20
Local ImplementationEssex County
  • Essex County Cancer Coalition (ECCC)One of 21
    county cancer coalitions in NJ
  • GOALS
  • Implement the NJ Comprehensive Cancer Control
    Plan (NJ-CCCP) (www.state.nj.us/health/ccp/ccc_pla
    n.htm)
  • Prioritize cancer control efforts at the local
    level

21
Background
  • Essex County Cancer Coalition
  • Addresses all 7 cancers the NJ-CCCP identified as
    priorities
  • Breast, cervical, colorectal, lung, melanoma,
    oral prostate
  • County-wide focus, but dichotomous issues
  • 4 contiguous inner-city municipalities with high
    proportions of medically underserved
  • Newark, Orange, East Orange, Irvington
  • Suburban areas with significant elderly population

22
Inner-City
  • Cancers of Focus
  • Cervical
  • Prostate
  • Oral
  • Disparities among Racial Ethnic Minorities
  • Access to care, lack of insurance, language
    barriers
  • Low Clinical Trial Participation - Views on
    medical research

23
Suburban
  • Cancers of focus
  • Lung
  • Colorectal
  • Breast
  • Prostate
  • Under-screened for many cancers relative to risk
  • Breast Cancer - Mammograms Medicare coverage
  • Cervical Cancer - Pap Tests
  • Low Clinical Trial Participation - Lack of
    available clinical trial protocols (toxicity,
    comorbidities)

24
ECCC Organizational Structure
25
Mission Statement
  • Increase cancer awareness reduce its impact on
    Essex residents through improved screening,
    access to treatment follow-up
  • Promote awareness of and participation in cancer
    clinical trials
  • Support investigations that seek to find the
    causes of cancers, improve care, reduce health
    disparities, or increase access
  • Increase collaboration communication among all
    stakeholders to maximize utilization/identificatio
    n of resources
  • Examine and prioritize an expansion of cancer
    control efforts county-wide

26
ECCC is implementing the following NJ-CCCP Goals
  • Promote collaboration with traditional and
    non-traditional partners to improve communication
    about access and resources for cancer education,
    detection, and prevention services, including
    research studies. NJ-CCCP strategy AC-2.1.6
  • Disseminate information on cancer control
    efforts and services throughout Essex County.
    NJ-CCCP strategy AC-2.1.7
  • Educate the public regarding the purpose and
    importance of participating in clinical trials
    for cancer, with special emphasis on addressing
    the concerns of minority populations. NJ-CCCP
    Objective AC-4.1.7 (other cancer-related
    BR-2.2.1, BR-5.1,CO-3.1).
  • Identify strategies to increase cancer service
    access and resources for all populations through
    public education.
  • NJ-CCCP Objective AC-4.1

27
Diverse Membership
  • Members include
  • Cancer Survivors
  • Healthcare Providers
  • Educators
  • Outreach Workers
  • Cancer Advocates
  • Public Health Workers Researchers
  • People Personally Affected by Cancer
  • Organizations represented
  • Community-based organizations
  • County Local health departments
  • National Local Cancer Organizations
  • Health Centers, Hospitals, Clinics
  • Faith-based Organizations
  • Corporations
  • Academia
  • Foundations

28
For Example
  • The Coalition is partnering with the following
    organizations to address the three cancers that
    were identified as priorities in Essex County
    through the C/NA
  • The Prostate Net
  • Oral Cancer Consortium
  • Essex Communities Against Tobacco (CAT)
    Coalition
  • Essex Cancer Education Early Detection (CEED)
    Program

29
Communication Methods
  • Quarterly ECCC Meetings
  • Email list-serve (free using Yahoo!Groups) for
  • Entire Coalition
  • Leadership Council and Each Committee
  • Monthly Community Health Calendar that focuses on
    cancer
  • Coalition Website www.umdnj.edu/EssCaWeb

30
Cancer Services Resources
  • Many Coalition members work for organizations
    that serve as resources for cancer education,
    screening/early detection, and support services
  • Coalition promotes services provided by members
    and non-members throughout Essex County

31
American Cancer Society (ACS)
  • Web Site www.cancer.org
  • Type in zip code to find local resources and
    events
  • Local Office Metro NJ Region-
  • Address 767 Northfield Ave, West Orange 07052
  • Tel 973-736-7770
  • National Call center 1-800-ACS-2345
  • Patients and others can obtain referrals to
    local cancer resources and to a local patient
    and family services director/coordinator who may
    be able to help
  • Broad range of cancer education materials
    available

32
NJ Cancer Education Early Detection (CEED)
Programswww.state.nj.us/health/cancer/njceed/
  • The NJCEED Program offers funding to all 21
    counties for comprehensive breast, cervical,
    prostate colorectal cancer education, outreach
    screening.
  • There are 2 CEED sites in Essex

33
Essex CEED Sites
  • Conduct education/outreach and screenings at
    churches,
  • health departments community centers
  • UMDNJ - S.A.V.E. Women Men of Essex County
    CEED Program
  • For more information contact
  • Ms. Catherine Marcial, SAVE Women Men Project
    Coord.
  • Tel (973) 972-0308, email marciacp_at_umdnj.edu
  • St. Michaels Medical Center-"In The Pink" CEED
    Program
  • For more information contact
  • Ms. Aretha Hill-Forte, "In the Pink" Project
    Coordinator
  • Tel (973) 877-2989, email ahillforte_at_cathedralhe
    alth.org

34
Cancer Care www.cancercare.org
  • Trained oncology
  • social workers provide
  • free counseling
  • 24-hr online support groups,
  • face-to-face,
  • telephone
  • financial assistance
  • National non-profit organization providing free
    professional support services to
  • people living with cancer,
  • caregivers,
  • children loved ones
  • the bereaved
  • Telephone Education Workshops
  • Expert-led programs on a variety of
    cancer-related topics
  • More than 50 Workshops per year
  • Participants can listen to and ask questions of
    cancer experts
  • To register call 1-800-813-HOPE or at
    www.cancercare.org/education.html

For more information, please contact Kathy
Nugent, LCSW, Director of Social Services Tel
201-301-6809, Email knugent_at_cancercare.org
35
NJ Cancer Clinical Trials Connectwww.njctc.org
  • Innovative electronic tool to match patients to
    cancer clinical trials statewide
  • Patients create a confidential medical profile
    online
  • Informational resource to educate people about
    clinical trials, provides links to other
    resources
  • Website available in Spanish
  • Toll-free information line 866-788-3929, Monday
    through Friday, 9 am-5 pm
  • Supported by CINJ, RWJ Medical School, NJ-DHSS
  • For more information, contact
  • Susan Goodin, PharmD
  • Tel 732-235-6783, Email goodin_at_umdnj.edu

36
The Prostate Net www.prostate-online.org
  • National non-profit organization which aims to
    increase awareness of prostate cancer especially
    among minority men in medically underserved areas
  • Barbershop Initiative
  • National program to increase prostate cancer
    awareness among minority men by training barbers
    to deliver health messages and involving local
    medical centers to provide education coupled with
    free prostate cancer screenings treatment.
  • Cancer Education Literature

37
Oral Cancer Consortium www.oral-cancer.org
  • Comprised of 26 metropolitan healthcare
    institutions and professional societies in NY, NJ
    PA.
  • Recognize that oral cancer is an under-
    publicized issue and aim to raise awareness the
    importance of prevention and early detection.
  • Sponsoring Oral Cancer Screening Day
  • (April 20, 2006)
  • For more information about where to receive a
    free oral cancer screening, call the Oral Cancer
    Screening Information Line at 1-877-263-3401.

38
Dental Clinics near Essex that Provide
Reduced-Cost Oral Cancer Screenings
  • UMDNJ-New Jersey Dental School
  • Newark Beth Israel Medical Center
  • Newark Community Health Centers
  • Mountainside Hospital
  • Accept Medicaid, charity care, and sliding
  • scale fees

39
The Essex Communities Against Tobacco (CAT)
Coalition
  • Part of a statewide group of anti-tobacco,
    community-based coalitions that promote
    tobacco-free environments.
  • Supports tobacco prevention education programs
    and participates in anti-tobacco advocacy
    efforts/activities
  • Advocate for passage of Clean Indoor Air Bill
    in NJ
  • Tobacco strongly linked with lung, oral and
    cervical cancers
  • For more information contact
  • Ms. Michele Grippaldi, Essex CAT Coalition
    Coordinator
  • Tel 973-571-2324, EssexCountyCAT_at_yahoo.com

40
Sisters Network www.sistersnetworkinc.org
  • Addresses the breast health needs of African
    American women, through affiliate chapters
    partnerships with existing service providers
  • Chapters are organized by breast cancer survivors
    committed to establishing community breast health
    services
  • Successful community outreach programs
  • "The Gift for Life Block Walk"
  • The Pink Ribbon Awareness Campaign
  • STOP THE SILENCE Changing the Face of Early
    Breast Health Intervention
  • Local Chapter Sisters Network, Newark
  • For more information contact
  • Ms. Charlotte Munnerlyn
  • Tel 973 926-5535, munnemann_at_aol.com

41
Current ECCC Activities
  • Cancer Prevention Early Detection Health Fair
    - April 20, 2006
  • In conjunction with Oral Cancer Screening Day at
    New Jersey Dental School
  • Health fair was proposed by Coalition members
  • Participants include
  • Essex County Cancer Coalition
  • CancerCare
  • The Prostate Net
  • Essex CEED
  • Sisters Network
  • Essex CAT Coalition

42
Current ECCC Activities (cont.)
  • Letters to the Editor to be published in local
    newspapers in Essex County
  • Intent is to highlight local cancer issues in
    conjunction with national health observances
  • Cancer education for Essex firefighters
  • Coordinators will give an overview of cancer
    issues at March meeting of fire chiefs

43
Current ECCC Activities (cont.)
  • Creator of NJ Cancer Trials Connect educated
    Coalition members
  • Member who educates the community about clinical
    trials though his personal experiences
  • Coalition has helped to initiate a Working Group
    to
  • Further understand barriers to participation in
    cancer clinical trials
  • Formulate effective educational approaches
  • Identify appropriate funding opportunities

44
How Can You and/or Your Organization Contribute
to Cancer Control Efforts in Essex County?
  • We strongly encourage YOUR participation on the
    Essex County Cancer Coalition to
  • Educate yourself about the cancer burden in Essex
    County and the cancer issues affecting the
    communities you work with
  • Expand awareness and promote the importance of
    cancer prevention early detection
  • Help reduce the number of cancer deaths and
    alleviate the overall cancer burden in the County

45
SUPPLEMENTAL SLIDES
46
General Cancer Risk Factors
  • Risk factors you cannot change
  • Gender
  • (Males Oral)
  • (Females Breast)
  • Age
  • Genetics
  • Family History
  • Personal history
  • Race/Ethnicity
  • (White Females Breast)
  • (Black Males Prostate, Oral)
  • Socioeconomic Status
  • (Cervical)
  • Lifestyle choices and
  • behaviors you can change
  • Smoking
  • Alcohol (1 drink per day)
  • Healthy Diet
  • Infectious Agents (HPV, HIV)
  • Exposure to UV Light
  • Oral Contraceptive Use
  • Protective factors
  • Early Detection
  • Breastfeeding
  • Low-fat diet
  • Exercise
  • Safe Sex Practices

Sources American Cancer Society National
Cancer Institute
47
Screening Guidelines
Other tests commonly used to detect colorectal
cancer are fecal occult blood test (FOBT) and
flexible sigmoidoscopy.
48
Insurance Coverage Overview for Common Cancer
Screenings
49
Key Health and Economic Indicators (source U.S.
Census 2000)
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