El Cambio de Vida: Menopause Concerns of Latinas and their Families

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El Cambio de VidaMenopause Concerns of
Latinas and their Families

• Marcia Killien, PhD, RN, FAAN
• National Center of Excellence in Womens Health
• Center for Womens Health Research
• University of Washington
• Supported by DHHS 0202014004D

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ProjectCollaborators

• Mariposa Community Health Center
• JoJean ElenasCarmen Ferlan
• University of Washington
• Susan Reed, MD

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COE/CCoE JOINT PROJECTEDUCATION FOR
MENOPAUSEPARTNERS

• Mariposa Community Health Center
• University of California, Los Angeles
• University of California, San Francisco
• University of Washington
• Supported by DHHS 0202014004D

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BACKGROUND

• Menopausal transition is a time of life change
  for women families
• Hormone therapy (HT) has been preferred treatment
  for symptoms health promotion
• HT chosen by Latinas more often than other women
  (SWAN study)
• HT recently shown to be associated with
  significant health risks
• Educational materials may not be culturally
  relevant for Latinas and their families

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COE/CCoE Joint Project
PURPOSE To foster collaboration among academic
and community partners to address womens health
care.

• PROJECT AIMS
• Develop concensus statement about menopause
  history, treatment, prevention
• Assess educational needs
• Needs of CCoE providers
• Needs of target population
• Exisiting materials
• Develop educational materials
• For providers
• For patients families
• Evaluate project outcomes

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STUDY PURPOSE

• Understand the health issues of importance
  related to menopause for Spanish-speaking Latina
  women and their families
• Specific Aims
• 1) Assess attitudes and beliefs about menopause
• 2) Determine barriers to menopause-related care
• 3) Identify impact of menopause on family
  relationships

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Methods Focus Groups

• Participants
• Resided in Nogales, Arizona
• Community flyers posted
• Groups (5 groups, n38)
• Perimenopausal women
• Postmenopausal women
• Male partners
• Conducted in Spanish
• Audiotaped, transcribed, translated

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Research Collaboration

• Mariposa
• Recruited participants
• Conducted focus groups
• Transcribed translated tapes
• UW
• Reviewed tapes transcripts
• Analyzed data using content analysis
• Prepared and distributed report

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CONTENT ANALYSIS

• Knowledge, attitudes, concerns
• Impact on family members
• Barriers to culturally specific and sensitive and
  health care

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Findings Knowledge, Attitudes, Concerns

• Knowledge confusion conflict
• Attitudes menopause aging
• Concerns
• Symptoms skin changes
• Treatment options hormone therapy, CAM

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Findings Family Impact

• Intergenerational linkages for information
• Changing relationships with partners
• Fear of losing partner
• Sensitivity of partners

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Findings Improving Care

• Manage conflicting information
• Providers who listen, sensitive, respected
• Address broad health promotion needs
• Include family in visits
• Provide culturally appropriate educational
  materials
• Spanish
• Family centered
• Multiple formats

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Joint Project Rewards

• Forming new relationships
• Mutual sharing of strengths
• Cultural expertise
• Scientific knowledge
• Assist with developing IRB procedures
• Expanding cultural horizons
• Contributing to health care for underserved women

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Joint Project Challenges

• Building relationships at a distance
• Understanding organizational climate differences
• Realistic goals
• Sustaining focus
• Personnel changes
• Timelines (IRB, Budget Issues)

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Future Plans

• Manuscript in preparation
• Presentations at research meetings
• Evaluate materials for incorporation of data