Discovering the research priorities of people with type 2 diabetes - PowerPoint PPT Presentation


PPT – Discovering the research priorities of people with type 2 diabetes PowerPoint presentation | free to view - id: 13d888-YjhlO


The Adobe Flash plugin is needed to view this content

Get the plugin now

View by Category
About This Presentation

Discovering the research priorities of people with type 2 diabetes


Discovering the research priorities of people with type 2 diabetes ... be catered for. Raising awareness in the general public. supermarkets and in catering. in ... – PowerPoint PPT presentation

Number of Views:41
Avg rating:3.0/5.0
Slides: 22
Provided by: kennethpau


Write a Comment
User Comments (0)
Transcript and Presenter's Notes

Title: Discovering the research priorities of people with type 2 diabetes

Discovering the research priorities of people
with type 2 diabetes
  • Ken Brown, David Murphy, Caroline Kenyon
  • Co-researchers J Dyas, J Cummings-Jones, Y
  • P Riaz, P Chahal

  • Diabetes is one of the commonest chronic
    illnesses in the UK and is getting more common
  • NHS contributed nearly 20 Million in 2002-3 to
    research on diabetes
  • Traditionally experts decide on research
  • Involving consumers in research may make research
    more focused on the important questions to answer

Aims of the Study
  • To find out some important aspects of the lives
    of people with diabetes in inner city Nottingham
  • To define and prioritise some research themes
    from these important areas
  • To compare and contrast these research themes
    with the Department of Healths research
  • To then use consumers research themes as a
    template for further research

  • Participatory Approach
  • established a reference group of health
    professionals, researchers and consumer
    representatives (Diabetes UK and Self-Help
  • reference group defined the research question,
    advised on the target participants, suggested the
    methods to be used and helped with the
    recruitment of participants
  • researchers who understood the cultural
    background, languages and dialects of the local
    diabetic community joined the research team

  • Focus Groups
  • six groups of varying cultural mix
  • similar method used in each group, based on
    common researcher training
  • appropriate setting in community centres and
    local surgery
  • validation of findings refinement and
    prioritisation of the final research questions
    involved participant representatives on the
    research team

  • Areas of their lives that participants felt were
  • Improving information
  • improving the quality and consistency of
  • cultural needs to be catered for
  • Raising awareness in the general public
  • supermarkets and in catering
  • in the workplace
  • being generally understood, lack of media
  • Improving information about food
  • better information
  • improved food labelling
  • duty of supermarkets and caterers to account for
    diabetic people

  • One-to-one support
  • value of health professionals
  • friends and family
  • Service delivery
  • importance of regular checks
  • fast access to specialised care when needed
  • sensitivity to cultural needs (lifestyle,
    language and diet)
  • Prevention of diabetes
  • screening, especially in high risk communities
  • prevention of obesity in children and young
  • role of exercise and other lifestyle issues in
    prevention of diabetes and prevention of
  • Co-morbidity
  • other ailments prevent good control of diabetes

  • The value of exercise
  • Activity has a positive role
  • Self-management
  • Taking responsibility for yourself
  • Denial of the consequences of diabetes

Comparisons with DoH Research Priorities and
  • Lack of medical or scientific based themes in our
  • Less importance placed on prevention and
    treatment of complications of diabetes
  • Many similarities in service delivery based
    research themes and in prevention and screening
    of diabetes
  • More emphasis on receiving information and
    understanding foodstuffs better

Discovering the research priorities of people
with type 2 diabetes
Caroline Kenyon who am I?
  • Type 2 diabetes for 14 years
  • Housewife with a husband and 2 children
  • Grandmother had type 2 diabetes, she died of
    diabetic coma
  • My husband has diabetes
  • I am concerned about my children developing
    diabetes in the future
  • I also have angina, blood pressure

Who do I represent?
  • I am involved in the Expert Patient Programme,
    the Patient and Public Involvement forum and
    the Patient Advisory Liaison Service
  • I am a member of the Nottingham Diabetes UK
    voluntary group committee
  • I am on the steering committee of Rushcliffe PCT
    diabetes group
  • I run a small support group for people with
    diabetes and/or heart disease

Why did I get involved?
  • I cant say no
  • I wanted to help others with type 2 diabetes
  • I wanted to meet other people with diabetes
  • I wanted to swap ideas with other diabetic
    people, what did they want from their diabetic
  • I wanted to meet people from other cultural
    backgrounds with diabetes

Why should Diabetes UK be involved?
  • To work with researchers within the NHS
  • To influence the type of research carried out
  • To raise the profile of diabetic peoples needs
    with doctors and nurses working in the NHS
  • To raise the profile of diabetes in the general
  • Raises the profile of Diabetes UK

How did Diabetes UK get involved?
  • Attended a meeting with researchers about what
    research should be done in diabetes in Nottingham
  • Decided team should look into research priorities
    from a patient view

How did I get involved?
  • Attended a focus group
  • Attended a meeting to discuss the findings of the
    focus groups
  • Helped put together this talk

What did I get out of getting involved?
  • A feeling of satisfaction that relevant research
    has been promoted
  • Type 2 diabetes is particularly being highlighted
  • Doctors and nurses may have better skills in
    diabetes in the future
  • Meeting other people with diabetes

What am I going to do next?
  • To carry on working with diabetes researchers in
  • To take forward some of the research questions
    that we have highlighted
  • Influence the way Diabetes UK funds local

  • Limitations of our study
  • Participants in our study were not representative
    of all type 2 diabetic people
  • areas of importance do not always equate to
    researchable themes
  • consumers may not appreciate the scientific basis
    of diabetes and its potential to change their
  • consumers may not know about existing research
    and where the gaps are
  • the important areas highlighted may have been
    suggested by the structure of the focus group
    topic guide
  • This study was difficult to carry out

  • Where this study could help
  • a consumer perspective is given
  • real people with diabetes are given a voice
  • contributes towards a comprehensive scoping
    exercise for research priorities
  • a programme of research, where outcomes lead to
    some improvements that people with diabetes have
    said they are looking for, is valuable and

Contact details
  • Ken Brown, General Practitioner
  • Family Medical Centre, 171 Carlton Road,
    Nottingham, NG3 2FW
  • (0115) 950 4068
  • We thank Trent Focus for financial support
    towards the costs of this project