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W E L C O M E
Downs Syndrome Association Of Tamilnadu
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• Mathru Mandir

believes in the possibilities. Do You?
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Introduction

• Center for individuals with Down syndrome in
  India
• Located in Chennai city
• Staffed by multi-disciplinary team headed by
  Rekha Ramachandran

Established in 1984 with 6 children
Registered as Down Syndrome Association of
Tamilnadu in Feb 1998
More than 200 individuals supported in 2004
www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Registered under Sec. 10 of the T.N Societies
Registration Act1975 Reg. No. 48/1998 Registered
under Foreign Contribution Regulation Act 1976
Reg. No 075900924 Dated 25th Sep. 2003 Donation
received are tax exempted under section 80G of
IT Act 1976
www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Down Syndrome is the most common and readily
identifiable chromosomal condition associated
with mental retardation. It is caused by a
chromosomal abnormality for some unexplained
reason, an accident in cell development in 47
instead of the usual 46 chromosomes. This changes
the orderly development of the body and brain. In
most cases the diagnosis of Down Syndrome is made
shortly after birth. The incidence is very high
and about 1 in every 800 to 1000 live births is
born with Down Syndrome
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Need

• No exclusive services in India available for
  individuals with Down Syndrome
• Existing services only for mentally challenged
• Differences in these conditions not widely known
• Extended Family participation not just parents
  is important in India

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Aim

• To bring about positive changes
• To provide service oriented programs
• To gain widespread acceptance by family and
  society
• And most importantly, to help individuals attain
  their maximum potential

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Team

• Rekha Ramachandran President and Family
  counselor
• 2 physical therapists
• 2 Occupational therapists
• 1 speech therapist
• 1 special educator
• 1 vocational therapist
• 4 trained staff for self-help and academics

• 2 creative movement therapists
• 1 clinical psychologist
• 1 technical weaver and helper
• 4 sub-staff and
• Security personnel

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Process

• Early intervention
• Functional academics
• First phase - Classroom training
• Second phase - Vocational training
• Extra curricular activities

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Early intervention

• Open to children from the age of 3 months
• Responsibilities include
• Counseling for individuals, parents and extended
  family members
• Initial support services
• Referrals to medical professionals as needed

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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• Aims to
• Foster healthy relationships between
  parents and school
• Develop a positive approach to learning
  in a secure and loving environment

• Chief services
• Physiotherapy
• Speech therapy
• Occupational therapy

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Classroom education

• For children in elementary school
• Uses Curriculum tailored to individual needs
• Curriculum matches individuals learning pace
• Delivered through the topic or thematic approach
  to learning
• Early years, through structured approach to play
• Aims to
• Provide learning experiences, skills and
  attitudes through participation
• Provide an environment where children feel valued
  and accepted

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Pre-vocational

• Evaluation of students potential to work
• Done by several means such as checklists on
  vocational competencies
• Student exposed to work samples in classroom
• Rate of production and quality of work evaluated
  by maintenance of production records
• Student compared to him/ herself over a period or
  multiple periods

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Vocational training

• For children moving from elementary to secondary
  school
• Primary focus on vocational aspects as compared
  to the more traditional academics such as
  reading, or mathematics
• Includes three phases
• Pre-vocational
• Vocational adjustment or try-out and
• Placement

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Adjustment, placement

• Vocational adjustment
• Preliminary information from pre-vocational
  phase used
• Student actually placed on a job in school itself
  as initial placement and evaluated
• Placement
• Opportunity for
• Competitive employment on part-time basis
• Job placements in sheltered workshops or
• Self employment

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Vocation

• Weaving
• Special looms designed by experts to suit
  individuals

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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• Baking
• Production of cookies, buns, biscuits and
  confectionery
• Superior quality and variety resulted in
  constant demand

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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• Fruit preparation
• Preserved juices and jams

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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• Catering and spice processing
• Preparation of snacks and masalas of very high
  quality
• Others
• Plates and cups using bio-graded leaves
• Bottle preparation by moulding plastic
  granules

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Extra-curricular activities

• Outings to the zoo, farmhouses Group Excursion
  to Different States
• Participation in sports events and cultural
  programs

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Success stories
8th World Down Syndrome Congress Singapore 2004
Inaugural Dance by-
SANDHYA RAO, REVATHI TYAGARAJAN, BABLI
RAMACHANDRAN
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Our Greatest Achievement
2004 Saw the Admission of 260 Infants into
regular schools
www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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Our Sports Achievement
SPECIAL OLYMPICS INTERNATIONALHELD IN DUBLIN
AUGUST 2003N. VIDYAVATI WON A BRONZE MEDAL FOR
SWIMMING
S. RAMESH BRONZEWORLD SWIMMING COMPETITION IN
DURBAN OCT 2004
www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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I have a name and I'm proud of it
www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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• The most important aspect of having a child with
  DOWN SYNDROME is acceptance by both parents and
  society. In Mathru Mandir, we take pride in
  stating that we have not only kept families
  together, we have made parents happily accept
  their child as they would any other child. This
  has been our biggest success and we not only have
  families in Chennai but from all over India and
  the Middle East
• Rekha Ramachandran

www.downsyndromefederationofindia.com / Email-
mathrumandir_at_vsnl.net
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T H A N K Y O U
Downs Syndrome Association Of Tamilnadu No. 2,
Madangopal Street, Abiramapuram, Chennai - 600
018. Tel [phone] www.downsyndromefederationof
india.com Email- mathrumandir_at_vsnl.net