Addressing Burn-out through Grief and Loss: The Impact on Parents and Caregivers of Children with FASD - PowerPoint PPT Presentation

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Addressing Burn-out through Grief and Loss: The Impact on Parents and Caregivers of Children with FASD

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FASEout Project 2006 www.faseout.ca. Addressing Burn-out through Grief and Loss: ... Psychosomatic manifestations. Reconsideration of life's meaning ... – PowerPoint PPT presentation

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Title: Addressing Burn-out through Grief and Loss: The Impact on Parents and Caregivers of Children with FASD


1
Addressing Burn-out through Grief and Loss The
Impact on Parents and Caregivers of Children with
FASD
2
Grief/Stress Delayed or inhibited
  • Aware of the change/loss/event
  • Postpone active grieving or feeling the feelings

3
Grief /Stress Chronic
  • Continually exhibit intense reactions over an
    extended period of time
  • Inability to relinquish emotional attachments

4
Physical Manifestations of Grief/Stress
  • Muscle weakness
  • Muscle tension
  • Lack of energy, fatigue
  • Shortness of breath
  • Dry mouth

5
Behaviours Associated with Grief/Stress
  • Changes in eating and sleeping patterns
  • Absent-mindedness
  • Social withdrawal
  • Distressing dreams
  • Mood swings (sadness, anger, irritability)
  • Crying/chronic anger and/or anxiety

6
Common Responses Associated with Loss/Stress
  • Denial
  • Guilt
  • Shame
  • Grief
  • Psychosomatic manifestations
  • Reconsideration of lifes meaning

7
Losses Experienced by Family Members
  • Sense of the natural process
  • Self-esteem and confidence
  • Balanced family system
  • Support from family, friends, community
  • Hopes and dreams

8
Losses Experienced by Family Members
  • Freedom, privacy
  • Security about the future
  • Employment
  • Financial security
  • Pets
  • Roles
  • Child through placement, running away, leaving
    the family, suicide, death
  • Faith
  • Progressive losses autonomy, independence,
    dignity and privacy

9
  • Parents and caregivers also grieve the losses of
    their children

10
Losses Experienced by Persons with FASD
  • Potential
  • The ability to move along in life like everyone
    else
  • Self-esteem and confidence
  • Security about the future
  • Friendships and intimate partnerships

11
Compounded Loss/Stress Impact on Caregivers
  • Compassion fatigue
  • Depression, anxiety, hypochondria
  • Combativeness, sensation of being on fast
    forward, inability to concentrate
  • Worry, guilt, anxiety about other children
  • Relationship break-down

12
Grief /Stress Overload
  • Range of responses
  • Psychic numbing
  • Suspicion of counterfeit nurturance
  • Struggle for meaning
  • Death imprint

13
Risk Factors for Prolonged Grief/Stress
  • History of multiple losses
  • History of incomplete management of grief
  • Inadequate social support
  • Unrecognized or stigmatized loss
  • Social isolation

14
  • Caregivers of individuals affected by FASD live
    and breathe a form of chronic trauma-like
    permanent white-water turbulence with no firm
    ground.

15
Ongoing Process
  • Attitudes towards life and death
  • Expression of pain, suffering and grief
  • Acceptance of outside help
  • Expectations of family responsibilities
  • Gender roles
  • Ethnic, religious, cultural traditions and
    backgrounds

16
Support to Individuals with FASD and Their
Families
  • Validate losses experienced
  • Avoid good parent/bad parent issues
  • Support confronting losses in a positive manner
  • Encourage communication

17
Taking Care of Yourself
  • Recognize the persons strengths
  • Recognize the persons particular challenges
  • Seek support
  • Forgive others
  • Respite, respite, respite

18
  • Whatever you do, do not lose hope!!
  • (Yves, who lives with multiple disabilities)
  • Hope for life, hope for change, hope for improved
    circumstances, hope for some time together, hope
    for a peaceful life
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