How%20can%20Cancer%20Waiting%20Times%20be%20used%20to%20improve%20Cancer%20Registry%20data?%20UKACR%20

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How can Cancer Waiting Times be used to
improveCancer Registry data?UKACR NCR
Conference 2006Amsterdam, HollandThursday 19th
October 2006

• Lucy Elliss-Brookes
• Network Information Manager (ASWCS SWCIS)

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How can Cancer Waiting Times be used to improve
Cancer Registry data?

• Cancer Waiting Times Targets
• Development of Somerset Cancer Register
• Implementation of Communication Referral
  Protocol (CaRP)
• Impact on data collection
• Impact on Cancer Registry Performance Indicators
• Impact on communication and patient care

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2005 Cancer Waiting Times Targets

• Challenging targets new dataset for all cancers
  (excluding BCCs)
• 31 Day decision to treat to treatment
• 62 Day urgent referral to treatment
• Weekly, monthly quarterly reporting
• Requires real-time tracking of patients, within
  between Trusts
• Initially of little interest to Cancer Registry
• until used as driver for development of Somerset
  Cancer Register

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Somerset Cancer Register (SCR)

• Web based single database application
• National Cancer Dataset including Cancer Registry
  and Royal College Datasets
• Facilitates clinical data capture live in
  Multi-Disciplinary Team meetings
• Allows transfer of Cancer Waiting Times
  information to support the CaRP
• Common database across whole Network
• Downloads, exports, reports, gizmos, letters,
  audits etc

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Communication and Referral Protocol (CaRP)

• Patients first seen first treated in different
  Trusts information not being communicated
• Records on National Database from different
  Trusts were not joined up, 10 accuracy
• True waiting times for patients travelling
  between Trusts not known, delays in patient care
  couldnt be addressed
• CaRP introduced published August 2005
• Outlines information transfer principles
• Why, Who, What, When, How
• Significant improvement in data quality

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Progress since 2004/05 Un-joined records on
National Database
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Impact on data collection
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Impact on Performance Indicators
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Impact on Performance Indicators
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Impact on patient care