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AT personnel, the Reflective Practitioner and Ethics

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Reflection in Action Pausing after an activity to see how it went what went well, what did not, ... fairness 13 Reflective Cycle - from Gibbs (1988) ... – PowerPoint PPT presentation

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Title: AT personnel, the Reflective Practitioner and Ethics


1
AT personnel, the Reflective Practitioner and
Ethics
2
Assistive Technology Service(from Assistive
Technology Act of 1998-PL 105-394)
  • "Any service that directly assists an individual
    with a disability in the selection, acquisition,
    or use of an assistive technology device.
  • This may include
  • evaluation of the needs of an individual with a
    disability, including a functional evaluation of
    the individual in his/her customary environment
    (evaluating their needs in their usual
    surroundings)
  • purchasing, leasing, or otherwise providing for
    the acquisition of assistive technology devices
    by individuals with disabilities
  • purchasing, selecting, or borrowing AT devices
  • selecting, designing, fitting, customizing,
    adapting, applying, maintaining, repairing, or
    replacing of assistive technology devices

3
Assistive Technology Service cont
  • coordinating and using other therapies,
    interventions, or services with assistive
    technology devices, such as those associated with
    existing education and rehabilitation plans and
    programs
  • providing training or technical assistance for an
    individual with a disability, or where
    appropriate, the family of an individual with a
    disability
  • providing training or technical assistance for
    professionals (including individuals providing
    education and rehabilitation services),
    employers, or other individuals who provide
    services to, employ, or are otherwise
    substantially involved in the major life
    functions of individuals with disabilities.

4
Assistive Technology Device(from Assistive
Technology Act of 1998-PL 105-394)
  • "Any item, piece of equipment, or product system,
    whether acquired commercially off the shelf,
    modified or customized, that is used to increase,
    maintain, or improve functional capabilities of
    individuals with disabilities."

5
Definition of AT
  • The International ISO-9999 standard defines AT
    as
  • Any product, instrument, equipment or technical
    system used by a disabled or elderly person, made
    specially or existing on the market, aimed to
    prevent, compensate, relive or neutralize the
    deficiency, the inability of the handicap. 2007
  • "Any product (including devices, equipment,
    instruments and software), especially produced or
    generally available, used by or for persons with
    disability
  • for participation
  • to protect, support, train, measure or substitute
    for body functions / structures and activities
    or
  • to prevent impairments, activity limitations or
    participation restrictions." 2011
  • http//cirrie.buffalo.edu/encyclopedia/en/article/
    265/
  • http//www.abledata.com/abledata.cfm?pageid194670
    ksectionid19327

6
ISO 9999 defines 12 functional areas called
"classes," each of which is subdivided into
"subclasses." Within most subclasses, more
specific categories called "divisions" are
listed
  • 04 ASSISTIVE PRODUCTS FOR PERSONAL MEDICAL
    TREATMENT
  • Included are those assistive products which are
    intended to improve, monitor or maintain the
    medical condition of a person. Excluded are
    assistive products used exclusively by
    health-care professionals.
  • 05 ASSISTIVE PRODUCTS FOR TRAINING IN SKILLS
  • Included are, e.g., devices intended to improve a
    person's physical, mental and social abilities.
    Devices that have a function other than training,
    but which may also be used for training, should
    be included in the class covering its principal
    function.

7
ISO 9999
  • 06 ORTHOSES AND PROSTHESES
  • Orthoses are externally applied devices used to
    modify the structural and functional
    characteristics of the neuromuscular and skeletal
    systems.Prostheses are externally applied
    devices used to replace, wholly or in part, an
    absent or deficient body part.Included are,
    e.g., body powered and externally powered
    external orthoses, prostheses, cosmetic
    prostheses, and orthopedic footwear.Excluded are
    endoprostheses, which are not part of this
    International Standard.
  • 09 ASSISTIVE PRODUCTS FOR PERSONAL CARE AND
    PROTECTION
  • Included are, e.g., assistive products for
    dressing and undressing for body protection for
    personal hygiene for tracheostomy, ostomy and
    incontinence care and for sexual activities.
  • Assistive products for eating and drinking,
  • 12 ASSISTIVE PRODUCTS FOR PERSONAL MOBILITY
  • ORTHOSES AND PROSTHESES,
  • Assistive products for carrying and transporting,
  • Assistive products for transporting objects in
    the workplace,.

8
ISO 9999
  • 15 ASSISTIVE PRODUCTS FOR HOUSEKEEPING
  • Included are, e.g., assistive products for eating
    and drinking.
  • 18 FURNISHINGS AND ADAPTATIONS TO HOMES AND OTHER
    PREMISES
  • Sets of castors,
  • Assistive products for environmental improvement,
  • Workplace furniture and furnishing elements,
  • 22 ASSISTIVE PRODUCTS FOR COMMUNICATION AND
    INFORMATION
  • Devices for helping a person to receive, send,
    produce and process information in different
    forms.Included are, e.g., devices for seeing,
    hearing, reading, writing, telephoning,
    signalling, and alarming and information
    technology.
  • Assistive products for office administration,
    information storage and management at work,
  • 24 ASSISTIVE PRODUCTS FOR HANDLING OBJECTS AND
    DEVICES
  • Assistive products for transporting objects in
    the workplace
  • Assistive products for hoisting and repositioning
    objects in the workplace,

9
ISO 9999
  • 27 ASSISTIVE PRODUCTS FOR ENVIRONMENTAL
    IMPROVEMENT AND ASSESSMENT
  • Devices and equipment to enhance and measure the
    environment.
  • ASSISTIVE PRODUCTS FOR EMPLOYMENT AND VOCATIONAL
    TRAINING,
  • 28 ASSISTIVE PRODUCTS FOR EMPLOYMENT AND
    VOCATIONAL TRAINING
  • Devices which exclusively fulfill the
    requirements of the workplace and for vocational
    training.Included are, e.g., machines, devices,
    vehicles, tools, computer hardware and software,
    production and office equipment, furniture and
    facilities, and materials for vocational
    assessment and vocational training.Excluded are
    products that are mainly used outside of the work
    environment.
  • ASSISTIVE PRODUCTS FOR TRAINING IN SKILLS,
  • ASSISTIVE PRODUCTS FOR PERSONAL MOBILITY,
  • FURNISHINGS AND ADAPTATIONS TO HOMES AND OTHER
    PREMISES,
  • ASSISTIVE PRODUCTS FOR COMMUNICATION AND
    INFORMATION,
  • 30 ASSISTIVE PRODUCTS FOR RECREATION
  • Devices intended for games, hobbies, sports and
    other leisure activities.

10
Definition of AT
  • The European TIDE/HEART study (1994) looked at
    AT from the perspective of its outcomes, bringing
    in the human dimension and concluded that
  • The ultimate objective of AT is to contribute
    to the effective enhancement of the lives of
    people with disabilities and elderly people
    helping to overcome and solve their functional
    problems, reducing dependence on others and
    contributing to the integration into their
    families and society.

11
AT Service Ireland?
  • Nine recommendations were made by the Commission
    of the Status of People with Disabilities (1996)
    on technology and telecommunications for people
    with disabilities,
  • In particular three recommendations referred to
    the provision of AT services.
  • http//www.nda.ie/cntmgmtnew.nsf/0/9007E317368ADA6
    38025718D00372224/File/strategy_for_equality_04.h
    tm

12
Strategy for Equality 96
  • The Department of Social Welfare and the
    Department of Transport, Energy and
    Communications should introduce legislation to
    ensure access to assistive technology and
    telecommunications in line with the UN standard
    rules. Access to this technology should include
    financial access.
  • - Recommendation 271

13
Strategy for Equality 96
  • A single existing agency should be responsible
    for all assistive technology and for
    dissemination of information about new
    technological developments. Services should
    continue to be provided by a mixture of state and
    voluntary organisation but voluntary sector
    services must be properly funded and regulated.
    This agency should also provide an adequate
    assessment service of the most appropriate
    technical aids for people with disabilities.
  • - Recommendation 272

14
Strategy for Equality 96
  • One agency should be responsible for all
    technology and for giving out information about
    new kinds of equipment. This overall agency
    should set up nominated assessment centres and
    support them with appropriate funding for
    equipment, staff and training. There should also
    be a county network of feeder or outreach
    centres to provide primary assessments and
    training. All assessment must be based on a
    person centred approach.
  • - Recommendation 273

15
Implementation?
  • None of the recommendations have been fully
    implemented to date
  • it was reported that Neither the Department of
    Public Enterprise nor the Department of Social
    Community and Family Affairs see the
    recommendations as falling with their brief
  • This leaves the provision of AT in the remit of
    Department of Health and Children through which
    it is largely considered aids and appliances.

16
Current State of Practice
  • Still many of the EU countries have adopted, in
    principle, or in practice, the Medical Model
    where advice and decision making is largely
    dependent on the professionals in the field
    (medical doctors and therapists / advisors).
  • These professionals play a crucial role in
    bringing together the needs and available
    assistive technology, however in reality, these
    professionals all too often have insufficient
    knowledge as to the latest technology advances
    and available solutions
  • Analysing Federating

17
National Physical and Sensory Disability Database
  • This is well illustrated in the report of the
    National Physical and Sensory Disability Database
    Development Committee (Gallagher 2001).
  • report contains no reference to the provision of
    AT services.
  • The intention of the database is to gather
    information on technical aids and appliances
    currently being used by people with disabilities.
    The areas covered are aids to mobility, orthotics
    and prosthetics, vision aids, aids to hearing,
    communication aids, incontinence aids, special
    furniture and other aids to personal care.
  • For each technical aid and appliance identified,
    there are three subsequent fields to identify up
    to three individuals who assessed/authorised that
    particular aid and appliance,
  • http//www.hrb.ie/health-information-in-house-rese
    arch/disability/npsdd/

18
National Physical and Sensory Disability Database
  • The list of professionals involved includes,
    audiologists, audiometricians, community resource
    workers, continence advisors, G.Ps, information
    technology specialists, nurses, occupational
    therapists, ophthalmologists, optometrists,
    orthotists, physiotherapists, prosthetists,
    mobility specialists, seating technicians, speech
    therapists and suppliers.
  • It would appear from this listing that AT is
    still considered a rehabilitative tool viewed
    solely as helping in the eventual rehabilitation
    of the patient rather than as an enabling tool
    to support people with disabilities to achieve a
    better quality of life.

19
Education for People with Disabilities Act 2004
  • The Education for People with Disabilities Act,
    eligibility both for support and technology
    service hinges on the assessment of the
    individual, an assessment carried out by two or
    more of the following
  • An educational psychologist
  • A medical practitioner
  • A teacher nominated by the principal of the
    school where the child is attending
  • A social worker
  • A therapist

20
Education for People with Disabilities Act 2004
  • It is evident from the medical background of the
    personnel involved that the emphasis is on the
    diagnostic factors of the persons special needs.
  • A broader view of the person needs to be to be
    considered and in particular the persons
    abilities and how enabling technology can
    have a positive impact on both the behaviours and
    quality of life of the person

21
EU Research 2009
22
The AT ICT value chain in Europe
23
EU Telemate Project
  • The assistive technology (AT) provision cycle
    involves, by its nature, a heterogeneous group of
    disciplines.
  • Skills are needed in design, manufacture, user
    assessment, delivery, maintenance, disposal and,
    use
  • http//www.fernunihagen.de/FTB/telemate/database/i
    sced.htm

24
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25
Earlier Research
  • The TIDE HEART project (report E.3.2)
    identified three areas of education and training
    in Assistive Technology for specialists
  • Human
  • Socio-economic, and
  • Technical.

26
HEART area Human
  • Basic profession
  • Clinical
  • with underpinning disciplines
  • Anatomy
  • Physiology
  • Biomechanics
  • Disabilities
  • Psychology
  • Sociology
  • Knowledge transfer, and
  • Ethics

27
HEART area Socio-economic
  • Basic profession
  • Administration
  • with underpinning disciplines
  • Management
  • Service delivery
  • Standards, testing
  • Legislation
  • Economics

28
HEART area Technical
  • Basic profession
  • Engineering
  • with underpinning disciplines
  • Mechanics
  • Electronics
  • Physics
  • Information Technology
  • etc.,

29
Knowledge of Assistive Technology
30
International Standard Classification of
Education (ISCED) UNESCO
  • ISCO skill Level
  • First skill level
  • Second skill level
  • ISCED Categories
  • ISCED category 1, comprising primary education
    which generally begins at ages 5-7 years and
    lasts about 5 years.
  • ISCED categories 2 and 3, comprising the first
    and second stages of secondary education. The
    first stage begins at the age of 11 or 12 and
    lasts about three years, while the second stage
    begins at the age of 14 of 15 and also lasts
    about three years. A period of on-the-job
    training or experience may be necessary,
    sometimes formalised in apprenticeships. This
    period may supplement the formal training or may
    replace it partly or, in some cases, wholly.

31
International Standard Classification of
Education (ISCED) UNESCO
  • Third Skill Level
  • Fourth Skill Level
  • ISCED category 5 (category 4 has been
    deliberately left without content) comprising
    education which begins at the age of 17 or 18,
    last about four year, and leads to an award not
    equivalent to a first university degree.
  • SCED categories 6 and 7, comprising education
    which begins at the age of 17 or 18, lasts about
    three, four or more years, and lead to a
    university or postgraduate university degree or
    the equivalent.

32
ISCED is UNESCOs International Standard
Classification of Education
33
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35
AT accreditation USA - Resna
  • The rising expectations of end-users are forcing
    accreditation away from qualifications based on
    knowledge to demonstrate competence in practice
  • Competence applied to whole services in which a
    skill mix can be provided in a number of ways
    depending on the needs of the user

36
RESNA Rehabilitation Engineering Society of
North America
  • In the US RESNA have developed a package of
    qualifications for AT professionals
  • Assistive Technology Practitioner
  • Assistive Technology Supplier
  • Rehabilitation Engineering Technologist

37
Aspects of Assistive Technology Education in a
European context
  • Evert-Jan Hoogerwerf

Keeping Pace with Assistive Technology,
Guidelines for Lifelong Learning in Assistive
Technology http//www.at4inclusion.org/kpt/kpt_pr
oject.php
38
Professionals involved in AT
135 responses
  • Majority (79) of professionals reported working
    in two or more settings and in two or more teams

39
Training Needs Analysis
AT as part of formal pre-qualification education
  • Only 20 of 135 professionals interviewed

Post-qualification AT training
38 didnt receive training 62 did receive
training
Nb The mean number of years post qualification
was 12.1 years
40
Professions studying aspects of AT as part of
formal pre-qualification education
Frequency
Physiotherapist 1
Doctor 2
Teacher, Educationalist 4
OT 7
SLT 13
Total 27
Nb The mean number of years post qualification
was 12.1 years (N 125, range 1-35, SD8.65)
41
Factors that influence Assistive Technology
decision making
  • Elizabeth A Lahm Leslie Sizemore
  • Journal of Special Education Technology Winter
    2002 17, 1 ProQuest Nursing Allied Health
    Source
  • pg. 15

42
Factors that influence Assistive Technology
decision making
43
Factors that influence Assistive Technology
decision making
44
Factors that influence Assistive Technology
decision making
45
Factors that influence Assistive Technology
decision making
  • AT training programmes at universities and
    colleges were highly multidisciplinary.
  • Almost three-quarters (18 of 25) were sponsored
    by more than one department within the university
    or college.

46
Assistive technology training Diverse audiences
and multidisciplinarycontent, Lita Jans Marcia
Scherer in Disability and Rehabilitation
Assistive Technology, January-June 2006 1(1-2)
69 77
47
Areas of AT
  • Biomedical Engineering,
  • . Child Development,
  • . Communication,
  • . Disability and Human Development,
  • . Education,
  • . Engineering,
  • . Health and Human Development,
  • . Health and Rehabilitation Sciences,
  • . Gerontology,

48
Areas of AT
  • Industrial Design,
  • . Occupational Therapy,
  • . Psychology,
  • . Physical Therapy,
  • . Rehabilitation Engineering,
  • . Rehabilitation Medicine,
  • . Rehabilitation Science and Technology,
  • . Speech and Hearing Sciences, and
  • . Vocational Rehabilitation.

49
AT Professionals
  • Professionals in the counseling field have an
    ethical responsibility to be aware of the
    technology available,
  • Must be comfortable with deploying AT.
  • Studies have shown like consumers of AT services,
    providers of AT services likely demonstrate a
    wide range of emotions from being
    techno-centered to extraordinarily
    techno-anxious.

50
Reflective Practitioners
51
But firston 2 slips of paper
  • On one slip of paperlegibly write down your
    definition of reflection in 60 seconds.
  • On the second slip of paperBRIEFLY jot down
    thoughts about how our culture society views
    and practices reflection in 60 seconds.

52
Then second
  • Share your ideas with the people beside you for 2
    minutes
  • Now share with the class

53
The Reflective Practitioner
  • Reflective practice is a continuous process and
    involves the learner considering critical
    incidents in his or her life's experiences.
  • It was introduced by Donald Schön in his book The
    Reflective Practitioner in 1983.
  • As defined by Schön, reflective practice involves
    thoughtfully considering one's own experiences in
    applying knowledge to practice while being
    coached by professionals in the discipline.
  • described as an unstructured approach directing
    understanding and learning, a self regulated
    process, commonly used in Health and Teaching
    professions, though applicable to all.

54
The Reflective Practitioner
Donald Schon Philosopher, researcher, professor
emeritus (MIT), made significant contributions to
the theory and practice of learning. Concerned
with professional learning, learning processes in
organizations, and with developing critical,
self-reflecting practice
The Reflective Practitioner How Professionals
think in Action (1983) Educating the Reflective
Practitioner (1987)
55
Reflection
  • Latin reflectere To bend back
  • Involves shuttling back and forth between
    thinking and action

56
Definition
Reflection has been defined as a generic term
for those intellectual and affective activities
in which individuals engage to explore their
experiences in order to lead to a new
understanding and appreciation.
57
Definition
Reflection is a basic mental process with
either a purpose, an outcome, or both, applied in
situations in which material is unstructured or
uncertain and where there is no obvious solution.
58
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60
Why reflect
  • Manage emotions ordering / controlling emotions
    Mindlfulness work to manage anxiety
  • Re-processing to discharging emotions
    Pennebakers expressive writing
  • Embracing change avoiding burnout reducing
    fear of change, looking for patterns

61
  • Writing about earlier traumatic experience was
    associated with both short-term increases in
    physiological arousal and long-term decreases in
    health problems
  • Pennebaker Beall, 1986 
  • Pennebaker, J. W. Beall, S. K. (1986)
    Confronting a traumatic event. Toward an
    understanding of inhibition and disease. Journal
    of Abnormal Psychology, 95, 274281

62
Why Reflect
  • Manage behaviour maintain motivation
  • Demonstrate ethical practice / accountability
  • See thoughts feelings behaviour links

63
Potential benefits of reflection
  • Improved practice
  • Development of self regulation
  • Facilitation and integration of theory and
    practice
  • Development of personal theories of practice

64
Retrospective or Real Time
  • Reflection after the event
  • After the event becoming self aware
  • Action orientated
  • Should lead to change
  • Reflection during the event
  • Self monitoring
  • Concurrent awareness
  • Knowing and doing implicit checklist

65
Reflection framework
66
Reflection in Action
  • The sorts of knowledge we reveal in our
    intelligent action publicly observable,
    physical performances like riding a bicycle and
    private operations like instant analysis of a
    balance sheet. In both cases, the knowing is in
    the action. We reveal it by our spontaneous,
    skillful execution of the performance Schon,
    1987
  • Thinking on your feet
  • Knowing in action knowing more than we can say,
    the capacity to do the right thing (tacit
    knowledge).

67
Reflection in Action
  • Pausing after an activity to see how it went
    what went well, what did not, what could be
    changed
  • We develop sets of questions and ideas about our
    activities and practice
  • Looking back on experience to improve practice
  • Learning in the midst of practice
  • Making decisions about what to do
  • Donald Schon

68
Reflection Frameworks - basic
  1. Description What happened
  2. Evaluation what went well, what didnt
  3. Analysis what thoughts, feelings,
    behaviours, contributed to success-
  4. Action What next

69
Reflection homework
  • Attending to emotional responses working more
    skilfully with emotions
  • Managing unhelpful feelings
  • Working with surprises positive negative
  • Notice tendency to avoid recalling experience

70
Reflection homework
  • Identify attitudes, beliefs, feelings - that
    helped, - that got away
  • Consequences for self concept - professional
    identity supported or challenged-Personal
    identity supported or challenged
  • Critical reflection challenge the validity of
    our presuppositions

71
EIKey components
  • Personal competence self awareness self
    management (self confidence, integrity,
    initiative, value base
  • Social competence Social awareness
    Relationship management (empathy, supporting
    others, managing conflict, team working group
    dynamics

72
Golemans 5 point Framework
  • Self awareness understanding own motivation,
    strengths weakness, how one is perceived by
    others
  • Empathy ability to see others perspective and
    use it in a helpful way
  • Self regulation ability to control ones self
    and think before acting
  • Social skills communicating and relating to
    others

73
Epstein, R. M., Hundert, M. (2002). Defining
and assessing professionalcompetence. JAMA 287,
226235.
74

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77
Reflective Cycle - from Gibbs (1988)
Description-What happened?
Feelings-What were you thinking and feeling? What
lead you to that decision or opinion ?
Action Plan-If it arose again what would you do?
Would you do things differently ?
Evaluation-What was good and bad about the
experience?
Conclusion-What else could you have done? What
have you learnt?
Analysis-What sense can you make of the
situation? What have you learnt? What does the
literature say ?
78
Reflection is the bridge between thinking and
acting
79
EXERCISE 1
  • As a group spend 15 minutes answering the
    following two questions
  • What have you learned in this MSc in AT so far?
  • What have you achieved on this MSc in AT so far?

80
How do you define a Profession?
81
Profession
  • "A profession is a disciplined group of
    individuals who adhere to ethical standards and
    who hold themselves out as,
  • are accepted by the public as possessing special
    knowledge and skills in a widely recognised body
    of learning derived from research, education and
    training at a high level
  • who apply this knowledge and exercise these
    skills in the interest of others.
  • It is inherent in the definition of a profession
    that a code of ethics governs the activities of
    each profession.

82
Practice
  • Such codes require behaviour and practice beyond
    the personal moral obligations of an individual.
  • They define and demand high standards of
    behaviour in respect to the services provided to
    the public and in dealing with professional
    colleagues.
  • Further, these codes are enforced by the
    profession and are acknowledged and accepted by
    the community."
  •  

83
Code of Ethics
  • has two aspects 
  • The content comprising the requirements, the
    rules, principles, ideals etc
  • The commitment of the members of the occupation
    or organisation to conform to, and otherwise
    uphold, these rules and ideals

84
Codes of Ethics
  • Code Principles
  • The most obvious way to recognise professional
    competencies is by a formal qualification
    together with peer recognition or references and
    membership of a professional organisation.A
    professional organisations standards for entry
    should also include a requirement to adhere to an
    enforceable Code of Ethics, the requirement to
    commit to measurable ongoing professional
    development and sanctions for conduct that falls
    below the required standards.

http//www.professions.com.au/Homepage.html
85
RESNA STANDARDS OF PRACTICE for Assistive
Technology Professionals www.resna.org
Standards of Practice set forth fundamental
conceptsand rules considered essential to
promote the highest ethical standards among
individuals who evaluate, assess the need for,
recommend, or provide assistive technology.
86

RESNA STANDARDS OF PRACTICE for Assistive
Technology Professionals www.resna.org
  • Hold paramount the welfare of persons served
    professionally.
  • Practice only in their area(s) of competence and
    maintain high standards.
  • Maintain the confidentiality of privileged
    information.
  • Engage in no conduct that constitutes a conflict
    of interest or that adversely reflects on the
    association and, more broadly, on professional
    practice.
  • Seek deserved and reasonable remuneration for
    services.

87
RESNA Standards cont
  • Inform and educate the public on
    rehabilitation/assistive technology and its
    applications.
  • Issue public statements in an objective and
    truthful manner.
  • Comply with the laws and policies that guide
    professional practice.

88
Ethics
  • ethics as 'a way of living ones life in pursuit
    of excellence.
  • Ethics is not just a private matter.  It has its
    public and private sidesbut it cannot be just
    personal.' 
  • Ethics is not mere conformity to rules.' Acting
    in a way which breaches the law of the land can
    certainly not be taken to be done in the name of
    ethics.Professionals have an ethical obligation
    to act in the best interest of their
    client/patient. Ethical duties also prohibit
    professionals from acting to promote their own
    self interest. 

89
Five Core Concepts in Ethics
  • Nonmaleficencenot causing harm to others
  • Beneficence..doing good for others
  • Autonomy.freedom of action choice
  • Fidelity ..faithful, honest behaviour
  • Justicefairness

90
Ethical GEthical Guidance for Research with
People with Disabilities uidance for Research
with People with Disabilities
Ethical Guidance for Research with People with
Disabilities
91
Core Values for Research with People with
Disabilities
Promote the wellbeing of those participating,
involved in or affected by the research process
Respect the dignity, autonomy,
equality diversity of all
those involved in the research process
92
Guidance for Good Practice in Research with
People with Disabilities
  • Guidance is provided on six key principles
  • Promoting the inclusion and participation of
    people with disabilities in research and research
    dissemination
  • Ensuring that research is accessible to people
    with disabilities
  • Avoiding harm to research participants
  • Ensuring voluntary and informed consent before
    participation in research
  • Understanding and fulfilling relevant legal
    responsibilities
  • Maintaining the highest professional research
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