Bathe Yourself in Lan

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Bathe Yourself in Lan
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by Cindy Gallois Jeff Pittam
dean actor
work bath weeds blue red sauce black christmas
neck floor desk was it window show move tool
shopping it select major market statues tower
falls stone tolerance journal serenade your
b q g d u
exis qmspt
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Helen Chenery
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The night of the stroke

• I left a meeting at UQ and phoned Jeff
• He couldnt speak, I am not able
• I rang a friend who helped get him into hospital
• Next day, Jeff had another stroke and surgery
• I knew we had a big problem
• Jeff couldnt read or write at all
• His speech was fluent, but with little content
• I thought he could understand everything I was
  wrong!
• I started making phone calls
• To deal with Jeffs and my jobs
• To find a speech therapist

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The first summer

• I sat in on Jeffs therapy sessions, and learned
  what Helen did
• I invited myself, repeated at home we worked
  every day
• Jeff started shopping
• His list was pictures and copied words
• We could only buy what we already had

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• Jeff had goals learn names from photos
• We lived one day at a time
• We laughed at language Whats your wifes
  name?
• I learned not to guess Jeffs meaning

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Queen Elizabeth II Jubilee Hospital Melissa
was, at that time, a senior speech pathologist at
that hospital.
Aphasia Rehabilitation Cognitive
Neuropsychology approach
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Organisation Structure

• Evidence-based
• Easiest to hardest
• Practise, Practise, Practise
• Eclectic

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Acquired Brain Injury Outreach Service (ABIOS)

• a specialist community-based rehabilitation
  service

• to re-integrate into the community

• to develop other interests

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Life in 1999 the new way

• Jeff wanted to get back to normal
• I kept sitting in on therapy sessions, we
  practised
• Melissa gave us LOTS of homework
• I learned to wait for Jeff until he could do
  tasks again
• We laughed, learned what you can get away with
• Sometimes we got angry
• Rehabilitation is frustrating, intense, expensive
• You have to counteract negative messages
• Doc Dont flog yourself youll never be
  normal again
• Jeff If no one will help me, I have to do it
  myself
• Cindy 90 give up, 10 get mad not a good
  outcome

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Life on the edge

• Going to a conference
• July Linda Worralls
• Going to Cairns on holiday
• September
• Voting in the Republic referendum
• Grey or buff yes or no?
• Celebrating the millennium
• Not following the rules

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The Courses
Internet Training Package (Jennifer Egan Linda
Worrall, University of Queensland) Living a
Healthy Life with Chronic Conditions (Kate Lorig,
David Sobel Virginia González, Queensland
Health) Volunteering Orientation Courses (The
four courses of Queen Elizabeth 11 Jubilee
Hospital) STEPS (Skills To Enable People
communitieS) (Acquired Brain Injury Outreach
Service - ABIOS, Queensland Health)
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The Aphasia Survivors Creed
1. One day at a time 2. Listen 3. Use your
non-verbals 4. Go out on your own! 5. Take
small risks on your own! 6. Use every device
you can 7. This has to be your new job
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The Future The potential to
develop an aphasia network To update and expand
the aphasia directory The aphasia morning tea
groups To streamline the stroke support visitor
role
Tania Hobson
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Six lessons from ten years

• Aphasia touches everything you do
• You have a very big problem to solve
• Every journey is different
• You are a team, over years
• One is the worker and language learner
• One is the therapist and teacher
• One is the helper and motivational coach
• Never let go of language its never too late
• Laugh, and take one day at a time
• Take some risks dont follow the rules
• Bathe yourself in language talk, read, write