A National Technical Assistance System for Early Hearing Detection and Intervention Programs in the

1
A National Technical Assistance System for Early
Hearing Detection and Intervention Programs in
the United States
2
Number of Hospitals Doing Universal Newborn
Hearing Screening
Number of Programs
3
3
Status of Universal Newborn Hearing Screening in
the United States
.
Percentage of Births Screened
.
90
51 - 90
21 - 50
1 - 20
4
Tremendous Progress During the Last Decade

• Less than 30 with UNHS in 1993 compared with
  almost 1400 today
• Almost 2 million babies are screened every year
  prior to discharge
• 32 states have passed newborn hearing screening
  legislation
• The federal government is providing financial
  support to encourage expansion

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The Other Side of the Coin . . . .

• 2,800 hospitals are not yet screening for hearing
  loss
• More than 2 million babies are NOT screened
  every year prior to discharge
• Most states which have passed legislation have
  not yet implemented it
• Only 9 states (accounting for 7 of the births)
  have implemented reasonable state wide programs

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Status of EHDI Programs in the United States

• Universal Newborn Hearing Screening
• Effective Tracking and Follow-up as a part of the
  Public Health System
• Appropriate and Timely Diagnosis of the Hearing
  Loss
• Appropriate and Timely Early Intervention
  Services
• A Medical Home for all Newborns
• Culturally Competent Family Support
• Elimination of geographic and financial barriers
  to service access

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Efforts by the Federal Government toPromote
Early Identification of Hearing Loss

• Federal funding for research and program
  development
• NIH Consensus Development Conference in 1993
• Consortium for Universal Newborn Hearing
  Screening funded in 1993
• Marion Downs National Center for Infant Hearing
  Established in 1996
• National EHDI Technical Assistance System
  Established in 2000

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Goal of the National EHDI Technical Assistance
System

• Every child born with a hearing loss will be
  identified before 3 months of age and provided
  with timely and appropriate early intervention
  before 6 months of age
• Every family of an infant with hearing loss will
  receive culturally competent family support as
  desired
• All newborns will have a medical home
• State will have tracking and data management
  systems which are linked to appropriate public
  health information systems

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National EHDI Technical Assistance System

• Web site (www.infanthearing.org)
• Telephone Technical Assistance
• Distribution of printed materials
• Training Workshops

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National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of ten
  geographic regions

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Figure 2. National EHDI Assistance Network
indicates the locations of MCHB Regional
Offices which will collaborate with NCHAM.
Region VIII (91 currently born in UNHS
hospitals) Terry Foust
Region II (16 currently born in UNHS
hospitals) Beth Prieve
Region V (26 currently born in UNHS
hospitals) Karen Munoz
Puerto Rico Virgin Islands
I
Region I (38 currently born in UNHS
hospitals) Antonia Maxon
VIII
II
X
Region X (21 currently born in UNHS
hospitals) Curt Whitcomb
V
III
VII
Region III (49 currently born in UNHS
hospitals) Sean Kastetter
IX
IV
VI
-
Guam, American Samoa, Marshall Islands,
Palau, No. Mariana Islands, Fed. Micronesia
Region IX (23 currently born in UNHS
hospitals) Randi Winston Yusnita Weirather
Region IV (46 currently born in UNHS
hospitals) Faye McCollister
Region VI (38 currently born in UNHS
hospitals) Karen Ditty Patti Martin
Region VII (33 currently born in UNHS
hospitals) Les Schmeltz

experience and expertise of Network members
described briefly on Table 1.
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National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of the MCHB
  Regions
• Annual National EHDI Conference

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National EHDI Technical Assistance System
(continued)

• EHDI Network members located in each of the MCHB
  Regions
• Annual National EHDI Conference
• Collaboration with Other Groups and Agencies

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National EHDI Technical Assistance System
(continued)
Collaboration with Other Groups and Agencies

• Groups actively promoting and assisting with EHDI
  activities
• AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC
• Relevant groups whose main focus is elsewhere
• MCHB Regional Staff, SKI-HI, NECTAS, Early Head
  Start, 0-3, Family Voices, NCCC, KidsNET, STC,
  AMCHP, AHEC

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Some babies are born listeners . . .
Others need your help!
www.infanthearing.org