Title: Asociacin Ayuda al Paciente con Inmunodeficiencias Primarias AAPIDP Asociation for the Help of Patie
1Asociación Ayuda al Paciente con
Inmunodeficiencias Primarias (AAPIDP)Asociation
for the Help of Patients with Primary Immune
Deficiencies
www.aapidp.com.ar info_at_aapidp.com.ar
2The AAPIDP Journey
- Our experience in working with IPOPI
- Activities developed during these years
3The AAPIDP Journey2005 First Steps
- Legal Establishment
- First National PID Meeting
- PID Patients Workshops
- Design and Distribution of Educational Material
4The AAPIDP Journey2005 IPOPI Welcomes Us
- AAPIDP First Latin American member of IPOPI
- IPOPI provided constant support, guidance,
information based in solid expertise - IPOPIs International Approach helped AAPIDP
regardless of Countries or Nationalities
5The AAPIDP Journey2006 Strengthening Foundations
- Sponsorship of different legislative projects
- Participation in International Biannual Congress
for PID in Budapest
6The AAPIDP Journey2006 Strengthening
Foundations (cont.)
- Alliance with GEISER Foundation
- Active Participation in Argentinas National
Entity Against Discrimination (INADI)
7The AAPIDP Journey2007 Spreading the Word
- Roberta becomes member of the Board of IPOPI
- Graphic Campaign in Buenos Aires Early
Awareness is a good beginning - Alliance with RAMPA
8The AAPIDP Journey2007 Spreading the Word
(cont.)
- Participation in serveral Workshops
- Contribution to Focus on Immunodeficiencies
publication
9The AAPIDP Journey2008 From Invisibility to
Inclussion
- First Latin American Congress for Rare Diseases,
Buenos Aires, Argentina - AAPIDP presented about Accessibility for PID
Patients
10The AAPIDP Journey2008 From Invisibility to
Inclussion (cont.)
- Three legislative projects under study
- Joint work with Argentinas Ministry of Health
- Organization of video conferences about PIDs all
over the Country - Participation in television interviews and radio
programs - Argentina has been chosen by ICORD as a host
country for their World Meeting in 2010
11The AAPIDP Journey2008 From Invisibility to
Inclussion (cont.)
- Joint Event with otherAssociations in Buenos
Aires Zoo
12The AAPIDP JourneyStepping into the Future
- Improvement of access to treatments
- Promotion of Early Diagnosis
- Robustness of Relationship with the Industry
- Close work with IPOPI to become a Strong
Organization - Future event with IPOPI 2009 Latin American
Congress of PID to be held in Colombia, organized
together with LASID
13 Muchas Gracias !!!
14Contact Information
Web Address www.aapidp.com.arE-Mail
info_at_aapidp.com.ar
15(No Transcript)