Asociacin Ayuda al Paciente con Inmunodeficiencias Primarias AAPIDP Asociation for the Help of Patie - PowerPoint PPT Presentation

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Asociacin Ayuda al Paciente con Inmunodeficiencias Primarias AAPIDP Asociation for the Help of Patie

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Title: Asociacin Ayuda al Paciente con Inmunodeficiencias Primarias AAPIDP Asociation for the Help of Patie


1
Asociación Ayuda al Paciente con
Inmunodeficiencias Primarias (AAPIDP)Asociation
for the Help of Patients with Primary Immune
Deficiencies
  • Roberta Pena
  • President

www.aapidp.com.ar info_at_aapidp.com.ar
2
The AAPIDP Journey
  • Our experience in working with IPOPI
  • Activities developed during these years

3
The AAPIDP Journey2005 First Steps
  • Legal Establishment
  • First National PID Meeting
  • PID Patients Workshops
  • Design and Distribution of Educational Material

4
The AAPIDP Journey2005 IPOPI Welcomes Us
  • AAPIDP First Latin American member of IPOPI
  • IPOPI provided constant support, guidance,
    information based in solid expertise
  • IPOPIs International Approach helped AAPIDP
    regardless of Countries or Nationalities

5
The AAPIDP Journey2006 Strengthening Foundations
  • Sponsorship of different legislative projects
  • Participation in International Biannual Congress
    for PID in Budapest

6
The AAPIDP Journey2006 Strengthening
Foundations (cont.)
  • Alliance with GEISER Foundation
  • Active Participation in Argentinas National
    Entity Against Discrimination (INADI)

7
The AAPIDP Journey2007 Spreading the Word
  • Roberta becomes member of the Board of IPOPI
  • Graphic Campaign in Buenos Aires Early
    Awareness is a good beginning
  • Alliance with RAMPA

8
The AAPIDP Journey2007 Spreading the Word
(cont.)
  • Participation in serveral Workshops
  • Contribution to Focus on Immunodeficiencies
    publication

9
The AAPIDP Journey2008 From Invisibility to
Inclussion
  • First Latin American Congress for Rare Diseases,
    Buenos Aires, Argentina
  • AAPIDP presented about Accessibility for PID
    Patients

10
The AAPIDP Journey2008 From Invisibility to
Inclussion (cont.)
  • Three legislative projects under study
  • Joint work with Argentinas Ministry of Health
  • Organization of video conferences about PIDs all
    over the Country
  • Participation in television interviews and radio
    programs
  • Argentina has been chosen by ICORD as a host
    country for their World Meeting in 2010

11
The AAPIDP Journey2008 From Invisibility to
Inclussion (cont.)
  • Joint Event with otherAssociations in Buenos
    Aires Zoo

12
The AAPIDP JourneyStepping into the Future
  • Improvement of access to treatments
  • Promotion of Early Diagnosis
  • Robustness of Relationship with the Industry
  • Close work with IPOPI to become a Strong
    Organization
  • Future event with IPOPI 2009 Latin American
    Congress of PID to be held in Colombia, organized
    together with LASID

13
Muchas Gracias !!!
14
Contact Information
Web Address www.aapidp.com.arE-Mail
info_at_aapidp.com.ar
15
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