Roles of Advocates in Research, Barriers to Collaboration, and Involving Advocates in Activities at

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Roles of Advocates in Research, Barriers to
Collaboration, and Involving Advocates in
Activities at CDCs Division of Violence
PreventionKathleen Basile, Ph.D Division of
Violence Prevention
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In this Presentation

• Discuss the suggested roles of advocates in
  research and the barriers to collaboration
• Discuss some of the ways CDCs Division of
  Violence Prevention is trying to create stronger
  linkages with advocates

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Suggested Roles of Advocates in Research

• Developing Research Questions
• inviting advocates to national research agenda
  meetings
• Reviewing Grant Proposals
• researchers can benefit from advocates
  perspectives

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Suggested Roles of Advocates, continued

• Inclusion on Institutional Review Boards (IRBs)
• can help ensure the ethical and safety standards
  for research participants
• Defining Relevant Outcomes
• outcomes of interest are sometimes different for
  advocates and researchers

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Suggested Roles of Advocates, continued

• Serving as Data Collectors
• can facilitate access to research participants
• Being Treated as Experts
• must be respected for the knowledge and expertise
  they bring to the subject
• Guiding Practice and Policy
• advocates are usually better versed in policy
  issues and can help improve policy

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Barriers to Successful Collaboration

• Trust
• lack of shared language, lack of shared motives
  for the research, differential levels of
  status/prestige
• Time
• advocates do not usually have time allotted for
  collaboration in research.

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Barriers to Successful Collaboration, continued

• Money
• advocates tend to have less money
• Confidentiality
• advocates concerns for participants
• Unknown Outcomes
• Advocates concerns with how research will be
  used

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What has DVP done to enhance collaboration?

• Funded the National Violence Against Women
  Prevention Research Center (NVAWPRC) in 1998
• Involved Advocates on Expert Panels and Review
  Panels

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What has DVP done, continued

• Involved Advocates as Consultants to Projects
• Input from Advocates/Practitioners on NCIPC
  Research Agenda
• Sponsored Practitioner Meetings

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What has DVP done, continued

• Sponsored Conferences that Bring Together
  Advocates/Practitioners and Researchers
• Advocate/Practitioner Voice on the NCIPC Advisory
  Committee