Status and perspective of personal health informatics in Denmark

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Status and perspective of personal health
informatics in Denmark

• Mads Ronald Dahl
• PhD, Assistant Professor
• Institute of Public Health
• Section for Health Informatics
• University of Aarhus
• Denmark
• MD_at_HI.AU.DK
• WWW.HI.AU.DK

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Agenda

• Introduction
• History and status
• Example on our research
• IEEE workshop input

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Denmark (2006) 14 counties 270 local
governments 5.430.000 people 43.560 km2 No. 7
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Danish EHR History

• 1967 System Control data 3300
• in a few years there will be no paper
  journals..the data will be digital and assembled
  in a fraction of a second
• First national strategy 1996-2000
• 13 regional projects and 1 EHR observatory
• Denmark wants a EHR
• A lot of technical, system, bits and byte talk
• Politics

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Danish EHR History

• Second national strategy 2000-2002
• Focus of EHR in the hospital sector
• Focus on data standard
• What did we see and hear then?

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www.epj.dk Crete, October 11, 2002
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www.epj.dk Crete, October 11, 2002
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Initiatives of the strategy
How did we communicate and evaluate?
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Danish EHR History

• Third national strategy 2003-2007
• Focus on EHR in the primary health sector
• and continuous and interconnected healthcare
  system

• .. seamless data exchange among parties in
• the health care service is of vital importance.

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Strategy 2003-2007 vision

• The pivotal point is the patients influence on
  his own treatment and his involvement in
  self-care.
• .. citizen must be able to receive and to give
  relevant and personally customized information.

http//www.sst.dk/publ/Publ2004/National_IT_strate
gy.pdf pp 17
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Initiatives of the strategy
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Political vision

• Relevant and personally customized information.
• All Danes have an E-box
• Digital signature
• 720.000 issued since 2003
• Valid 2 years
• I have 3
• 20 of Danes (maybe only 5 10 )
• Maybe 1-2 use for HI

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Danish EHR 2005-2006

• More than 28 of Hospital beds
• 50 of the hospitals has a EHR system
• (EHR evaluation report 2005)
• 99 of general practitioner use IT

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The regional reform in Denmark
1.1.2007 From 14 counties to 5 regions From 270
to 98 local governments
http//www.kl.dk/372656/
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Full stop

• The Danish health minister (Lars Løkke Rasmussen)
  make a full stop.
• He wants a central control of the EHR
  implementation
• One EHR solution for the healthcare sector
• High ambitions
• Bad result
• Who is to blame?

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Danish focus

• Diabetes patients
• Dermatology
• Wound healing topics
• E-mail consultation with general practitioner
• Medicine profile (sundhed.dk)
• Pharmacists
• Donor register
• One EHR solution

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IEEE 2407 vision

• Healthcare Information for all by 2015
• Provide a standard of
• Consumer tools to stay healthy
• Consumer tools to improve health
• Improve healthcare information in developing
  countries

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Scientific questions

• What do we mean by All?
• How do we stay healthy?
• What improves our health?
• How do we communicate with potential consumers of
  health informatics?

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Who do we mean by All?

• Above 60 years old
• Vast population
• 1.2 mill (21). 1
• Heterogeneous
• Income, health, social, mobility. 2
• Gets ill
• 42 of all admissions. 3
• 1 Population statistics January 2006
• 2 Audun-Olsen, 200147
• 3 Danish statistics, SYG1A and UD1 2004-2006

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Our research

• The study
• cross-sectional survey
• 2000 Danes over 60 years of age
• Postal questionnaire made for the purpose.
• 54 responded

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Do the elderly use the internet for information
about health and disease?

• 45 used the internet
• 20 searched for health information
• 3 searched for health information before
  consultation with a doctor
• Age is a factor
• Gender is not a factor
• Attitude towards technology is a factor
• Economy?
• Education level?
• State of health?

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ICT in developing country's
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Informatics to the test
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Literacy level
Who can we give tools of health
informatics? Example information on diabetes
(thought experiment)
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IEEE 2407 working group

• Should discuss and define
• Potential and relevant consumers
• Level of information complexity
• Personalized informatics
• Right information
• to the right person
• at the right time
• Usability of distribution technology
• Enactment theory

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Professor Balthazar
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Status and perspective of personal health
informatics in Denmark

• Mads Ronald Dahl
• M.Sc, PhD, Assistant Professor
• Institute of Public Health
• Section for Health Informatics
• University of Aarhus
• Denmark
• MD_at_HI.AU.DK
• WWW.HI.AU.DK

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