The boy who flunked hospicetwice

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The boy who flunked hospicetwice!

• I dont see why I have to lose all of these
  services just because I want to live.

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Comprehensive Pediatric Palliative Care Benefit

• Existing state plan services
• February 14, 2007 - California State Department
  of Health Care Services issued pediatric
  palliative care numbered letter to all counties
  in California.
• Hospice eligibility
• Waiver removes access barriers. Nick Snow Act
  signed into law on September 19, 2007. Requires
  waiver submission by January 1, 2008

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Preparing for the Waiver

• We dont know what we dont know
• until we dont know it.
• What do you know?
• Sharing what we do know
• Supporting what is working
• Training - sharing knowledge and skills
• Communication - local, regional, state
• Collaboration - working together for common goal

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Benefit Education Support and TrainingBEST in
Pediatrics
Funding from the California Healthcare Foundation
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Goal of BEST

• Increase access to palliative care for children
  in California through successful utilization of
  the components of the palliative care benefit
• Waiver (new/added services)
• Numbered letters (existing state-plan services)

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BEST Rationale

• A hospice and palliative care benefit for
  children is meaningless unless it can be used in
  the real world.
• Caring for children with life-threatening
  conditions who will likely die is a sensitive and
  specialized endeavor. It requires unique
  collaborations, support, training and education.

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What is BEST?

• Regional collaboration
• Northern California Collaborative for Pediatric
  Palliative Care
• Central California Partnership for Children
• Southern California Pediatric Palliative Care
  Network
• Share what you know. Sign up at
• www.childrenshospice.org

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What is BEST?

• State and Federal Collaboration
• California State Department of Healthcare
  Services DHCS
• California Childrens Services CCS (county,
  regional, state)
• State Legislature
• Centers for Medicare and Medicaid (Federal CMS)
• Other State Pediatric Palliative Care Programs
• National and Federal Initiatives
• www.dhcs.ca.gov

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What is BEST?

• Education
• Initiative for Pediatric Palliative Care (IPPC)
• End of Life Nursing Education Consortium (ELNEC)
• CHiPPS - National Hospice and Palliative Care
  Organization
• Regional meetings and trainings
• National and State meetings and trainings
• Sign up to get info at www.childrenshospice.org

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What is BEST?

• Support and Training
• Regional Education Partners
• an experienced team of experts from community,
• hospital and CCS program available for practical
  
• and clinical and policy support
• parent, physician, nurse, social worker,
  chaplain,
• CCS staff, child-life specialist, volunteer,
• expressive therapists, etc.
• Contact Gay Walker gay.a.walker_at_provide
  nce.org

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News_at_childrenshospice.orggay_at_childrenshospice.org