Informal Caregivers

1
Informal Caregivers
Results of 2002 Survey
Presentation at the 2003 Outreach/ Case Managers
Conference
Richard Rathge, Ph.D.
North Dakota State Data Center
March 28, 2003
2
Survey Results to be Discussed

• Methodology
• Characteristics of Caregiving
• Caregiving Difficulties/Concerns
• Services Available
• Demographics

3
Methodological Design

• Random Survey of Households
• - to calculate prevalence rates
• stratified random sample (N10,000)
• 6.5 of households (HH) had informal caregiver
• 257,152 HH in ND, thus est. 16,715 caregiver HH
• -grandparents (18 of informal est. 3,018)
• census 2,547
• 2. Non-probability Sample of Caregivers
• Non-reservation - informal (N732)
• - grandparent (N90)
• Reservation - informal (N116)
• - grandparent (N90)
• Total surveys 1,198 or 7 of all est. caregiver
  HH

4
Definition
An informal caregiver provides needed care on a
long term basis to a care recipient, who is most
often a relative, friend, or neighbor. This
does not include caregivers who provide care on
a voluntary basis through an organization (e.g.,
church) or those who provide care as a career.
Long-term care often involves assisting the care
receiver with personal hygiene, getting dressed,
using the bathroom or household tasks such a
preparing meals. It does not include recovery
from an injury after which the recipient no
longer needs care.
Limited to those at least 60 years of age
5
Distribution of Caregiver Survey Data
6
Survey Results to be Discussed

• Methodology
• Characteristics of Caregiving
• Caregiving Difficulties/Concerns
• Services Available
• Demographics

7
Relationship of Care Recipient
8
Reasons Care Recipient Needs Services
9
Where Care Recipient Receives Services
10
Amount of Care Required
11
Distance Caregiver Was From Care Recipient If Not
Cared For in Caregivers Home
12
Average Amount of Time Spent Caregiving (per week)
13
Length of Time Spent Caregiving
14
Survey Results to be Discussed

• Methodology
• Characteristics of Caregiving
• Caregiving Difficulties/Concerns
• Services Available
• Demographics

15
Difficulties Experienced by Caregivers Mean 1not
at all serious 5very serious
16
Concerns Associated with Caregiving Mean 1not at
all serious 5very serious
17
Whether there were Other Informal Caregiver Who
Provided Care
18
Reasons Why Other Informal Caregivers Did Not
Provide Support
19
Survey Results to be Discussed

• Methodology
• Characteristics of Caregiving
• Caregiving Difficulties/Concerns
• Services Available
• Demographics

20
Services Available to Care Recipients Mean 1not
good at all 5very good
21
Services Available to Caregiver Mean 1not good
at all 5very good
22
Survey Results to be Discussed

• Methodology
• Characteristics of Caregiving
• Caregiving Difficulties/Concerns
• Services Available
• Demographics

23
Average Money Spent within the Last Year Caring
for the Recipient
24
Caregivers Age
25
Caregivers Marital Status
26
Caregivers Highest Level of Education
27
Caregivers Employment Status
28
Caregivers Household Income in 2001 Before taxes
29
Caregivers Gender
Caregivers Place of Residence
30
NDSU IACC 424 Fargo, ND 58105
http//www.ndsu.nodak.edu/sdc