Youve Got a Diagnosis Now What

1
Youve Got a Diagnosis !!!Now What ???

• A survival guide for physicians to offer their
  newly diagnosed celiac patients

2
Diet and Nutrition

• All newly diagnosed CD and DH patients should be
  referred to a Registered Dietitian skilled in
  gluten-free dietary requirements
• Dietary counseling will assure optimal nutrient
  intake on the GF diet
• Copies of lab reports should be included with the
  referral to properly assess and address any
  nutritional deficiencies

3
Diet and Nutrition

• Weight management guidance may be necessary to
  address under and over weight concerns for the
  newly diagnosed.
• Referral information is available through the
  Clinical Nutrition Departments of local hospitals
  and community health centres.

4
Community Support

• All patients newly diagnosed with Celiac Disease
  and Dermatitis Herpetiformis should be encouraged
  to join a local or regional chapter of the
  Canadian Celiac Assoc.

5
Canadian Celiac Association

• Mission Statement
• The Canadian Celiac Association is a national
  organization dedicated to providing service and
  support to persons with celiac disease and
  dermatitis herpetiformis through programs of
  awareness, advocacy, education and research.

6
The Canadian Celiac Association offers
support to members

• Administration and Membership coordination
• Printed Materials available to all members and
  chapters across Canada
• Support to each regional chapter
• Newsletters and Bulletins
• Web Page Service and Information
• Annual National Conferences
• Professional Advisory Board
• Research Initiatives

7
Regional Chapters

• 27 Local Chapters provide programs and services
  to over 7000 members nation-wide

• Victoria Vancouver
• Kelowna Kamloops
• Calgary Edmonton
• Regina Saskatoon
• Manitoba Belleville/Quinte
• Hamilton Kingston
• Kitchener/Waterloo London
• Ottawa Peterborough
• St. Catharines Sudbury
• Thunder Bay Toronto
• Quebec Fredericton
• Moncton Saint John
• Halifax Charlottetown
• St. Johns

8
Membership Benefits at the local and regional
level

• New Member Kits
• Pocket Dictionary
• Newsletters National and Regional
• Peer Counseling
• Anti-panic Support Groups
• Parent Support Groups
• Kids Camps
• Cooking Demonstrations
• Social Events with an abundance of GF foods

9
Awareness

• International Walk for Celiac Disease
• Cycling for Celiacs
• (Both these events demonstrate the high level of
  physical fitness that can be achieved by
  individuals with CD.)
• Research Publications
• Awareness Month with Public Advertising and
  Events
• Gluten-Free Producers and Suppliers

10
Advocacy

• Lobbying for better access to screening for
  persons at risk for CD 1st and 2nd degree
  relatives, people with undifferentiated abdominal
  pain, people with known associated conditions.
• Participating with the Federal Government for
  improved Food Labeling Laws
• Identifying and Developing more GF foods
• Partnerships and Sponsorships with Food Industry
  Corporations

11
Education

• Brochures available for Medical and Public Venues
• National and Regional Conferences
• Education Programs for Colleges and Technical
  Schools
• Education Programs for Physicians
• Education Programs for Food Service Providers
• Education Programs for Residential Care
  Facilities
• Support Education for Registered Dietitians
• National and Regional Websites
• 
  www.celiac.ca

12
Research

• Summer University Studentships
• Local, National and International Research
  Projects including
• Screening of first degree relatives
• Prevalence studies
• Osteoporosis investigations
• Canadian celiac health study
• Oats study