What do Families of CSHCN Need and Want to Know about Health Plans and Providers Nora Wells, Family

1
Mission

• A national grassroots network of families and
  friends
• Advocates for health care services that are
  family-centered, community-based, comprehensive,
  coordinated and culturally competent for all
  children and youth with special health care
  needs
• Promotes the inclusion of all families as
  decision makers at all levels of health care and
• Supports essential partnerships between families
  and professionals.

2
FV Core Principles

• Partnership strong family- professional
  partnerships improve decision-making, enhance
  outcomes, and assure quality
• Accountability what families
• practice every day cost
• effectiveness without compromising
• quality, in the delivery of services.

3
One Heart, Many Voices

• National Projects
• Family to Family Health Information Centers
• Partnership for Information and Communication
  Project
• Bright Futures for Families
• Block Grant Trainings
• Health Care Financing
• Employee Benefits Study
• Policy Development and Advocacy
• Outreach and Cultural Competence
• Kids As Self Advocates (KASA) Project
• Your Voice Counts! National Survey
• Families in Program and Policy
• National CSHCN Data Center Supporting States
  and Empowering Consumers
• Regional Coordinators, State Coordinators, State
  Chapters
• And many more check out our website
  www.familyvoices.org

4
Achieving Success for All CYSHCN

• An agenda for all families
• Will succeed only if all players are fully
  engaged
• Will improve quality of services desperately
  needed by families
• Families have important roles to play in
  promoting, supporting, and monitoring
• Full partnership at every level