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Living with Chronic Illness

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How do Patients Understand their Illness? ... A frenzy of thinking. What is it? How long is it going to last? How did I get it? ... – PowerPoint PPT presentation

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Title: Living with Chronic Illness


1
Living with Chronic Illness
  • Sara Joice
  • Health Psychology Course Level 1
  • 14.11.05

2
How do Patients Understand their Illness? Common
Sense Models of Illness and their Effects on
their Health
  • Sara Joice
  • Health Psychology Course Level 1 21.11.05

3
Aims
  • To observe examples of patients with a chronic
    illness
  • To collect information from you to illustrate
    next weeks lecture.
  • To discuss definitions of chronic illness
  • To give examples of chronic illness
  • To raise your awareness of what it is like to
    live with a chronic illness
  • To introduce a common sense model

4
Lecture Plan
  • A video
  • A questionnaire
  • A defining chronic illness
  • Types of chronic illnesses
  • Living with chronic illnesses
  • Introduce the common sense model
  • Summary

5
Questionnaire
  • Two sides
  • When you answer think of David
  • Put in your own responses not your next door
    neighbours - this is not a test there are no
    right or wrong responses!
  • Stick with your first response
  • When you have finished we will pass them to the
    end of the row when I say!!!

6
Chronic
  • Derives from Greek word chronos which means
    time
  • Chronikos during a long period of time

7
Illness
  • Disease
  • Illness
  • Sickness
  • Medicine
  • Psychology
  • Sociology

All reflect physiological dysfunction
8
Chronic illness
  • Duration
  • Severity of functional deviation
  • Use of health care services
  • No accepted definition of chronic illness

9
Examples of chronic conditions
  • Cardiovascular disease e.g. hypertension, stroke
  • Respiratory disease, e.g. asthma
  • Neuromuscular diseases e.g. motor neurone disease
  • Obesity
  • Chronic fatigue syndrome
  • Hormonal abnormalities e.g. Diabetes, Addisons
    Disease
  • Arthritis
  • Cancer

10
Global perspective
  • Chronic diseases are the major cause of death and
    disability world wide
  • 80 cases of coronary heart disease, 90 of type
    2 diabetes cases and one third of cancers can be
    avoided by changing to a healthier lifestyle.

11
Individual perspective
  • can have a catastrophic impact on the
    individual, with a wide range of far reaching
    physical, psychological and social sequelae.
    Burton (2000)

12
Individual perspective
  • A range of physical/emotional experiences
  • A frenzy of thinking
  • What is it?
  • How long is it going to last?
  • How did I get it?
  • How will I write next weeks lecture?
  • What can I do to make it better?
  • Oh I want to cry I feel awful

13
Living with a chronic illness
  • Stroke is an acute event within a chronic
    condition
  • It results in another chronic condition of
    disability
  • In the words of Marie Johnston is disability a
    condition or a behaviour?

14
How did the stroke survivors describe the effects
of their stroke?
15
Time
  • David 14 months
  • John 2 years
  • Mary 2 years
  • Neil 4 years

16
Identity
  • David described his foot and ankle
  • John described how he could now walk up the
    stairs
  • Mary described that she was not as clear thinking
  • Neil had minimal movement in his right arm/hand

17
Consequence
  • David not walking - implications for bathing,
    working, playing with daughters
  • John not getting up the stairs - implications for
    daughters wedding
  • Mary lack of clear thinking - implications for
    safety
  • Neils right arm implications for driving

18
Control
  • David watched his daughter walk and thought he
    could do it too
  • John wanted to improve so he could walk his
    daughter down the aisle
  • Mary did not want to be helped she wanted to care
    for herself
  • Neil was independent he had adapted his car

19
Summarise the ways they described their condition
  • Thought about it in 4 different ways
  • There was an underlying emotional element
  • All identified what they wanted to achieve
  • All appeared to have a plan to promote their
    recovery
  • All had the ability to monitor their progress

20
Leventhals Self Regulation Model
21
Why try and understand?
  • Why is it that people with the same chronic
    condition respond differently to their illness?
  • What is it in those who respond in a positive
    manner that differentiate them from those who
    respond in a negative manner?

22
Summary
  • You have seen patients with a chronic illness
  • You have given me data to illustrate next weeks
    lecture.
  • You are aware there is no accepted definition of
    chronic illness
  • You are aware of some types of chronic illness
  • You have an insight into what it is to live with
    a chronic illness
  • You have seen a woolly version of the Common
    Sense Model of Self Regulation

23
  • End of part 1

24
References
  • Bury, M. (2001) Illness Narratives Fact or
    Fiction? Sociology of Health and Illness 23 263
    - 285
  • van den Bos, G.A.M. (1995) The Burden of Chronic
    Diseases in Terms of Disability, Use of Health
    Care and Healthy Life Expectancies. European
    Journal of public health 5 29 34
  • http//www.who.int/dietphysicalactivity/publicatio
    ns/facts/chronic/en/index.html
  • Leventhal, H., Meyer, D. Nerenz, D. (1980) The
    Common Sense of illness danger . In S.Rachman
    (ed) Contributions to Medical Psychology (Vol.
    II p 7 30) NewYork Permagon Press.
  • Cameron, L.D. Leventhal, H. (eds) (2003) The
    Regulation of Health and Illness Behaviour
    Routledge, London
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