The Breast Cancer Observatory: Innovation and care in the next 12 months

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The Breast Cancer ObservatoryInnovation and
care in the next 12 months

• Mrs. Stella KyriakidesPresident of Europa Donna
• Nicosia, Cyprus

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• National Implementation of the European
  Parliament breast cancer resolution of 2003 ED
  conducted a survey which showed low acceptance
  among member Fora. Our advocacy 2005 programmes
  aim to get European Parliamentarians (EU 25) to
  understand it and work on acceptance by national
  health ministers 2 expert meetings with EPGBC
  will be held this year and exhibit and reception
  in October

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• Establishment of screening programmes set up
  according to guidelines the above work is
  highlighting this need and is beginning to show
  results. (1st EPGBC meeting highlighted
  importance of screening according to guidelines,
  the 2nd will address cost to national
  governments)
• Establishment of specialist breast units ED to
  continue work with EUSOMA and the Commission to
  get guidelines accepted on a Europe-wide basis.
  ED to work with EUSOMA to roll out and refine
  accreditation process and then disseminate
  information on it, enabling European women to
  access state of the art breast services

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• Clinical trial committees advocates are now
  frequently asked to sit on committees we must
  now define the role of advocates on these
  committees to ensure their input is valued and
  taken into account in all the appropriate areas.
  This needs to be further encouraged.
• Establish new fora and maintain level of
  commitment in the current Fora.
• Training advocates through annual advocacy
  training course-this course is the cornerstone of
  building uo advocacy networks in the various
  counties.

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• ED 7th Pan-European conference this serves to
  bring together all members share concerns
  ensure that everyone undestands all the key
  lobbying issues etc. and the ten Pan European
  goals.
• Hold the young womans working group to
  understand needs and issues of this group, the
  special needs of young women, the first working
  group will be held in Milan in June 2005.

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• Raise awareness of treatment tailoring. The
  importance of ED in the projects such as TRANSBIG
• Delineate clear list of breast cancer patients
  rights-need to have a clear understanding of
  these rights