Family carer of dependent person Challenges and best practices in Spain

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Family carer of dependent person Challenges and
best practices in Spain

• Jesús Mª Rodrigo
• Executive Director
• CEAFA

COFACE Seminar Dependet persons in the European
Union Who cares their family carers? Sofía, 20
October 2009
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Alzheimer Disease

• 8 of people more than 65 years old is afected by
  dementia, but the disease is not exclusive of
  ageing
• In 2020, 7 million people afected in Spain. In
  2050, 100 millIon in the World
• Alzheimer Disease is the most frequently cause of
  dependence

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Alzheimer disease afects both who suffers
it, and their family carers
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The care in the family

• The attention is offered mainly in the familiar
  framewok and seccondary by programmes and public
  services
• The responsability of care fall on women, and
  particulary on single daughters
• The care generates a high economical, social,
  psychologycal impact for the carer and the hole
  family

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Positive effects of family care

• Dependent person may live in his usual frame, in
  known atmosphere and with closer people
• Prevent to put the dependent person in a
  residence, reducing public ressources
• Improve the quality of life of dependent person
  and of the rest of family, because familiar
  relationship is a warranty of an adeccuate
  attention

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• Consequences for
• family carer
• Personal
• Social
• Profesional
• Economics

• Colateral effects for family carer
• Physical alterations
• Psychological disorders
• Social disorders

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Gender of main carer
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Economic impact in the family
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Best practice in Spain
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The Asociations. A resource of comprehensive care

• The AFAS are private non-profit, legally
  constituted, who work in the field of action for
  the collective interests of those affected by
  Alzheimer's disease and their families.
• They conduct their activities primarily with
  volunteers, even though they have paid
  professionals, complementing efforts and
  functions

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• More than 280 associations spread across the
  Spanish geography, CEAFA integrated, providing,
  inter alia, the following specific services for
  all people affected by Alzheimer's disease

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Reception and Information
Social Care
Psychological Care
Advice
Training
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• Day Centers Cognitive stimulation for people
  suffering from Alzheimer managed by AFAS

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Another Good Practice
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Spanish Act of Dependency

• The Act aims to regulate the basic conditions
  guaranteeing equality in the exercise of
  subjective rights of citizenship in the promotion
  of personal autonomy and care for people in a
  dependent position (...) by creating a System for
  Autonomy and Care Unit, with the cooperation and
  participation of all government and ensuring the
  General State Administration a minimum of common
  rights for all citizens in any part of the
  Spanish State

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Thank you very much for your
attention
www.ceafa.es ceafa_at_ceafa.es 34 902 174 517