Olmstead, Advocacy, and Community

1
Olmstead, Advocacy, and Community

• The Modules for Transition-Aged Youth and Their
  Families

2
Families and Adult Service Systems
3
A Holistic Approach to the Olmstead Decision
4
(No Transcript)
5
Segregation vs. Inclusion
The Americans with Disabilities Act
6
The Olmstead Lois and ElaineDecision
Photos courtesy of Narcel G. Reedus, Georgia
Advocacy Office
7
One Persons Story
Get into politics as if your lives depend on it.
And it does. You can be a soldier of justice.
You can be a revolution of one. Justin
Dart
8
Nick Dupree and His Crusade

• Aging out of Medicaid16 hours of care to 2 hours
  under the adult program
• Nursing homeclosest one that could provide his
  needed level of care 195 miles away in LA
• Challenged by his grandmother, Nick began a two
  year campaign
• Wrote letters, raised public awareness of the
  situation
• Worked with state senator to develop and
  introduce legislation to eliminate age limit on
  services
• When bill defeated, he filed a lawsuit in federal
  court
• His efforts caught the attention of the folks at
  AIMM who along with their friends, families and
  allies, wrote hundreds of letters to President
  Bush, urging him to take action

9
Nick The Rest of the Story

• Days before his 21st birthday, Medicaid waiver
  program for 30 Alabamians approved
• I want people to think about the larger problem
  here. I plan to keep working on this for the rest
  of my life so that everyone can be safe and can
  be included in the communityand not locked in a
  faraway nursing home awaiting their death.
• http//nickscrusade.com/

10
Next Up

• Module 3
• Consumer Direction Taking Control

11
Module 4T Staying in the Community
12
Navigating Systems with the Wrong Map
13
Staying in the Community

• Even more possible now because of
• Olmstead Decision
• Guiding principles established by the ADA

14
A public entity shall administer services,
programs, and activities in the most integrated
setting appropriate to the needs of qualified
individuals with disabilities
Title II of the ADA
15
Jobs Job Training
16
Transportation
17
Community Participation
18
A Story About Risk Taking
19
Ticket to Work and Work Incentives Improvement Act

• Medicaid Buy-In
• Medicaid Infrastructure Grants
• Social Security Work Incentives
• Benefits Counseling or Benefits Planning
  Assistance Outreach Programs
• Ticket to Work and Self-Sufficiency
• Protection and Advocacy for Beneficiaries of
  Social Security
• New Freedom

20
Module 5 Medicaid Framework
Part I
Part II