Strengthening Consumer Involvement and LeaderShip SCILS Project

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Strengthening Consumer Involvement and LeaderShip
(SCILS) Project

• All Cooperative Agreements Meeting
• June 11-12, 2007
• Frank Beadle de Palomo, MA
• Center on AIDS Community Health
• Academy for Educational Development (AED)
• and
• Vanessa Johnson, JD
• National Association of People With AIDS (NAPWA)

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SCILS Project Goals

• Increase the capacity of planning council
  members, especially consumer members, to engage
  in complex decision-making in a changing
  environment and to remain on the cutting edge of
  care planning through skills building, technology
  transfer, and knowledge dissemination.
• Strengthen the leadership and planning skills of
  PLWH/consumers to increase their participation on
  HIV care planning bodies such as planning
  councils, consortia, CABs, and other advisory
  groups.

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Our Approach

• Designed and developed a one-day training for
  planning councils called CARE Act Planning in a
  Changing Environment.
• Designed and developed a 2½ day consumer
  leadership training called Leadership in Advocacy
  and Planning (LEAP) exclusively for PLWHA.
• Provide follow-up technical assistance to
  increase attainment of goals and utilization of
  newly acquired skills.
• Develop and manage a Listserv for consumers to
  share information, facilitate networking, and
  provide support.

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Care Act Planning Trainings
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CARE Act Planning TrainingsEvaluation of
Modules
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Care Act Planning Outcomes

• Retrospective four point Pre-test/Post-test
  design
• Significant increases across all eight knowledge
  areas.
• Significant increases across all six skill areas.

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CARE Act PlanningAbility and Intentions

• Following the training, I feel our planning
  council is better able to consider and
  incorporate changes in our decision-making and
  planning processes.
• Somewhat Agree 48 Strongly Agree 46
• Our planning council will improve our efforts,
  following the training, to plan in a changing
  environment.
• Somewhat Agree 44 Strongly Agree 48

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CARE Act Planning Satisfaction
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LEAP Training Curriculum

• History of the AIDS Movement and Ryan White
  Program
• Disclosure and Public Service
• Personal Inventory
• Overview of the Ryan White Program
• Consumer Opportunities for Involvement and the
  Benefits and Challenges
• The Basics of Data and How to Use it

• Needs Assessment
• Comprehensive Planning
• Priority Setting
• Local HIV/AIDS Epi
• Local Opportunities to Get Involved
• Personal Action Plan" development
• Evaluation
• Graduation

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LEAP Trainings
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LEAP Recruitment and Attendance
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LEAP Listserv

Over 71 of graduates report reading the
emails. At 3 months, about 80 report the
information is useful or informative by rating
it either 4 or 5 on a 5 point scale.
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LEAP Follow-up

• Conduct at 3 and 6 months
• Assess progress in achieving self-identified
  goals and steps, and use of the LEAP listserv.
• Assessment of progress on goals based on
  Transtheoretical Model of Behavior Change/Stages
  of Change pre-contemplation, contemplation,
  ready for action, action, and maintenance.
• Use to identify challenge areas and need for TA

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LEAP Follow-up Success
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Jackson LEAP 3 Month Follow-up
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Year 3 Workplan

• Plan and deliver 7 LEAP trainings
• Continue to provide TA and conduct 3 and 6 month
  follow-ups .
• Conduct evaluation activities and develop report
  for LEAP and CARE Act Planning trainings.

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Working as Partners with HAB

• LEAP training can be requested by DSS Project
  Officers, Grantees, Ryan White
  planning bodies, or PLWHA.
• The SCILS project works closely with our DTTA
  Project Officer to review requests and select
  appropriate sites.
• Recruitment for LEAP participants is enhanced
  through DSS Project Officers facilitating
  involvement of local Part A, B, C, and D
  grantees.