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CFSME: OUT ON THE STREETS

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This is our CFS/ME activism. story from Barcelona, Spain ... of Catalonia (population 6 million), Spain, put out a plan for patients ... – PowerPoint PPT presentation

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Title: CFSME: OUT ON THE STREETS


1
CFS/MEOUTON THE STREETS!
  • JOIN THE INTERNATIONAL CFS/ME PATIENTS MOVEMENT

2
This is our CFS/ME activismstory from Barcelona,
Spain
  • In January 2006, the Autonomous Regional
    Goverment of Catalonia (population 6 million),
    Spain, put out a plan for patients with CFS/ME or
    Fibromialgia (FM) that would force us to only
    access Primary Health Care and keep us from
    seeing specialists (this added to the fact that
    there is only one CFS Unit in Spain with a 2 year
    waiting list).

3
Why did the goverment do this?
  • Simple enough they knew that, as PHC doctors are
    not trained to diagnose and treat CFS/ME or FM,
    their reports would be useless to allow us to
    apply for a disability pension. (They think we
    can live on nothing.) This would put us both in a
    legal and health care services LIMBO. Which is
    why we, the patients, called this goverment plan

4
THE GUANTANAMO PLAN
5
As we felt trapped like Guantanamo prisoners, we
decided to make orange ourcolour
6
We hit the streets any way we could wheelchairs,
canes, chartered buses
7
We gathered in front of the Health Department
with our signs and our whistles.
8
Of course, not all of us did make it there
I represent 4 people, the other 3 are in bed.
9
We drew bodies and wrote in them the number of
people with CFS thatwere not able to get out of
bed
10
For some, it was too late
In memory of those with CFS who
have committed suicide.
11
The goverment officials came out to try to
reason with us. But THEY lacked reason.
12
We even got support from far away
Dr.Nancy Klimas, president of the IACFS
13
After that we spent a month in bed. But it was
worth it!
14
We made all the national press!
  • Tell us what you are doing in your area
  • for CFS-ME rights.
  • Lets join our forces together!
  • www.ligasfc.org
  • info_at_ligasfc.org
  • (Barcelona, Spain)
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