Learning to Dance

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Learning to Dance

• Building Family Professional Partnerships
  through Leadership Training Programs

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(No Transcript)
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• At our best level of existence,
• we are parts of a family,
• and at our highest level of achievement,
• we work to keep the family alive.
• Maya Angelou

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• Experiences of family professional partnerships

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Maternal Child Health Mission

• To build a society where healthy children and
  healthy families live in healthy communities
• Core values leadership, diversity, equity,
  integrity, social justice, partnership
  empowerment, and honesty

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MCH Training Programs

• Our vision for the 21st century is that all
  children, youth, and families will live and
  thrive in healthy communities served by a quality
  workforce that helps assure their health and well
  being.
• MCHB MCH Training Program funds public and
  private non-profit institutions of higher
  learning to provide leadership training in MCH to
  achieve this vision
• http//mchb.hrsa.gov/training/index.asp

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Funded Projects by Program

• Adolescent Health
• Certificate in MCH Public Health
• Collaborative Office Rounds
• Communication Disorders
• Continuing Education
• Developmental - Behavioral
• Pediatrics Distance Learning
• LEND

• MCH Institute
• MCH Pipeline
• Nursing
• Nutrition
• Pediatric Dentistry
• Pediatric Pulmonary Centers
• Research Training Enhancement
• Schools of Public Health Social Work

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Title V Family Involvement

• Family professional partnerships
• MCHB strategic plan block grant
• OBRA
• Healthy People 2010 goals
• NC Division of Public Health responsible for
  measuring FPP progress
• The Family Council
• Family Liasion Specialist

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The Family Council for CYSHCN

• 21 members are diverse across race/ethnicity,
  geography, income, service use, family
  composition
• Representative of the definition of children and
  youth with special health care needs
• Established a new strategic plan in 2006

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The Family Council Ultimate Goal

• Children youth with special healthcare needs
  are healthy active citizens and leaders

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The UNC Consortium

• Initiated in 2000
• Comprised of 5 MCHB - funded leadership training
  programs at UNC
• MCH/School of Public Health
• LEND/CDL
• MCH Nutrition
• Pediatric Dentistry
• Social Work

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National Performance Measures

• The Performance Measures as they relate to
  leadership training programs
• NPM 7 (Family Participation)
• NPM 11 (Cultural Competence)
• NPM 59 (Collaboration with Title V)

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The Leadership Trainees

• Selected through competitive application process
• Students in training for clinical, program
  development, or policy positions in MCH
• Varied experiences working with CYSHCN their
  families
• Leadership development program included 5
  workshops

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Where the dance begins
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Partnership Planning

• Communication
• Commitment
• Equality
• Skills
• Trust
• Respect

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Workshop Planning

• Developed planning committee of FC members,
  trainees, faculty
• Workshop concept evolved throughout the planning
  period
• FC member participants in workshops
• Readings, assignments, stories

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Workshop Learning Objectives

• To increase trainees awareness of disability/
  CYSHCN as an integral component of MCH practice
  and policy
• To increase trainees appreciation of the
  importance of family professional collaboration
• To provide trainees with methods of
  incorporating family perspectives into MCH
  leadership

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The Workshops

• Framework for collaboration
• Creating a learning community
• Ground rules hearing, respecting, responding
• Strengths focused
• Power of stories

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Partner Feedback

• Formal efforts to gather feedback from
• Council members
• Consortium members
• Trainees
• Two phases of feedback
• Following each workshop
• Feedback shaped future directions

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Trainee Comments

• Appreciated family participation
• shed a different light to our conversations
  brought a dose of reality to the table
• remind us about our insensitivities the
  reason we are all doing this
• Concerns about application
• Policy and program development
• International work research
• Populations other than CYSHCN

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Family Council Feedback

• Overall, positive experience
• Enjoyed open discussion energy of trainees
• Developed an appreciation for the importance of
  training professionals in policy program
  development
• Not only direct care providers
• Increased personal leadership skills

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Reflections

• Clinical, policy, individual cultures and
  experiences shape perceptions
• The presence of the rich culture of families
  results in participants confronting the issues
  more directly
• Family involvement on a continuum from direct
  care interaction to family professional
  collaboration at the systems level
• Leadership development requires continuous
  reflection

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Reflections

• Consortium in full agreement that the partnership
  is valuable on multiple levels
• Strengthened relationships between Title V and
  the training programs
• Broadened faculty understanding of CYSHCN systems
  of care and experiences of families

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Family Council Future Planning

• FC members unanimously agree to continue
  partnership with UNC
• through other leadership training workshops
• on other projects
• As a result of experiences this year, FC members
  are
• more interested in advocacy
• more aware of continuing education possibilities

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Consortium Future Planning

• Explore the potential for family members to
  participate as a discipline in the leadership
  development program
• Integrating family participation into grant
  proposals
• Systematically identifying trainees to bridge
  Title V and academia

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Future Planning

• Allow the workshops to count for formal credits
  for family members
• Develop a collaborative product
• Advocacy project
• Legislative research
• Policy development
• Increase leadership capacity across the Family
  Council
• Leverage resources to build MCH capacity

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(No Transcript)
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Presenters

• Joy Hales
• jhales_at_triad.rr.com
• Marlyn Wells
• Marlyn.wells_at_ncmail.net
• Marcia Roth
• Marcia_roth_at_unc.edu
• Julia Wacker
• jlwacker_at_gmail.com