General Disability Measurement in Uganda

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General Disability Measurement in Uganda
Focusing on Improvement in Methodology and
Concepts used
By Nabukhonzo Pamela Uganda Bureau of Statistics
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Disability Measurement in Uganda
Introduction Population and Housing Censuses CBR
Programme Conclusion
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Introduction

• Population and Housing Censuses remain major
  source of nation wide Disability Statistics
• Regional workshop on disability Statistics in
  Africa
• Land mark in the area of disability measurement

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Disability Measurement in Uganda
Introduction Population and Housing Censuses CBR
Programme Conclusion
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Methodology
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Questions Asked

• 1991 Census
• Is there anyone who was in the HH on the census
  night disabled?

• 2002 Census
• Does NAME have any difficulty in moving,
  seeing, hearing, speaking or learning, which has
  lasted or is expected to last 6 months or more?

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Definition of Disability
1991 Census
Any condition, which prevents a person from
living a normal social and working life.
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Definition of Disability
2002 Census
A person who is limited in the kind of or amount
of activities that he or she can do, because of
on going difficulty(ies) due to a long-term
physical condition or health problem that has
lasted 6 months or more. This includes all those
difficulties that are expected to last more than
6 months.
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Summary
1991 Census

• The term disability was used in the Global
  question.
• One disability
• Prevalence rate of 1.1

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Summary
2002 Census

• Included information on rehabilitation measures
• The term disability was avoided in the global
  question
• Multiple disability(at most 2)
• Duration was taken care of.

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Disability Measurement in Uganda
Introduction Population and Housing Censuses CBR
Programme Conclusion
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Community Based Rehabilitation Programme

• Implemented under MGLSD

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Weaknesses related to Data collection

• Existing gaps in developing specific indicators
• Lack of reliable data information systems
• Difficulty to collect comparable data
• Assessment forms were too complicated
• CBR staff hardly filled these forms
• Data from some districts was not correlated and
  systematized

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Data Collection Instruments

• Identification, registration baseline
  information forms
• Assessment, follow up referral forms
• Supervision monitoring guidelines
• Reporting guidelines

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Definition of Disability
CBR Programme
Difficulties/restrictions in performing daily
activities leading to failure to participate like
other people.
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Question asked Methodology
Data collection is mainly be observation of the
PWD

• Questions touch on
• Severity
• Duration
• Cause
• All domains of well-being

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Environment and participation

• Home environment
• Accessibility
• Nutritional practices
• Hygiene of PWD
• Waste disposal
• Source of water
• Cultural beliefs/practices related to PWD

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Mapping to ICF

• Most of the chapters are not touched at all
• At least one component/chapter is touched

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Disability Measurement in Uganda
Introduction Population and Housing Censuses CBR
Programme Conclusion
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Conclusion

• Nation wide data on disability in Uganda is from
  censuses
• Administrative data collection from CBR will be
  the only comprehensive source though not nation
  wide
• Issues under question matrix were to a great
  extent covered in both programmes
• (census excludes severity, CBR includes it

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