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Partnerships to Reduce the Burden of Arthritis: The Arthritis Foundation

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Title: Partnerships to Reduce the Burden of Arthritis: The Arthritis Foundation


1
Partnerships to Reduce the Burdenof Arthritis
The Arthritis Foundation
  • Lisa M. Carlson, MPH, CHES
  • Vice President, Population Health
  • Arthritis Foundation

National Conference on Health Education and
Health Promotion and the American Association for
Health Education Summer Institute June 3,
1999 Washington, D.C.
2
Our Mission
  • The mission of the Arthritis Foundation is to
    support research to find the cure for and
    prevention of arthritis and to improve the
    quality of life for those affected by arthritis.

3
Role of the Arthritis Foundation
  • The Arthritis Foundation strives to strengthen
    outreach and referral, increase awareness of the
    impact of arthritis and the services of the
    Arthritis Foundation, and help people make good
    health decisions through advocacy, support,
    education and self-management opportunities.

4
Organizational Strengths
  • The only national, voluntary health organization
    working for all people affected by any of the 100
    forms of arthritis
  • More than 50 years of experience advocating for
    and addressing the needs of people with arthritis

5
National Resources
  • Nationwide network of 150 chapters and branches
  • Volunteer workforce of 400,000
  • Membership base of 500,000
  • Web site www.arthritis.org
  • 80 pamphlets, books and videotapes
  • 800 that receives more than 250,000 calls
    annually
  • More than 150 million media impressions each year

6
Chapter Core Competencies
  • Professional education (MDs, RNs)
  • Public education and outreach (community, clinic
    settings)
  • Advocacy
  • Patient services (referral by health care
    provider)


7
Continuum of Educational Activities
Awareness Increased Knowledge Changed
Behavior
Participation in group programs
Occurs in program
Education
8
Arthritis Foundation Programs
  • EDUCATION
  • (to build awareness)
  • 1-H our educational programs
  • Lunch Learns
  • Press releases
  • Marketing

9
Arthritis Foundation Programs
  • SELF-MANAGEMENT
  • Arthritis Self-Help Course
  • Lupus Self-Help Course
  • Fibromyalgia Self-Help Course
  • Bone Up on Arthritis
  • Support groups
  • PHYSICAL ACTIVITY
  • Arthritis Foundation YMCA Aquatics Program
  • PACE (People with Arthritis Can Exercise)
  • Joint Efforts
  • Walk with Ease

(to develop increased knowledge and changed
behavior)
10
Partnering Organizations
  • Public Health
  • Behavioral Risk Factor Surveillance System
  • Legislation promoting arthritis education and
    programs
  • Pharmaceutical companies
  • Professional associations
  • medical practitioners
  • hospitals and other care facilities
  • Managed care

11
Public Health Partnerships
  • Osteoporosis Initiatives in New Jersey
  • Objectives
  • improve quality of life for people with
    osteoporosis through peer support groups
  • train support group facilitators
  • provide public forums, Speakers Bureau programs
    on osteoporosis

12
Public Health Partnerships
  • Partners -- Advisory Council
  • American Association of Retired Persons
  • Older Womens League
  • NJ Osteoporosis Self-Help Organization
  • NJ Department of Health and Senior Services
  • Successes
  • support groups underway
  • Speakers Bureau presentations scheduled
  • Public Forums sites and speakers identified

13
Managed Care Partnerships
  • New York Chapter and Group Health Incorporated
    (GHI)
  • GHI sponsored the Arthritis Foundation Arthritis
    Self-Help Course (ASHC)
  • 18 courses offered to GHI subscribers to learn
    self-care techniques, pain management, and coping
    strategies

14
Managed Care Partnerships
  • Maryland Chapter and CareFirst Blue Cross Blue
    Shield
  • Chapter staff trained CareFirst health educators
    about arthritis
  • CareFirst newsletter ran information about
    foundation services
  • Chapter staff arranged presenters for arthritis
    education videos for CareFirsts Health Today
    cable TV program

15
Addressing Diverse Populations
  • Southern California Chapter Spanish Arthritis
    Empowerment Program
  • Community-based program taught in Spanish by lay
    health educators
  • Program developed by chapter, Stanford
    University, Olive View-UCLA Medical Center
    Foundation
  • Program focuses on empowering participants to
    gain control of their arthritis

16
Addressing Womens Health
  • Arthritis Foundation and Older Womens League
    (OWL)
  • Foundation developing quality of life arthritis
    education program Women Over 40
    Arthritis
  • OWL to facilitate public education seminars,
    including health care professionals speaking
    about arthritis

17
Building Partnerships
  • No single organization can effectively address
    the burden of arthritis alone.

18
To get involved
  • Contact your local
  • Arthritis Foundation chapter
  • 1.800.283.7800
  • www.arthritis.org
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