The Cooperative Agreement for HIVAIDS Data Management

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The Cooperative Agreement for HIV/AIDS Data
Management

• Lisa Hirschhorn, MD, MPH
• Principal Investigator
• Mira Levinson, MPH
• Project Director
• Andee Krasner, MPH
• Project Coordinator

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JSI Research Training Institute, Inc.

• Improving the health of individuals and
  communities in the United States and throughout
  the world
• Collaborating with communities to respond to the
  HIV/AIDS epidemic for more than 20 years
• Working with local, state and Federal health
  agencies to identify and implement appropriate
  technology solutions to improve service delivery

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Our TA Goals and Objectives

• Goal Strengthening grantee capacity to collect,
  manage, report, and utilize data by
• Determining grantee TA and training needs
  related to data
• Identifying appropriate responses and best
  practices for data management, utilization, and
  reporting
• Responding to grantee data needs through
  distance-based and on-site TA and training
• Creating and enhancing a repertoire of
  electronic and written resources

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Goals of the Needs Assessment

• Goals
• To identify grantee needs to target TA, training,
  and resource development efforts
• To identify TA/training needs and strengths in
  data management and reporting
• To determine capacity and needs for reporting
  funded versus eligible scope
• Developed in collaboration with DTTA, DSP, and
  grantees

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Sampling Criteria

• 101 grantees were interviewed
• Grantees were sampled based on Part, reporting
  scope, geographic region, and size
• All grantees reporting funded scope and mixed
  scope were included in the sample due to smaller
  numbers
• Participants in the Client Level Data Assessment
  project were not included in the sample

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Grantees Participating in the RFI
Funds services, but does not provide services
directly
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What is Reporting Scope?

• Funded Scope Data on clients receiving services
  paid for exclusively with Ryan White Program
  funds.
• Eligible Scope Data on clients receiving any
  service eligible for Part A, B, C or D funding
  are included in the report even if the service
  was not paid for with Ryan White Program
  funds.
• Current CADR Instructions Grantees and
  providers who choose to report only on the subset
  of clients who received services funded by CARE
  Act Title fundsmust have special permission from
  their HRSA Project Officer.
• from 2006 CADR instructions

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Key Questions Reporting Scope Capacity

• What is the capacity of grantees and their
  subgrantees to report Funded Scope?
• For grantees able to report (or already
  reporting) Funded Scope
• What are their characteristics?
• What successful strategies have they used?
• For grantees not currently able to report Funded
  Scope
• What are their characteristics?
• What are the barriers to being able to report
  Funded Scope?

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Characteristics of the Sample (N 101)

• 21 Part A grantees
• 0 funded scope only, 10 eligible scope only, and
  11 mixed scope
• 25 Part B grantees
• 3 funded scope only, 10 eligible scope only, and
  12 mixed scope
• 35 Part C grantees
• 13 funded scope only, 22 eligible scope only, and
  0 mixed scope
• 20 Part D grantees
• 2 funded scope only, 13 eligible scope only, and
  5 mixed scope

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Preliminary Results
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Funded Scope Grantees Critical Factors Enabling
Funded Scope Reporting

• Client tracking system
• Grantee has been reporting using the funded scope
  for years and has set up systems accordingly
• Grantee data system supports funded scope
  reporting
• Clear instructions to subgrantees

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Funded Scope Subgrantees Critical Factors
Enabling Funded Scope Reporting

• Funded scope reporting is a contractual
  requirement
• Type of service provided
• Entire service categories (or entire
  organizations) are wholly funded by Ryan White
  Program
• Number of years receiving Ryan White Program
  funding
• Good data system

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Funded Scope Grantees Benefits and Challenges
of Funded Scope Reporting

• Benefits of Funded Scope Reporting
• Provides helpful information on cost and
  utilization of services
• Makes it easier to determine client needs
• Supports planning and allocations efforts
• Ongoing Challenges
• Database modifications are needed
• Ongoing training is needed to ensure data quality

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Eligible Scope Grantees Capacity to Report
Funded Scope
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Characteristics of Eligible Scope Grantees Able
to Report Funded Scope

• Entire service categories (or organizations) are
  wholly funded by Ryan White Program
• Can identify if the provider of a particular
  service was Ryan White Program funded
• Can differentiate between Ryan White funded
  services and other funding sources

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Eligible Scope Grantees Technology-Related
Resources Needed to Report Funded Scope
plt.05
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Eligible Scope Grantees Administrative and
Staffing Resources Needed to Report Funded Scope
plt.05
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Needs Assessment Data Analysis Next Steps

• Phase Two Data management-related TA and
  training needs
• Phase Three Analysis pertaining to client-level
  data reporting capacity

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Other Ongoing Activities

• Development of a web-portal for data
  management-related TA resources
• Working with HRSA to coordinate with TARGET
  Center and other TA efforts
• Identifying and developing TA resources and
  activities based on needs assessment results

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Acknowledgements

• JSI would like to thank
• Grantee participants
• Program Managers, and data reporting and IT
  staff
• Grantee Project Officers
• DSP and DTTA POs
• Judith Ellis, Alice Kroliczak, Faye Malitz

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Learn More about our Project and Upcoming TA
Activities

• Visit our web-page
• www.datachatt.jsi.com
• Contact us
• Mira Levinson, Project Director
• JSI Research Training Institute, Inc.
• mlevinson_at_jsi.com
• 617.482.9485