Module 7

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Module 7

• Recruitment and Retention
• of CAB Members
• Trainer Manual

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This teaching tool was developed by the
François-Xavier Bagnoud Center at the University
of Medicine and Dentistry of New Jersey, with the
support of the International Maternal Pediatric
and Adolescent Clinical Trials (IMPAACT) network.

• Excerpts from this publication may be reproduced
  or adapted with acknowledgement of the source,
  provided the material reproduced by and for
  non-profit distribution only.

Claire Schuster, BS, MPH Network Community
Coordinator Social Scientific Systems,
Inc. EMail cschuster_at_s-3.com [phone] ?
Version 1.0 May 2007
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Objectives

• After completing this training, participants will
  be able to

• Talk about ways to recruit (find) CAB members.
• Discuss ways to keep CAB members active.
• Describe how to develop leadership skills in CAB
  members.
• Talk about how to make sure resources and ongoing
  support are available for the CAB and its
  members.
• Design strategies for getting support of research
  team while working towards partnership.
• Define CAB success.

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Recruiting CAB Members

• Clarify the CAB mission and objectives.
• Define what is expected of members.
• Explain what each recruit will add to the group.

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Recruiting CAB Members

• Discuss the rewards of CAB membership.
• Explain IMPAACT community representation.
• Explain how the CAB will be supported.
• Clarify the CABs relationship with the
  research team.

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Who are CAB members?

• HIV-affected or infected teenagers, women
• Caregivers of HIV-infected children
• HIV clinic staff members
• Representatives of HIV service organizations
• Community leaders
• Former or current study participants

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Recruiting CAB members

• List populations who need representation.
• Identify valuable skills.
• Assign recruitment to a small working group.

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Recruiting CAB Members Diversity

• Are there groups that CAB members stigmatize?

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Recruiting CAB Members Diversity
Is it ethical to include stigmatized populations
in the research, yet not have representatives of
the stigmatized group on the CAB?
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Recruiting CAB members

• HIV clinic
• Churches
• HIV support groups
• HIV service organizations
• Other community groups

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Retaining CAB members

• Avoid meetings that are disorganized, not
  productive they cause frustration.
• Develop rules for
• Membership
• Meetings
• Selecting leaders
• Protecting privacy

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Retaining CAB members

• Develop specific, realistic, measurable goals.
• Secure administrative support.

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Retaining CAB members

• Make sure each CAB member understands his/her
  responsibilities.
• Provide education and training.
• Create a plan for collaborating with the research
  team.
• Encourage development of new skills.
• Recognize individual efforts to improve.

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Retaining CAB members

• Work toward a partnership with the research team.
• Communicate regularly about needs and successes.
• Share community feedback with research team.
• Give feedback about research.
• Communicate problems that need to be addressed.

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Retaining CAB members

• Share information from regional, international
  CAB colleagues.
• Provide feedback from local CAB members to
  regional, international colleagues.

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Retaining CAB members

• Confidentiality
• Discuss privacy and personal information.
• Comfort
• Members need to feel they are welcome and
  included in the group.

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Retaining CAB members

• Costs money and time
• Emotions stress and burnout
• Special needs extra attention

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Dismissing CAB members

• The CAB should make a policy on dismissing
  members before a problem occurs.
• Replacing nonproductive members or those who
  break CAB rules will help the CAB.

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Fostering Leadership

• Identify necessary skills.
• Provide training, mentorship.
• Give opportunities to practice leadership skills.
• Rotate leadership roles.
• Encourage working with regional, international
  colleagues.

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Measuring CAB success

• Part I
• How many meetings?
• How many members
• attend regularly?
• Do members
• represent the target populations?
• Are any populations not represented?
• Have those who joined
• remained CAB members?

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Measuring CAB success

• Part II
• Has the CAB developed a mission, objectives, and
  policies?
• Has the CAB made progress toward meeting the
  objectives?
• Have the CAB and the research team agreed on
  their expectations of each other? Have they met
  those expectations?
• Has the CAB made progresstoward addressing
  members
• education and training needs?

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Measuring CAB success

• Part III
• Has there been communication between the CAB and
  regional and/or international CABs?
• Has there been progress developing new
  leadership skills among the CAB members?
• Have any CAB members assumed leadership roles
  who had not previously been leaders?

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Summary

• Recruit CAB members from populations who will be
  studied in IMPAACT research.
• Retain members by having realistic goals,
  providing education and training.
• Work towards a partnership with the research team
  and foster leadership.
• Success will be vary between sites depending on
  the experience of CAB members and the length of
  time since the CAB was formed.